Assisted living room changes


My mom has been at the assisted living facility since October 2023. She is in a 2-room apartment, which we originally selected due her having 2 senior male dogs. At this point, the dogs are no longer there, and my mom is transitioning from moderate to severe. I was asked by the staff at the facility today how I would feel about moving her to a 1-room apartment, in their opinion, it would help her to be in a smaller space, eliminating confusion about moving from the living room to bedroom. I have no idea what to do; we started with hospice about a month ago (they felt she needed more one-on-one care) she's already declining, and I am scared of doing anything that could make it worse. I don't know that it's just "to make it easier" on my mom, I'm sure they would have no issue getting someone else in the room (maybe at a higher cost). but I will admit my mom does not spend a lot of time in the room, its mainly just when she's ready to go to sleep. She recently developed venous stasis ulcer on her left ankle because she's just not active at this point and I'm terrified of making the wrong move. Has anybody else dealt with anything like this?
Comments
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My spouse has changed rooms twice as his care needs changed, and each time the space is more simple. From closed cabinets to open shelves to less storage overall as the pwd's ability to deal with complexity decreases. I stopped bringing knick-knacks from home as he didn't seem to relate to them any more and they just added to the confusion. I think the staff is probably right about her doing better in a simpler space at this point.
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I would definitely avoid involving her in the move as little as possible. If she is not getting around well, maybe a wheelchair ride around the facility while others move the essentials in to the new room. Then bring her to the new room. If she comments on it not being the right room p, give a short simplified explanation for the move.
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DO not involve her in the move. Move everything while she is not there, or occupied + just move her into the new place. She may not even notice, you might be surprised. If she does notice, simply give her any excuse that you want ‘there was a leak in your old place + they need to fix it…..whatever.
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In 18 months my LO has been in four rooms in three facilities, and with each move the room gets smaller and simpler. It has been a good change each time. Some people will tell you that any change causes decline, but I’m not convinced that everyone with dementia is that fragile. I noticed no decline in my LO associated with a move. There was a positive change when my LO went from home to AL, and then declines have usually happened along with an illness of some kind—or sometimes just with the passage of time. Changing a room isn’t apt to make much if any difference in the disease progression in the later stages, and the staff is probably right that the smaller room will be better for your mom. (Once my LO told me, shortly after a move: “They’ve made a lot of improvements in this place lately.” With no consciousness of having changed rooms, my LO did realize that the situation was better. I said, “That’s great!”)
Like others here, I strongly recommend that you move her things while she’s otherwise occupied, and then just take her “back” to the new room. If she still recognizes her own belongings, you can show her that the place is hers: “Here’s your favorite blanket, and look, there’s that picture of us. I really love that picture. Do you like it?” Or if she wants to talk about the change of room, you can say, “You’ll find this new place a lot easier, I think. Look, here’s where you can find your sweater . . .” When my LO went from two rooms to one, I reduced the furniture, the decorations, the belongings, the pictures. We’re down to two picture frames (one is digital) and a clock that only I ever refer to. We’re done with knick-knacks. The room is easy to navigate, and the location of the bathroom is still obvious to my LO. Simpler is better in the later stages.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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