Caregiving
Discussion List
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Thank you and update
Thank you for the kind words and support on my earlier discussion post. Monday and Tuesday was at my wits end with Dad. Yesterday and today he has been better. I plan to go to a local Alzheimer's support group the 27th. I also talked to my PCP. My sister is another story, I explained to her I need emotional support and she…
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How to help with unfavorable caregiver behaviors
Hi - I’m new and have not posted before and value what everyone has to offer. I help care for my 91 year old FIL who is late stage Alzheimer’s and has been in memory care since January. My challenge is with my 89 year old MIL’s unfavorable behaviors. There was great resistance when we moved my FIL to memory care since my…
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Caring for Grandma / hallucinations
Hello everyone, my name is raffaella and I am caring for my 76 yr old grandma . Last two months have been very hard, she talks to all these ppl not present from the time she wakes up to the time the meds put her to sleep. In the beginning wasn’t so bad it was regular conversations, almost like telling stories, now she is…
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It is national assisted living week
I have never understood why memory care is always in an assisted living setting but it is what it is. This week is national assisted living week to celebrate residents and care givers. Those of us who are spending our life savings and 401ks on our spouses assisted living are not being celebrated or recognized. Typical of…
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Friend Guilt Tripping Me b/c Mom in AL
I know people sometimes mean well when they give unsolicited advice. A long time friend has been messaging me videos of cases of elder abuse in nursing homes and telling be how wrong I am to have my mom in a MC AL facility. She says my mom is unhappy (she hasn’t seen my mom in years) and that I’m doing her a disservice. I…
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NEW HERE! Need advice for POA “overrides”
Hello all! I will try to keep this brief. My mom was taken out of one nursing home without my consent back in 2021, and is now in a rehabilitation center as of April ‘26. I have POA since June 2020, but somehow non-family members allegedly have POA for 2026. I am my moms only blood family here and I need advice on how to…
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How To Be More Empathetic Towards Mom's Dementia Flashbacks
So my older sister (long-distance caregiver who visits every 1-2 months) just took my Asian mom to her first therapy session to work out the grief from my Dad's death (He died 13 years ago) and other emotional issues that fuel my mom's dementia flashbacks. We are going to do more sessions (virtually since I don't drive)…
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I am a long distance caregiver with my siblings
My mom was diagnosed with Lewy Body Dementia about 8 years ago. My two brothers and I are her legal co-guardians. She lives with my older brother in another city and has hired caretakers to assist with her care. My younger brother lives in another city as well, but is much closer and visits once a week when he can. I try…
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any advice on hospital bed mattress causing/contributing to migration and delirium
Hello community, My father is at home and started with hospice about a month and a half ago. they immediately provided a hospital bed,which looks to be almost a hundred years old- like something out of an asylum. I only recently tried it out myself and it made me feel so sad and angry that my dad has been sleeping in it…
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Angery Mother
I’m having major problems with my mom. Within the last four weeks if she doesn’t get her way, she will call me names not the nice ones either. I also moved in with her two years ago when she was first diagnosed with dementia she will also tell me that I need to move out. If she’s not getting her way. We have an appointment…
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I'm new here as an ALZ caregiver for my younger sister
Hi all, I'm glad to have found this group. I guess every ALZ story is complicated, so here's mine. I raised my younger sister and brother when our parents died at a young age. We went our separate ways for 40 years, but now both sibs are seriously ill and I am once again a caregiver. My sister has been diagnosed with…
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Help
I need some advice regarding my parents and how I can best support them. My mom has Alzheimer’s, and as a result, my dad has had to pick up much of the slack around the house. He is 92 and I can see that he is wearing out. I have offered to help as much as I can by grocery shopping, preparing meals, running errands, and…
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A tough week that got better
Monday and Tuesday were very challenging with dad and him wanting to go to Houston. Then he switched to saying Houston is his home but he is glad he is hear because of the heat in Houston. His birthday (86) was Saturday, which was a good memory day for him. This week on Thursday go to an in-person support group, has anyone…
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Saying she doesn't have it now
Hello! I am a full te caregiver to my husband grandparents, who i absolutely adore! She has Alz and he lost both legs the end of last year, beginning of this year. I started helping towards the end of last year. Gma was referred to a neuro to see if she's a candidate for for treatment that stops the progression of Alz.…
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Caregiver Burn Out
My father (he will be 86 on August 22nd) lives with me since my mom passed November 2024. He was diagnosed in 2018. In 2019, the began spending summers with me and wintering in Florida. It got to much for my mom not having help in winters, so in 2021 they began wintering in Texas near my sister. That didn't even last two…
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It's Me Again...
