First Day of MC
I have finally got my MC facility choice down to the winner. Check in date is in about 10 days or so. I would have been #3 on the waiting list but just was informed that the #1 and #2 families weren’t ready so the room for my DW is available in about a week. For those of you who have your LO in MC, I just want to ask you how day one went for you.
Was it like a drop off and leave or did you stay for a bit and leave while staff redirected your LO. Was the transition easy or difficult for your LO and yourself. I will be going a couple of days earlier to set up the room with pictures and items from our home to make it maybe easier for my DW. I was also asked if I had a problem staying away for a few days while the staff works on getting my DW used to her new surroundings. I don’t have a problem with that. When you do visit has it been better in the morning or afternoon. When you leave each day do you say good bye or just kind of sneak out while staff redirects your LO. This is all so new and stressful for me and I’m working hard on double guessing my decision due to feeling guilty.
Thank you everyone…
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I stayed for a while to visit with the admitting nurse. We went over her care needs, if anyone was barred from visiting, etc. Then I went home.
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@blacksparky There’s no way around the guilt. We can say it all we want that we’re doing it for them, not to them. But if you’re comfortable with your decision and you find that she gets good care and adjusts, then it minimizes your guilt.
So you’re almost there. The first few days are hard on you but you WILL adjust. I’ll relay my experience. Most MC’s have suggestions on how to get them there. I pre-planned drop off day with the staff beforehand and had his room ready as you have planned. I told DH that we were invited to lunch at a new place. When we got there, a couple of the staff gave him big hugs, said it’s so nice to see you, come on in, and I quietly left (and cried and cried in the car as I expected). The head nurse sat with him at lunch and they showed him around a bit. They told me it would be better to stay away for a few days to let him get acclimated, but they called me or I called them for updates every day. I began visiting about day five I think. He was happy to see me and we had a nice visit. I tended to visit after lunch because it seems that the staff were busier in the mornings getting everyone set off the day, giving showers, etc. I did visit a few times in the morning but afternoons seemed to work better. I would usually stay until they were getting them settled for dinner, and once the staff began directing him to his seat, I would sneak out. When I was around it was too distracting and he wouldn’t sit at the table. A couple of times I said I had to go to an appointment but I’ll be back tomorrow and that worked ok too. They told me he was always on when I left, not asking about me.
Once you get through those first few weeks and you’re adjusting, and she’s adjusting, things get much less stressful for you both.Keep us posted. You’re doing the right thing!
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Setting the room up in advance is a great idea. When you visit just depends on your wife. If they are having trouble getting her to participate in activities, it might be good to go during that time so you can encourage her to go and maybe join her and help her feel more comfortable with it. If she participates willingly you might want to plan your visits so they don’t interfere with these activities. If she is not eating enough, it might be good to eat a meal with her so she can get some extra encouragement, or occasionally bring a favorite meal in for her. My mom is not a morning person, so I never visit in the morning. You might find she naps most days at a specific time, obviously you want to work around that. With a little trial and error you will find a routine that works for both of you. The facility probably has some kind of activity calendar you can ask for. My mom was very angry about the move, so there was no sticking around for a nice visit after.
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I found the second guessing and guilt in the days before placement to be the worst. On the big day I brought my DH to the MC for lunch. I said we were meeting someone. Once inside, the staff took him to a table with other residents and I snuck out. An Irish exit. I stayed away for 5 days and when I did visit my DH was fine.
I now visit him midday because it gives the staff enough time to give him breakfast, bathe and get dressed. When I leave I say I have to go to the dentist or babysit. Sometimes I just leave.
You are doing the right thing for both of you. Just be patient with the changes. You and your DW will both be fine!
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It is really hard to say. In our case I told my wife she was going to rehab. She was just getting out of rehab from a stroke, so it was an easy transition. I went in and helped her get settled and then told her I was leaving but would be back and then went back the next day. Time is different in dementia land, my wife has been there for over two years and thinks it has been a couple of weeks. I don't think there is a right way, all you can do is judge based on what you know at the time and what you know about her. It is all so hard. Trust your judgment and you will be wrong sometimes but she won't remember and we learn and move forward. Maybe not forward but we keep going.
