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On the verge of a nervous breakdown

Hi everyone I am new here and not sure what to say or even where to start I just feel like I am losing my sanity. I do not know if I am the only person this type of situation has ever happened to or if I really am going crazy. It is a complex story; 7 years ago, I moved in with my mom who had had a stroke and was in the early stages of Alzheimer’s. Let me say that before I made the decision to move in and help her, I had to think about it a lot because we have never had a good relationship. I was born out of wedlock and she has held that against me all my life. I thought I must try, I must try to make this relationship with my mom work before it was too late so I decided to move in and be there for her.

Until about 6 months ago she would not even admit that she had Alzheimer and although she had the medication, she was not taking it. As the months progressed and her Alzheimer’s started to get worse, she wanted to argued with me so much that oftentimes I would just go in my room and close the door. It was always worse in the evening and early nighttime. When I would tell my sister what was going on she would tell my sister I was a liar It got to the point where no matter what I did for her and I did everything for her, her finances, her medical, I did everything for her I cared for her I did her laundry I cleaned the house and when I tried to get her to do fun things she wouldn’t do them.

As time progressed and her illness got worse her agitation and her behavior towards me became increasingly worse. Last year I had decided I could not do it anymore, I told my sister and she convinced me to stay. It got to the point where she was cursing me, she was throwing things at me, it was just a really bad situation. Recently out of the blue Mom and my sister decided it was time for her to move into a home. They waited until the week before it was time for her to move into a home to tell me about it. Somewhere along the line my sister had the house put in her name and I was told I had to leave.

The week before I learned she was going into a home my daughter, granddaughter and I took my mom on a trip. We had such a great time all four of us laughed and we had fun and it was a great time. It was not until after that I learned she said that I forced her to go, she was saying that I was abusing her and I was stealing from her. I had just given her seven years of my life doing everything for her and this Alzheimer’s craziness was out of control. It was like a never-ending nightmare and it crushes my soul to know about all the lies that were being told. Most of the lies were being told because she did not want anybody to know that she had Alzheimer’s and she wanted everybody to think that I was lying.

When I called her at Thanksgiving to wish her happy Thanksgiving, she did not even know who I was and that was OK until Christmas rolled around and she sent me a text message that said she was sorry and she hoped one day I could forgive her and go and visit her, that she missed having me around and doing things with me.

I know in my heart I did everything I could in an attempt to help her because in the beginning the last thing she wanted was to go into a home. We did have some good times in that 7 years but there were far more bad times than there was good. The bad times have left this emotional, I do not even know what to call it, I do not understand… Was it the Alzheimer? Should I have not been the one to care for her because we did not have a good relationship? How is it that other family members cannot understand that it’s the Alzheimer’s that affected her behavior and not that I am a bad person. It breaks my heart that they think I’m a bad person because I am not, I tried to be a good daughter and now everybody hates me and all I do is cry because I know I didn’t do anything wrong.

Wow I went back and re-read this, it does sound like I’m crazy or a villain. Has anybody else had something like this happen to them or am I the only one? I really need to know because as I try to put my life back together and move on, I need to find a peace with the past 7 years. Unfortunately, not only am I trying to make peace with the past 7 years I am trying to find a place to live because of what my sister did and that is not easy either. I am living in a hotel paying a weekly rate feeling like I have lost my sanity, all I do is cry and I just don’t know what to do or where to turn.

Thank you for listening and God bless

Comments

  • Frustrated Daughter
    Frustrated Daughter Member Posts: 16
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    edited March 7

    Persever - Thank you for commenting and telling me I'm not the only one to share a horrible experience. I hate to hear that others have had horrible experiences at least I don't feel like I'm totally losing my mind. I tried so hard to educate my family on Alzheimer's, Every time I would email or text them information, they acted like I was committing a crime, it's almost like they didn't want to admit that she had Alzheimer's and therefore they didn't want to be educated..

    I know that it didn't help that. My mother and I had a strenuous relationship before the Alzheimer's and I probably wasn't the right person to move in and take care of her, but I had to try, she is my mother and I had to try.

