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ALSP support group

karaking1089
karaking1089 Member Posts: 1 New
in Caring for a Parent
My mom was DX with ALSP it’s a rare/genetic for of Alzheimer.. I was wondering if there was any type of support groups even virtual support groups that anybody has or has gone through that could help me. I love to join a support group, but I don’t know where to start, Can guide me?
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Comments

  • harshedbuzz
    harshedbuzz Member Posts: 4,348
    Seventh Anniversary 2500 Comments 500 Insightfuls Reactions 500 Likes
    Member

    The only place I can think of that might have information leading to support would be NORD (National Organization for Rare Disorders.

  • M1
    M1 Member Posts: 6,700
    1,500 Care Reactions 1,500 Likes 5000 Comments 1,000 Insightfuls Reactions
    Member

    welcome to the forum Kara. I frankly suspect you will find as much support here as anywhere. Hope so anyway.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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