Early onset at age 60

pollyvonr

Hello, my husband was recently diagnosed with Early Onset Alzheimer's at age 60. We live in the Erie, PA area. The support groups in the area don't seem to fit our demographic. Although we do enjoy the company of folks older than us, some of the challenges we are facing are a lot different than if we were in our later years. Any suggestions on where to find a support system specifically for people in our age range? I really appreciate any guidance!

sandwichone123

I found that this group is the best—although many people here are much older than we are, the support is invaluable. I also think people dealing with younger onset are more common here than in other support settings.

Early on I went to a local support group, although I had to take time off work to do so. That was really helpful in understanding people's perceptions, but most of all in recommendations for memory care facilities. I placed my dh 11 days after his 60th birthday.

trottingalong

https://alzconnected.org/discussion/71298/early-onset-at-age-60

https://alzconnected.org/discussion/comment/229324#Comment_229324

on the main page search for early onset and you should be able to find other families in the same situation. I know there have been 2-3 in the last six months. Then you can private message them. I believe a couple of people did a connection this way. You can also try contacting your local agency on aging and they may know of something also.

BPS

This site has been helpful for me. My wife diagnosed 9 years ago at age 62. She progressed slowly but steadily. She is now 71 and in MC after having a stroke in March. I didn't find this site until about 1 1/2 years ago, but it has been helpful. You can ask or say anything, and the people here understand and give their thoughts. I found that the real experience here has been more helpful than "professionals" that have studied dementia (their knowledge is important too but for dealing with life experience wins). If I knew of an in person group near me I would probably go, but more for getting out around other people that have situations then for trying to get more experience than I get here. This becomes a lonely journey sometimes.

trottingalong

https://alzconnected.org/discussion/comment/229328#Comment_229328

Well said. This site has become my lifeline. I have learned so much from others.

Biggles

Absolutely agree with PBS and the others this is the best place to learn, to vent, to virtual cry. The understanding and compassion that comes from this group is much more valuable and knowledgeable than any of the professionals that I have talked to. Wonderful wonderful members.

pollyvonr

https://alzconnected.org/discussion/comment/229324#Comment_229324

Thank you for your reply, Sandwichone123. I appreciate your guidance!

pollyvonr

Thank you, Trottingalong. I appreciate the idea and will see if I can connect with someone in my area that way!

pollyvonr

Thank you for your reply, BPS. I'm sorry to hear about your wife. I appreciate your honest feedback and value your opinion!

pollyvonr

Thanks, Biggles. I'm glad to have found such a valuable support resource!

Leender

We are early in all this - my DH is 64 - he gets pretty sad and despondent when he thinks about what's going on with him. Any thoughts about what I can do or say? He gets so frustrated when he can't do something. He also sys he just wants to get better.