    I'm trI'm trying real hard to forgive Because I know that's what God would want me to do. It just hurt and I feel so betrayed especially by my sister. And Now I have to figure out what to do with my life.I'm living in a hotel paying $314 a week.For me and my dog just trying to figure out what the heck to do next. To make matters even cheerier right after Christmas, I fell and broke my arm. So everything I own is in storage and now I have to have a second surgery on my arm because it's not healing properly.

    Thank you for listening it Means a lot to me, have a blessed day.

  • Victoriaredux
    Victoriaredux Member Posts: 212
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    edited March 6

    The house didn't get retitled without a deed being signed, you may want to talk to Adult protective services and ,hard as it is, relay your story as unemotionally as possible- that you were the caregiver for years , then the house title was changed [did you verify this at the Recorders office ? There are on line indexes at most office these days ] now you've been evicted and isolated from your mother . That you are worried about your Mom's care and finances .

    Was the house sold? If your mother is in a home and using medicaid to pay for it the possible gifting of the house could mess that up. Medicaid rules are strict and if your sister played fast with them APS may be. able to advise .

    But first take care of you .

    [It's not uncommon for a PWD to lash out towards the person that is closest to them , combine that with Anosognosia
    https://www.agingcare.com/topics/295/anosognosia

    and things can head south fast.]

    There is a good free service from the Alz Assoc:

    "Get Help and Support, Day or Night (800.272.3900)

    The Alzheimer’s Association is here all day, every day for people facing Alzheimer’s and other dementia through our free 24/7 Helpline (800.272.3900). Talk to a dementia expert now and get confidential emotional support, local resources, crisis assistance and information in over 200 languages. It's ok if you don't know where to start. Just give us a call and we'll guide you from there."

    Ask for a social worker, if one isn't available then they can call you back. People have replied they got a lot of good advise and support from this service. Take care.

  • SusanB-dil
    SusanB-dil Member Posts: 763
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    I agree that you could ditch the ones who said you 'weren't doing it right'.

    And do at least check on the house issue.

    You are NOT alone. Unfortunately, I have seen this happen in this forum. Perhaps not to the extent, but yes. Mom has/had anosognosia. This is not denial, but rather, the firm belief that nothing is wrong and everybody else is just out to get them. As Victoriaredux mentioned, they often lash out at the very ones taking the best care.

  • SDianeL
    SDianeL Member Posts: 3,342
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    so sorry you have been through this. To answer your question, yes it was the dementia talking not your Mom. The disease causes anxiety and agitation and they usually take it out on their primary caregiver. It got worse in the evenings because of “sundowning” Try to be thankful for the few good moments you had with her. I would visit her if you can. Read the book “The 36 Hour Day” which explains behavior of people with dementia. I would find a good counselor to talk to that will help you in many ways. Hugs. 💜

  • Frustrated Daughter
    Frustrated Daughter Member Posts: 16
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    edited March 7

    Victoriaredux - What they did was called a "Lady Bird Deed". I went online and did some research and found the recorder's office for our County and there it was a ladybird deed, and my name was not on it. Both of my sisters and brother were on there. Interesting as it was, they used an address for my brother that was about fifteen years old, which didn't make any sense to me, because all they had to do was call him and get his address. I had location sharing on my mom's phone in case she ever got lost so I went back as far as I could go and looked at it. I found two instances where my sister supposedly took my mom out to lunch but really they went to the attorney's office in town.

    At this point I am emotionally broken 😞 and can't do any more with them. It's not about the property, it's not about weather they snuck around and got me removed from her will. Now it's about me trying to find my sanity, a place to live and being able to move on with my life. I don't have any more fight in me. I'm not even sure I have the energy to move on.

    It's my 2 beautiful dogs that keep me going. They have been my emotional support for the last 7 years and I know if anything ever happened to me, they would be devastated as crazy as this sounds, LOL

    You gave me some great information, and I really appreciate it. Your words are kind and heartwarming and I thank you so so very much. Yes, I will reach out to the information that you gave me, from the bottom of my heart thank you 😊 🙏 ♥️ ❤️ 💜 💖 😊

  • Frustrated Daughter
    Frustrated Daughter Member Posts: 16
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    edited March 7

    H1235 - 💝 Thank you so very much from the bottom of my heart for sharing such insightful information. ❤️ for the first time in 7 years, I don't feel alone and that means the world to me right now. I am sitting here crying like a baby, crying happy tears.