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I also dropped my DH off for lunch. Stayed away 2 weeks. They let him call me every evening. The transition was smooth. I visited at lunch time. Stayed a couple of hours. Slipped out without saying goodbye. Told the nurse I was leaving. She would take him ice cream to distract him. When he asked to go home, I said when the doctor said so. He accepted that.
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I placed my DW three years ago, she has since passed away. Everyone's experience seems to vary quite a bit but this was our experience.
I did not involve her in any planning or even tell her about placement until we were at the MCF on placement day, and even then I said as little as possible. I was certain my DW would revolt and insist on going home and be furious with me for planning to "put her away". She did none of that, she just accepted it without question and I realized she was further along than I had accepted.
From the moment she got there the staff was great at distracting her, but they hardly needed to. On placement day the MCF arranged a separate lunch for my DW, my daughter, myself, and the director. Then the director in a very kind manner, took her off to an activity. DW went without looking back (which brought me to tears). The director was fine with my starting visits right away.
She never, not once mentioned home, or questioned where she was or why she was there. For the first few months I visited every day, from the first day, beginning for about two hours, and after a while about an hour seemed good. I originally went about an hour before lunch or dinner so that starting the meal gave me an excuse to leave. Although eventually she needed hand feeding and I would stay and do that for her. When it was time to go I always just told her I was stepping out and would be back "soon". She was fine with that and paid little attention to my leaving. I didn't go during the many activities they had as I wanted her to participate in them while she still could.
After a few months I started going ever other day, every day was too hard for me. Then I settled on three days a week until near the end when I sat by her bedside almost continuously for many weeks until her passing.
I also have to note that she was always agitated and anxious at home, probably frustrated by a fractured familiarity of home and without the ability to understand her old routine there. Once she was at the MCF she immediately became more relaxed and seemed to enjoy the social stimulation. Perhaps she was free of the confusing vague memories that our home evoked.
I wish you the best of luck with the placement.
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I’m getting close but not quite where you are yet. If you don’t mind me asking, how did you decide on ‘the one’? Was it boxes that were checked or was it more of a feeling? It is such a stressful and exhausting time. Try not to feel guilty. I don’t think that any of our LO would want us to go through this. You’re doing what is best for both of you. I hope that the transition is an easy one for you and your DW.
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My DW is on Medi-Cal and part of the PACE program which is there to keep a LO at home as long as possible. What I found out was that when the person can’t stay home any longer, the program will help them transition to a MC facility. The program here has several facilities that they have approved for placement. I visited them all and chose the facility that I really liked. It was both from my gut feeling and the answers I had from the MC facilities. When walking through the facility that I chose, the residents looked happy, the staff came up to me and welcomed me, the place was clean and it just felt like the right fit. Also this one facility had great reviews. The nice thing about picking one of the facilities that were approved, was that all I have to pay is the room and board as the PACE program will continue to cover all my DW ‘s medical needs and supplies like pull ups, wipes etc. I’m hoping to get her moved in the next couple of weeks. It happened faster than I had planned. We were #3 on the waiting list but both families ahead of us weren’t ready so we shot up to #1. I’m not looking forward to the DAY that my LO enters the MC phase of this disease.
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I had set up the room in advance. On move-in day, a friend took him there for lunch to "check out the place." Then quietly left when staff took DH to the activity room. I didn't visit for a long while though. I was told he asked how long he needs to stay there, and on a later day asked whether he's going to die there. Over time, however, he acclimated well to the place.
I was relieved when he was dropped off smoothly, and staff confirmed he went to bed fine. For the first time in a long time I was able to have a good night's sleep myself. Guilt didn't hit me until I visited and saw conditions of the other residents in memory care…so sad. I get depressed every time I visit, seeing how a life marches to its end, a slow march in an almost empty shell for many of them. Is this it? Is this how life ends for people afflicted with this dreadful disease? I know I shouldn't be thinking like this, but I just can't shake off the sadness.
Best of luck for a smooth placement/transition for your LO.
