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    ALSP support group

    karaking1089
    karaking1089 Member Posts: 1 New
    in Caring for a Parent
    My mom was DX with ALSP it’s a rare/genetic for of Alzheimer.. I was wondering if there was any type of support groups even virtual support groups that anybody has or has gone through that could help me. I love to join a support group, but I don’t know where to start, Can guide me?
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    • harshedbuzz
      harshedbuzz Member Posts: 4,959
      Eighth Anniversary 1,000 Likes 2500 Comments 500 Care Reactions
      Member

      The only place I can think of that might have information leading to support would be NORD (National Organization for Rare Disorders.

    • M1
      M1 Member Posts: 6,788
      1,500 Care Reactions 1,500 Likes 5000 Comments 1,000 Insightfuls Reactions
      Member

      welcome to the forum Kara. I frankly suspect you will find as much support here as anywhere. Hope so anyway.

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    Commonly Used Abbreviations


    DH = Dear Husband
    DW= Dear Wife, Darling Wife
    LO = Loved One
    ES = Early Stage
    EO = Early Onset
    FTD = Frontotemporal Dementia
    VD = Vascular Dementia
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    AL = Assisted Living
    POA = Power of Attorney
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