Struggling to find balance

Danielshardy007

Hi, dad lives with me and has moderate stage Alzheimer's. Despite lots of other health concerns, his progression has been very slow- I've been giving him care (first IADLs like paying bills, now progressing to physical, Hands-On hygiene and such) for a little more than a decade.

In addition to this stressor, last summer I merged my family with my partner and 14-year-old stepkid, so all four of us are living together in the same small house.

I have to manage my own health concerns, including chronic pain, as well as be a supportive co-parent to the autistic teenager.

I do have someone coming to help twice a week and they mostly make sure he eats while I'm at work and do some lighthouse keeping. (temporarily increased to three times a week while I've been unable to physically provide the care while I've been in a pain flare).

I feel like I have no patience, am constantly irritable, + genuinely struggling. I am in therapy, couples counseling, and receiving mental health medication support. I've asked for an increase in frequency with my therapy and an additional visit for medication management.

I don't knowI don't know what question I have specifically, maybe looking for additional support, maybe looking for understanding, maybe looking for advice in avenues I haven't considered.

Summary -

Physically disabled caregiver struggling with overwhelm in a complex " Sandwich generation" situation.

Daisy4U

Such a hard situation with which you are coping. Sending supportive thoughts your way Daniel. For strength and practical help to alleviate the stress and weight you are under.

Whitney

https://alzconnected.org/discussion/76881/struggling-to-find-balance

I am in the same boat with you. I have two young kids, 2 and 8, and my father in law with Mid-late stage Alzheimer’s. I have no idea how to not be annoyed, stay present and keep a positive outlook.
Know that I am here with you!

SusanB-dil

@Danielshardy007 - welcome to 'here', but sorry for the reason. and yes, much support here.

Maybe look into adult daycare through the week. It would maybe get him active, and would give you some respite.