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Having a hard time about my dads diagnosis.

Blairbear333
Blairbear333 Member Posts: 1 Member
Preface:
(DAD WAS VERY RECENTLY DIAGNOSED & PUT IN A HOME ABRUPTLY SO IM STILL IN SHOCK)

Hey! My name is Blair and I’m 28, I have 4 beautiful boys, ages 1,3,5&7. My dad can’t remember their names or how many I have. I’m having a hard time. He was just out into a home in September. He hates it but it’s for his safety. We had 2 silver alerts one heat stroke from being lost not knowing where he lived. This is so new to me. I’m grieving a man who’s not gone. I’m broken. I miss him and he’s here. I go see him as much as possible. He asks me the same question and I answer them as many times as she wants me to. He’s my daddy….
I’m not so great with talking about how I feel all the time, I get my words mixed up, So I wrote the is poem. I hope somebody can relate. It’s called… “Holding on”

Holding on by Blair Santiago.

“We have lost you but you’re still here.
Your mind is gone but your body near.
Your memories are fussy,
so very unclear.
You feel Love for my kids but can’t remember their names.
You might not know their ages, but you ask to come to their games.
You’re not yourself, the man I’ve always known.
Something’s changed about you, even your tone.
Your head seems to have gone away while your heart is still beating
Time feels like it’s abundant, but deep down I know it’s fleeting.
Losing my dad isn’t something I thought would come so soon.
But bad things happen to everyone, and to that I’m not immune.
I’ve tried to make sense of all this
But I don’t really think that I can.
So I’ll love the shell of a person you use to be and I will hold your hand.
I’ll keep reminding you as many times as you need me to.
Because it’s not your fault that your brain is failing you.
Sometimes you go back to being you, but then…
I just wait… patiently… for the shoe to drop again..
so you might not be all here, but you’re still not gone.
And it’s those tiny pieces of you that keep us holding on.”

Today during our visit,,, he forgot who I was, but it’ll be alright, I know he knows me & I’ll just keep holding on.

Comments

  • harshedbuzz
    harshedbuzz Member Posts: 6,602
    Ninth Anniversary 1,500 Insightfuls Reactions 1,500 Likes 5000 Comments
    Member

    Hi and welcome.

    I am sorry for your reason to be here but pleased you found this place.

    Ambiguous grief is real and complicated. If your dad has Younger Onset Dementia, you may find resources for you at Lorenzo's House.

    HB

  • SDianeL
    SDianeL Member Posts: 3,336
    1,500 Likes 1,000 Insightfuls Reactions 2500 Comments 1,000 Care Reactions
    Member

    Beautiful poem. So sorry about your Dad. Hugs. 💜

  • katiedad1951
    katiedad1951 Member Posts: 4
    First Comment
    Member

    Dad is newly diagnosed too. The forced grieving of your parent who is still here is such a terrible feeling. It keeps me up at night and consumes me 24/7. I worry constantly. Sending love to you

  • rolovan
    rolovan Member Posts: 3
    First Comment
    Member

    Thank you for sharing such a beautiful poem! My mother is 90 and is losing her short term memory steadily. I have been frustrated not knowing what to do and as her only participating child I have a brother who never comes to visit and is only 3 hours away.

    Whats really challenging is that mom and I were never close like you and your father but I am realizing how fleeting and precious life is these days, and working to let the past go.

    I will be more patient and appreciative of the mother God gave me because of your encouraging words and strength

    God bless you!!

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more