Packing up to go to other home
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My DH is packing up the car to go to his house. When I ask him where that is, he says our address. I have him look outside to see the neighbor's house, the street we live on, the yard, etc. He will agree this is the address, but there is another place. He has been going in an out so much the house is freezing! ( it is 21 outside right now)
This delusion has been on his mind for quite a while. He packs the car , insists he is leaving, then the next day wonders why all that stuff is in the car! This time, though, he started talking about it last night, and followed through packing this morning.
I told him I wanted to see this other place and we will go there today. I will drive him around today, and have SIRI direct us to the address, which will be ours. I have not been able to distract him, he only becomes agitated. So, right now, he is still packing!
This is really getting tiring. Has anyone else dealt with this? What works?
Comments
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My DH is in MC now, but when he was home he used to want to go to the other "home." I used to drive him around for 15 minutes and then go back home and announce "we're here!" Sometimes it worked and sometimes it didn't. Good luck with this problem, I found it to be very stressful, especially when DH started waking up in the middle of the night wanting to go home or school or work. The problem has almost stopped since he has been in MC.
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Thank you. I just checked the car, there is barely room for driver! I did hide the keys, even though he has not driven for a month now.
Interesting that the problem stopped when he moved away from home. Such a cruel disease.0 -
My DH did the very something thing during Stage 6. He would pack the car every afternoon and then yes the next morning say who put all this stuff in the car and unpack it. Unfortunately this lasted well over a year. We are in Texas and was particularly bad in the summer when it was so hot. He would sweat through all clothes to where he had to be changed. Nothing really helped with the packing. Medication did help with the wanting to go home. It still happened but with the medicine it was easier to redirect or accept the fiblets I would use. The packing the car was just what he did to be busy. Now that he is early Stage 7 he now stays inside more and just moves my shoes around that are at the hall bench in baskets. Takes me longer to find two shoes that match, but not a real big deal.
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My DW is constantly wanting to go home and gathers her clothes every day and she get's mad when I ask her to put them up. She is so adamite that she needs to leave because someone needs to come here and live. This is the major conflict we have daily otherwise she is very sweet. I just don't know what to do!!
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so sorry this is happening. Arguing won’t help. Telling he’s home won’t help. They want to go “home” due to anxiety. They no longer know where home is. Talk to the doctor. Meds will help. Try fibbing and redirect or distract. Tell him the car won’t start or is in the shop. Can you hide the car? There are locks you can put on the doors so he can’t go out. That should come soon anyway. Not much you can do about the packing but you could hide all but a few things and give him a suitcase to “pack” and tell him you’ll go tomorrow. Fib again and tell him they are working on the house that he thinks is his other home. It’s so sad. Hugs.
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Thank you , We have an appointment for tomorrow, DH wants to cancel, I am trying not to say anything more about it and hope we can just go out and wind up there. I switched his key fob for one with a dead battery. I have an air tag in his wallet, but I fear that he will figure out how to change the battery! Every once in a while, he demonstrates surprising ingenuity!
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No help but my wife is in MC and sometimes asks me when she can go home. I asked her about home thinking she was talking about the house we have lived in for 35 years but she describes someplace totally different. her descriptions are perry vague but not our house. My mom lived in a mother in law apartment we have for over 20 years and would ask when she is going home. Home means something different to them.
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New to this site and glad to have found a place where others will understand the unusual circumstances of caring for and living with a LO with dementia.1
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So sorry you are experiencing this situation. My husband frequently wants to go home and when I ask him what he wants to do there he says anything he wants. I think he gets bored and feels trapped since he doesn’t drive any more. I know how hard it is and hope you and his doctor can help him with his anxiety.
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We are in Rhode Island, it is very cold here. DH has been trying to start the car since 4:30 this morning. I tried to redirect him with breakfast, and told him we would figure it in time for doctor appointment.
Nothing is working, so at least I know he can’t drive away ! He was packing my shoes this morning, but caught him in time to keep them!