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Another question just popped in my mind. After your LO got adjusted to the new living arrangements, did you ever take them out for a ride or dinner or haircuts? If so how long did you wait to do it?
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Three weeks after placement I started taking my dh out for lunch and to walk around somewhere (a trail or mall) as an outing. I was able to keep that up for almost two years.
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To add to Blacksparky’s experience, I toured 6 facilities and while some were newer and fancier, I chose one that had a homey feel to it and had a beautiful outside area with walking paths, trees, gazebo, etc. that residents could access on their own. For my DH, that was perfect as he always wanted to be walking. The activities were lacking, however I was quite sure he would not be too keen on participating in those. So it depends where you think your LO would be happier. One facility had a fantastic activity schedule with outings, etc. Talk to staff, talk to other family members also if the MC will provide some references - or talk to people in the parking lot coming to visit.
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Well this is my last night spending it with my DW. Tomorrow I will be checking DW into her MC facility. I went earlier today to set up her room. I have never in my life had this much heart break. I look at Pamella and just see us living a good life together both healthy, but then reality kicks me in the butt. All I want to do is cuddle with her but she wants nothing to do with that. I think I need the cuddle more than she does. How do I get over this heart break, not to mention the guilt I’m feeling for deserting her. I know I’m not deserting her and I’m doing what is best for her. I’m sure I will fill a pail with my tears tomorrow. I guess my life going forward will be alone even though I have felt alone at home but I at least got to see her. Maybe it’s just a different life being her husband again instead of her 24/7 caregiver for the past 4 years. I just love this group as you all know what each of us are going through.
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Oh what a lovely cozy room - those stuffed animals are so cute- hedge hogs!!
You're correct you aren't deserting her - you are getting her 24 hr attentive care while taking care of her most important person-you.
Yes it will be a different life for you but I found the feeling changed from being tired & worried 24/7 ["what's that noise?" "did I order a replacement for….?"] to more just caring about how they are doing.
Will be sending you both good thoughts today.3 -
@blacksparky Thinking of you today.
My dad became much more reciprocally affectionate with mom once someone else was providing the hands-on care and she could just be the doting wife. I wish that for you.
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You did a terrific job setting up Pamella’s room, @blacksparky ! I got teary eyed just seeing how much care you put into all the details.
Take what @Victoriaredux and @harshedbuzz said about the new role you will take on. You are Pamella’s best advocate to make sure she is safe and well cared for. Get to know the healthcare team and hopefully they will quickly warm up to you and DW.
God bless you and Pamella. Sending you a big hug. 💝1 -
You’ve done such a nice job with her room. I think that on some level she’ll know how much she is loved and cared for. Big hugs to you today and in the days ahead.
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Pamella’s room looks so cozy and welcoming. You’ve done a great job with preparing it and in taking this step in her care. Sending HUGS and hoping all goes well today.
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Sweet room. Give your brain, heart and body a rest . Hugs to you both
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What a beautiful room. You have done so much for her. My eyes leak as I just did this for my best friend/SIL last week. Time for us to heal. Hugs for making her safe and in a great place of care.
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Today was the drop off date for Pamella. We got there at 9:00am and I told (fib) Pamella that we were at the doctors. When the staff came out to get her I just said I had to park the car and she went in with the staff, no problem. We’re about 20 miles away from the MC facility so I just cried buckets of tears all the way home. When I got home I just tried to keep myself busy and not think about this morning. I just called the MC facility and asked them how she was doing so far today and they said she was happy and mingling with the other residents. This news made me very happy and I will hopefully get a good nights sleep. I think it is harder for the 24/7 caregiver during this transition, at least it is for me.
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I have followed your posts for a long time. You are a good husband, and you did a great job caring for her for a long time. God bless you, sir.
My hope for myself is to be able to keep caring for my DH until he gets to that point that he no longer knows who I am or where he is, and at that point I think he could comfortably transition into MC and not feel abandoned. This is what I hope.2 -
You will still be her advocate, making sure she is getting good care and seeing to her needs. Try to catch up your sleep, get your brain working again by making a list of what needs done at home, etc.2
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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