From Maybe to Reality
DH in ES thought. Then, several episodes of mis-rememering, including asking our adult son if he remembered a certain episode from his (DH's) youth. For the past 3 weeks he has been just fine, more or less, just the occasional lost word. In my mind I knew he still had Alz, but it just seemed like , well, maybe it will be a long time before it manifests itself in ugly ways.
Last night, as we were getting ready for bed, he left the bathroom without brushing his teeth and, so, I gently called reminded him. He said he had done so earlier, when I knew for a fact he had not been back in that part of the house all evening. I checked his toothbrush…dry. I told him it was dry and he became somewhat defensive and arugmenative, and said "I dried it." Because of all the reading I have done on dementia, I knew better than to argue and this once was not so critical. (My literal brain kept trying to figure out how one would go about drying a tooth brush).
Looking back over that day, I remembered several times where he couldn't find the words he was looking for, the several times he had lost what he was talking about. He had screwed up his budgeting spread sheet on the computer. Yesterday, ALZ moved back into our house.
Here is a funny thing that has happened in all of this. We have been married 65 years and I my love for him over the years has become a decision more than a feeling. But, since he was diagnosed back in June, I have fallen in love with him again. I don't understand it at all. We were like two old comfortable shoes living together. His love for me has changed as well, or at least it is more expressive. Has anyone else had a similar thing happen?
Comments
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I have had the same experience. My wife hugs me frequently, tells me she loves me, and thanks me for helping her. Very different from her behavior in middle age. More like when we were first married, actually. I don't if she has forgotten the things I did that she didn't like, or if I'm treating her differently now. Probably both.
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My DW is early/mid stage three, we have been married 56 years. We have always been affectionate, but since her diagnosis two and a half years ago, our relationship has become even more loving to each other. She is always calm and appreciative of everything I do for her, (which is almost everything). By comparison, I have a good friend whose DW has become extremely combative, screaming and yelling at her husband for no reason.. He is researching MC facilities, with no support from her GP, who continues to deny any problem with his DW's issues. What a horrific disease! God Bless Us All.
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This is such an odd disease. DH did so well for 3 weeks…seemed normal. Ever since the night when he "dried" his toothbrush, I am seeing more and more things…No need to list them. You all have your own ever-increasing things that you see. It is always such a surprise to me…normal, then out of the blue…not normal. I am so reminded of a failing or loose light bulb. (In fact, I have one in the room that I am currently in and haven't bothered to change it yet).
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This last week we had to travel to go to my brother's funeral and help my sis in law with the house. The reality of this disease slapped me right in the face. DH had been coasting along with very little change until then. The 9 hour drive threw him and he talked non-stop, even over-talking while the GPS was giving directions. Once we got to our hotel, he immediately put his clothes in the drawer in the living room of the suite rather than checking in the bedroom for a dresser. After that, he never remembered that they were there. The next day he panicked because he thought he had forgotten to pack clean underwear. (in the suitcase). Basically, he couldn't remember anything for the whole week. He had been having generalized itching before we left home and while we were gone he was scratching non-stop. He had a hullcinatory (sp?) dream which he has never had before. Somehow, I managed to remain patient in all of this. The kids were praying for me in my grief and I think that is why I was so calm. Now , that we are home, he seems "normal" again. Now, I can grieve for me brother.
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@Maru
I am sorry for the loss of your dear brother.
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Maru, I had a similar experience when I took DH on a 3 day vacation (our last). It was only a 4 hr drive but he also talked non stop and had to stop for bathroom emergencies every half hr or so. He had hallucinations at the beachfront cottage that I rented and didn't know who I was, was getting up to eat at all hours of the night, couldn't find the bathroom or lights, etc, etc. It was so frightening, but he is much better (comparatively) since we are home. No more long car trips in our future! I am so sorry for your loss…I'm sure you will have to bear this grief alone, but we will all be thinking of you…
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I’m sorry for the loss of your brother and the difficulties of your travel. I’m afraid my DH would be very confused if I drove him the 7 hours to see our daughter and grandchildren. He does pretty good here at home in our own routine. My DH also goes through these itching bouts, that seem to appear when he is more stressed.
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@Maru: When you take them out of their usual environment, they lose part of the scaffolding that they use to keep themselves together. I am sorry you are going through this.
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The reality of dementia really hit home with this. Where was the shoulder to cry on? Where was the man that was a friend to my brother and who would mourn his passing with me? Yes, I am carrying this grief alone while still working at helping my DH stumble through his confusion. It is better now that we are home, but I am still alone in this. Thank you for listening.
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Just need to talk without worrying the kids with every new thing. Since our return home DH has started falling asleep. He has never takes naps, now all of a sudden he just falls asleep …mid morning while saying his prayers, in the afternoon while watching a game, starting in the evening anytime after 7:30. Could be a short nap or it might be an hour or more. I try to wake him up if it is in the evening so that he will be able to sleep during the night. He doesn't want to go to bed until I do. That is part of his wanting to be with me. I am guessing that that is insecurity.
The other new thing is that his comprehension is diminishing. If we are watching TV, he may ask questions during the program or at the end of a movie that he indicates he really didn't understand the plot or the relationships in the story.
I miss my life's companion. I can't depend on him to be able to have conversation, just a normal, everyday conversation. Sometimes he is "here" and sometimes the comprehension or the memory has taken my spouse and closest friend of 66 years away.
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Maru, I am sure many of us understand and can empathize with the "progression in behaviors". While we are each experiencing our own journey it is so comforting to hear I am not alone. My DW can hardly track television shows anymore and certainly not the more complex or fast moving story lines. Lately game shows have been a source of enjoyment for her, happy for the winners. I have to find the moments that can still work.. I see more music, less television going forward. Naps increase over time. Use them to your advantage. Sometimes they are my only moments to check in with myself. We are here with you, prayers and hugs.
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Thank you for the reminder…Lately, we have become the big winners at Wheel of Fortune, complete with high fives. 🙃
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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