I would like to thank all of you that are giving me such good advice so for. My mom is in a confused/ delusional state all day no longer in and out. Even when speaking on the phone which use to break up the confusion but no longer does. The recent issue which I hate to mention this but I don't want to vent about this to…
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Starting this journey
My 87 y/o mother is in the early stages of Alzheimer's and lives in an apartment building that has stairs to get to her apartment. We have been looking at a smaller apartment that she could purchase that has no stairs for entry. At this point she is still able to do everything except more executive function type things…
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Moving my mom in
My mom was starting to show signs of Alzheimer’s but she refused to admit it. I was doing all the work when she needed help or forgot things and finally had to step back for a few months so my brothers would step up. Now they see how bad it is and after a 2 am phone call they see she should not be living alone. The only…
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Is this Alzheimer's or Personality?
My mom is extemely mean to me at times. She has Alzheimer's and I have been taking care of her for 8 years. When I suggest something like for example, "You can put on your pajamas since its night time" She'll respond, "Yeah I'm not stupid, I know what I'm doing" I try to give her as much autonomy as I can, but she is in…
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Can’t get ADLO to understand he goes to social group only on Tuesday and Thursday
I need some advice. I can’t get my ADLO to understand that he goes to his social group only on Tuesday and Thursday. The five days that he is home are trying because he gets up and dressed to go and gets mad at me because I don’t take him there. He says that I don’t get it. Of course he doesn’t explain exactly what I don’t…
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What happens between dementia appointments?
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Trying to help primary caregiver
Personal status: secondary caregiver; grandson (Edited for accuracy: Grandpa in hospital on ventilator and ng tube, Grandma watching over him; I visit sometimes) What's something primary caregivers wish a family member/other caregiver had done for you and/or the patient? I visit occasionally and sometimes bring stuff from…
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Need to vent- Struggling as a F 29 y/o caring for Dad
I don’t even know where to begin. I’m just looking to vent and feel seen as I feel most of my friends do not understand and I have no family. My dad is 84 and was diagnosed with frontotemporal dementia about 4 years ago. My parents divorced when I was young and I have 1 younger sister. When dad was no longer able to live…
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first time post
I joined because I feel like I could use some tips, advice and help. I don't do a bad job caring for my wife, but I could improve. I think I am sometimes too impatient with the seemingly endless challenging behaviors. There is rarely a single triggering issue, but usually the accumulation of behaviors, that makes my…
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Switching from daughter to caregiver… resources, advice, anything?
As the title states, I’m wanting to know the wheres, whats, whens, whos, hows, and whys do you utilize the most? Not getting much help from my dad’s (newly diagnosed early onset Alzheimer’s) doctor. When I asked for some recommendations (medicine management, in home care, support groups, etc.), all I got was checkout the…
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I am new to all of this.
My wife has been suffering short term memory loss for a few years and though I tried she would not see a doctor. Earlier this month she had a massive delusion. Forgot who I was after 49 years of marriage or that we have lived in our home for over 20 years. We went to the ER and I am still waiting to get a neurologist…
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comfy chair recommendations?
Hello everyone! Not sure if this question is overly specific, but wanted to see if anyone had thoughts to share! A goal that my Mom and I have is to get a new armchair for my Dad (83, diagnosed with general dementia) to sit in in the living room. Before he fell, he was sitting and sleeping in a big, deep, cushy La-Z-Boy…
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Sad, stressed, and need to talk to others
I am new to this site. My significant other (SO), is battling Alzheimer's. I just need to know what I am able to do to make both our lives easier. I feel like I have already lost a lot of the man I married. He has good days and bad days. But, it has taken a toll on us. I am having to do the things he use to do along with…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
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