End of life?

Welcome Baggie, Tam Cummings has an end of life “ checklist” that may be helpful to review . Google it and see if it helps . Hugs to you , Nan and your brother .

this might help. https://www.alzheimers.org.uk/get-support/help-dementia-care/recognising-when-someone-reaching-end-their-life

If you do not have hospice, call them immediately. They can help you through this. If you do have them, this should be the point at which someone comes every day

From studio.carecompanion.online, a caregiver guide:

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I can sense how difficult and emotional this time is for you and your family. Watching a loved one struggle with their health can be incredibly challenging, and it's completely normal to seek guidance and reassurance during such a sensitive period.It sounds like your grandad is experiencing significant symptoms that may indicate he is nearing the end of life. This can be a confusing and distressing time, and many caregivers find it helpful to know what to expect. Here are some common signs that may occur as someone approaches the end of life:1. **Changes in Breathing**: You might notice irregular breathing patterns, including periods of rapid breathing followed by pauses (known as Cheyne-Stokes respiration).2. **Decreased Consciousness**: It's common for individuals to become less responsive and spend more time sleeping or in and out of consciousness.3. **Changes in Skin Color**: Skin may become pale or take on a bluish tint, especially on the extremities.4. **Decreased Appetite and Thirst**: Many individuals lose interest in food and drink as they approach the end of life.5. **Increased Pain or Discomfort**: If your grandad is experiencing pain, it’s essential to communicate this to the care team, as they can adjust medications like morphine to help manage his comfort.6. **Withdrawal from Social Interaction**: He may become less interested in engaging with family members or may prefer solitude.During this time, focusing on comfort and quality of life is paramount. Here are some suggestions for how you can support both your grandad and yourselves:- **Communicate with the Care Team**: Keep an open line of communication with the healthcare providers. They can offer guidance on what to expect and how to manage symptoms.- **Be Present**: Spend time with your grandad, even if he is not fully conscious. Your presence can be comforting to him.- **Create a Calm Environment**: Soft music, familiar scents, or gentle touches can help create a peaceful atmosphere.- **Take Care of Yourselves**: Make sure to take breaks and seek support for your own emotional wellbeing. Caregiving can be overwhelming, and it's important to prioritize your health too.- **Consider Palliative Care**: If you haven't already, discussing palliative care options with the healthcare team can help ensure that your grandad's comfort is prioritized.- **Talk About Feelings**: It’s okay to express your emotions and talk about what you’re experiencing. Sharing with family members can provide support.It’s important to remember that every end-of-life journey is unique, and there’s no one right way to navigate this process. How are you feeling about everything right now?

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