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I'm 45 and just got the news

ItsTotallyHer
ItsTotallyHer Member Posts: 1 Member
in I Am Living With Younger Onset Alzheimer's
I just tested positive for moderate to frequent corticol amyloid deposition. I don't even know how to feel right now. I went to my doctor for cognitive decline and memory problems, and the pet scan showed this. My doctor didn't tell me very much, so I've been researching online, and i can't stop crying. This was my biggest fear since watching my grandma decline as a child.
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  • Laura2020
    Laura2020 Member Posts: 5
    First Comment
    Member

    I can relate. I helped take care of my mom who had VD. It was awful watching her "disappear". Two years after she passed, I was diagnosed EO. My doctors have all said I'm fortunate to have caught it early because there are things that can be done to slow the progression. I started Infusion treatment (leqembi) this past January. Some days are better than others. But I take it day by day. I will say it definitely helps talking about it. I myself found help processing my diagnoses with a therapist.

    I'm sorry you are going this.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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