    Thank you so much 💓 💗 💛 💖 ☺️

  • Frustrated Daughter
    Frustrated Daughter Member Posts: 16
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    💝 the last thing my sister said to me was she hoped I ended up homeless and in a ditch. 😢

  • Frustrated Daughter
    Frustrated Daughter Member Posts: 16
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    Pamu - thank you so much for your kind words. For the last 7 years, I have felt so alone and so defeated. Finally, I feel like somebody cares about me, strangers that don't even know me. But they care and you have no idea how grateful I am and how much I needed that, THANK YOU 🙏 😌

    The last thing my sister said to me was that she hoped I ended up homeless and in a ditch. That's the hatred that I'm dealing with, and because I believe in God and because of my faith, I'm trying real hard to forgive and to move on.

  • Frustrated Daughter
    Frustrated Daughter Member Posts: 16
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    SusanB-dil - thank you so much for your kind words I really needed them. For the first time in seven years I don't feel so all alone💝💖

  • Frustrated Daughter
    Frustrated Daughter Member Posts: 16
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    SDianeL - thank you so much for your kind words. I will certainly read the book. Everybody on here has been so kind to me when I needed it the most. Thank you 😊 🙏 💓 ☺️ 💗 💛

  • Frustrated Daughter
    Frustrated Daughter Member Posts: 16
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    Thanks to all, just wanted to say, thanks to all the wonderful posts I contacted the 800 number that y'all gave me, but because I'm not the actual Alzheimer's patient, there's not a whole lot they can do for me. Guess I am on my own and now homeless ready to just give up

  • caregiving daughter
    caregiving daughter Member Posts: 91
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    Very sadly, you will no longer have the ability to make peace with your mother for previous circumstances. You will need to make peace independently with the support of a counselor, partner, or very good friend. Your mom is ill and needs to be taken care of. You will need to identify a way for this to happen without further hurt to yourself. You can look into the community for care or you could continue to provide care while pretending to be a professional caregiver. Hurt comments will need to roll off immediately. Your mom does not mean to cause harm.

  • Victoriaredux
    Victoriaredux Member Posts: 212
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    Maybe it would be worth it to see a lawyer about presenting a bill for your time & expenses caring for your Mom over the last seven years , esp.since you are potentially disinherited by your sister taking your Mother to do the Lady Bird deed. Did your Mom ever imply you'd inherited part of the house pre- Alzheimer's? See if something can't be negotiated.

    7 years + 1/4 of the house. That's a pretty good chunk. Maybe you can get the deed voided or get a enough now to walk away and have first & last rent to get yourself situated again. At least you'll know you tried.

  • Frustrated Daughter
    Frustrated Daughter Member Posts: 16
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    That's a really good idea. I wonder who I would submit the bill to medicare and medicaid?

    How could I find out with Out contacting an attorney, I just can't afford an attorney right now.

    Thank you for being so kind and having such great information to share. I'm so emotionally drained, and my priority is finding a room to rent in my area.

  • SDianeL
    SDianeL Member Posts: 3,342
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    see if there is legal aid in your area. They take cases pro bono.

  • pamu
    pamu Member Posts: 100
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    You may want to reach out to your state/county's Dept of Aging or Dept of Human Services for resources.

  • Frustrated Daughter
    Frustrated Daughter Member Posts: 16
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    This is an off the wall question however, related to my post. Does anybody know where there is a room for rent or a kitchenette that I could rent in the Bryan / College Station Texas area?

  • Grenah
    Grenah Member Posts: 35
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    You are not crazy. The illness changes everything and your family needs to understand that. Even if your relationship with your mother was not good, the person you are talking about is not the mother you knew before. My mother has dementia and gets argumentative, lives primarily in an alternate universe and is generally not the person I grew up with. The family, mostly, understands that. I feel very alone because the sister who assists with her care is frequently unhelpful.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more