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I just want to share a little good news! We went to the neurologist yesterday. He increased DH Donezepril (sp), and ordered a refit of his CPap mask with a new respiratory therapist. We had the best nights sleep in over a week, with just the extra med. DH is in a great mood, and bringing in all the items someone left in the garage and car. I don't know how long this will last, but right now I'm delighted!
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This wanting to go to “our house” is the hardest thing I have ever dealt with. Sometimes it’s a few houses away, other times it’s next door. He packs sometimes and just wants to go other times. I’m exhausted from it and my stomach is in knots every night. We just doubled his Seroquel and he’s a little less angry, but still always ready to go home.
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Well, I had one good day! DH is packed again and ready to go. I still have the key, but, he went to a neighbor for help starting the car. (his fob has a dead battery) The neighbor has no idea what is going on and could not help with the car. Then, he called AAA, I told him the car will start and I will drive him, That didn't go over. Now, it is getting dark, and I think he will decide to wait until tomorrow. You are right, mathreader, it is exhausting, I feel the anxiety and stress, as well. The next appointment with the neurologist is in March, I'm not sure I can go through this every day till then! I tried to explain that he could not drive because the doctor said it would be too much of a risk, he said that was BS! (another change, he never swore) I spent the whole day calling to replace credit cards, bank to close checking account etc. My purse is mysteriously missing. I went through the whole house, basement, car , garage, shed. Nothing, they collected the trash yesterday and I have the feeling that my purse and wallet were in there! DH has no memory of any of the past week.
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So very sorry to see that the med change was just a short-lived win. Could there have been other factors that day, like getting out of the house, etc. that led to a good next day? At our house, my DH's keys were lost. He misplaced his car key in a cup holder in the car which I found later and then tucked away. So the only keys to the car are mine and stay in a zipper compartment in my purse. I send him looking for his keys (which lasts about a minute before he is bored and lets it go). Of course that won't work for you when he has moved/tossed your purse. :-( I will say that I look at what is in the trash cans something like 4 times a day. I often pull out pants and underwear that are soiled or inside out and "don't work anymore." I can get them to the laundry where they are "fixed." Don't know if "lost" keys will work for you, but just a thought.
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Yes! HIs keys are lost, and I keep the "spare" key hidden! His mood has been better with the meds, but the packing continues. In fact, I have a new question . How do I tell good intentioned neighbors that DH does not need help starting the car or packing? I felt so bad just now . A young father just stopped his truck, to help Tom put an antique treadle sewing machine in the trunk of the car! I was in the basement folding laundry, when I came up, I saw the truck with door open. I went out and there they were, just putting it in after unloading all of this afternoon's packing! I didn't want to seem upset, so, I just thanked him, and brought DH inside.
Last week, he had another neighbor trying to start the car! (keys went missing after that!)
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I have told my neighbors my husband has dementia. I also said he doesn’t realize it, but dies get confused. It would be good to tell them.
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I told our neighbors just in case…not that he is their responsibility, but if he gets himself into any kind of trouble, at least they know. I also put an air tag in my wallet. This was after we visited my sister last year, and he wanted to leave. He went out and put my purse into somebody else’s car that looked like ours. All’s well that ends well, but now I know where my wallet and his (as well as our car) are at all times.
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My husband went through a period of wanting to go to his house on the hill. He would argue with me, demand that I take him. He also would get an armful of clothes and leave. I'd look for him and find him outside in his pajamas at 2 am. It was as stressful as the phase of repeatedly asking the same question. It does stop eventually.
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How did it finally end? Last weekend, he had the car packed, ready to go. His son arrived Saturday afternoon and helped him un pack. He was content to stay home that night. Sunday, he didn't pack because his son asked him to stay here so he would know where to find him. Monday, I had an appointment, so his son took him out for lunch. His son went home(to Michigan) Tuesday night. Tuesday night he, was up every hour, lost and not sure how to get home. Wednesday morning, I had a terrible headache and cold symptoms. He was concerned and was quiet . Thursday, I felt better and we went to buy a birthday present for my sister. Today, Friday, the car is packed and he wants to go home now! I told him I would drive him there. Hopefully, a ride will suffice.
How did you cope with this?
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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