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New Here & Just Trying To Keep Up
I’ve been feeling really overwhelmed and alone, and I’m so thankful to have found this group. I’m 29 and live in Georgia. My mom is 65, lives alone in Florida, and was recently diagnosed with Alzheimer’s. My parents are divorced, and my sister isn’t able to help due to her own challenges. My mom’s brother offered support…
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How to talk to Parent about moving to Independent Living when they don't want to leave their home
Any advice on how to talk to parent with mild dementia who does not want to move out of their house into a care facility? For reference, my mom got diagnosed last Fall and is now having issues with remembering to take her medicine and eat, also can't keep track of days and is forgetting how to use her oven. My sister and I…
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My first post - coping as a young person in a family with a history of alzheimers
Hello, I am a 24 year old woman who helps to care for my grandmother who has alzheimers. I live about 3 hours from her, my mom and grandpa are her primary care givers. I make trips to visit about once a month. I have joined this forum in hopes of finding folks to talk to about my experience as a young person who has…
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New to group - brother closing in on his dx
It’s been a tough few weeks as I’ve watch my 64 yr old brother (I’m 62) get the dx work up for Alzheimer’s. He had a neuro consult today to review blood and he’s definitely starting treatment for Alzheimer’s asap. He’s like a twin to me and I’ve just felt so sad all day. I haven’t had this sense of grief since our dad…
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When Does Long-Distance Caregiving Stop Working?
Hello. I already posted this in a group discussion, but figured this section gets more traffic. I was wondering—when does long distance caregiving stop working? I understand that at some point my grandmother won't be able to navigate technology/understand how things like FaceTime work, but I don't really know when that…
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Almost died
Good evening, A little over a week ago, on Jan. 9th, my Dad (pwd) went to the ER from memory care after a fall (complaint of head and hip pain). He had had pneumonia in Dec. and still had a bad cough. Turns out he had bronchitis and pneumonia again, and he was put on antibiotics. The CT scan done on his head didn't show…
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Put Mom in MC - Feeling Guilty
Yesterday I pur my 89 year old Mother in MC. I am feeling so guilty, like I failed her. I got her there under the guise of meeting a friend, then I just left her. I had ask the staff while preparing her room about leaving phones and tablets for her, they said leave it. Last evening my mom start posting things on Facebook…
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I didn't plan for this:
I am a fairly good planner. I was a project manager, so I know planning for things that can go wrong is wise. I have not planned for the case where I die before my DW. We have wills, POAs, and family members assigned to take over health care and financial matters. However, I have not planned for someone to take over the…
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New here. Mom with relatively early dementia
I live a long way from my mom, a 4 day drive. She is relatively early in things. Her PCP never actually told her when she wrote dementia on her problem list a few years ago. Recently I went to ophthalmologist’s appointment with her and asked “she has Alzheimer’s, so you should add that to her problem list”. My mom said “I…
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Is Sundowning Real?
My grandmother has early stage Alzheimer's. I live a few hours away from her, but whenever I'm on the phone at night she seems much worse. I read an article about sundowning, which apparently is some sort of disorientation thing where after the sun sets, the patient becomes much more confused. Is it real? Can't tell if…
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New to this and seeking guidance
I’m new to this whole world and the challenges it presents! Mom is showing many signs of Dementia/Alz and in the process of additional health tests. No official diagnosis, no cognitive testing. Limited healthcare in the area and PCP is generalist. We are trying to get her to Geriatric Dr in a few months tho haven’t brought…
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long distance - Mom refuses to be evaluated & Dad isn't taking action
My parents live in a different city, and we are deeply concerned about my mom’s health. She is 78 and has been showing signs of memory loss for the last couple of years, which are progressively worsening. She refuses to acknowledge the issue, won’t allow herself to be formally diagnosed, and has made my dad promise not to…
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Moving LO to a condo
Both my parents have dementia/AD. They both are in the moderate stage and they can no longer live in their house far from any family. My siblings want to buy a condo with my parent’s funds, move them to it and get them 24/7 care. They think my parents will easily adjust. I’m not convinced this is the right solution. I’m…
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I’m new to this forum, and to Alzheimer’s.
My question is, have any of you seen Alzheimer’s symptoms (in particular, alertness) improve? My relative is apparently in mid-late stages and I haven’t seen this person for almost a year. She has recently been assigned a new caregiver and I just learned she is doing so well she was taken off hospice after being on it for…
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New person, first post - Trying to be the rock
To say I'm frustrated would be an understatement - my dad was finally diagnosed with dementia/alzheimers along with anxiety, depression, and OCD/fixation. We could sort of see signs of something not being quite right with him a year or so ago and I had to push my mom to get testing done. The first specialist they were…
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It Begins
After my fathers inital diagnosis little while ago without a tear; today it hit me hard. A distant friend that my parents visited (with prior warning of the situation), spoke of how different my dad was generally and how in ~5yrs since last seeing both my parents the changes in my dad. Denial - for the longest time we've…
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Father in law early stages , and visiting him soon
Hi everyone! So glad I found this website right now. What a relief wow. Story goes , my husband went to visit his parents in a different state last week. When he arrived, his brother pulled him aside and told him there father is starting to forget things, ask where he is, fighting with his wife and more. Side note : My…
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Anosognosia - Mom refuses help
I am the only living child and live on the other side of the country. Mom (89) has lived on her own for about 5 years since my dad passed away. During that time i have been paying her bills and doing as much as i can from across the country. I first noticed my mom starting to experience memory lapses about 20 months ago.…
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How to redirect on a phone call
I posted this in general, but then saw the option for "long distance care", so reposted it here: My mom is in a memory care facility 3 hours away from me. Often, we have very pleasant conversations over the phone. Recently, she has been saying she is trying to call her mom/dad to pick her up and take her home (they have…
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new to this forum
Hi! I just discovered this forum and wanted to introduce myself. I live in Maryland and coordinate care for my mother who lives in Florida. I spend one week each month (for the last 14 months) in her home. She has 24 hour care by 4 amazing caregivers. I have constant questions about optimal care and how I can help. No…
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New to this forum and wanting advice
Hi all. My dad has has been suffering from Parkinson’s Dementia about 5 years now. From my understanding (and anyone can correct me if you have better knowledge than me) it is a little bit different from regular Dementia in the sense that it won’t cause him to pass but his mind has deteriorated in much the same way. Over…
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Anyone have experience with BOTH parents at once?
My folks are 83 and 80, living together in their home. Dad was formally dx'd in 2022, after periodic hallucinations that there were 3 versions of my mother; he also had some aphasia but was sharp in other ways. Neurologist prescribed Aricept and it has helped a little. Mom has had mild cognitive decline for years, but it…
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Stuck with what to do
This is my first post ever, on any forum whatsoever! The process of trying to care for and protect my parents (one with Alz and the other with vascular dementia- both in total denial) has opened me up to all kinds of new and unpleasant experiences. At least this one feels positive. I don’t know where to go from here- my…
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Mom is constantly angry with my sister
My Mom was diagnosed with Alzheimers in the fall of 2022. She is understandably having a very hard time with the loss of her financial independence and is constantly accusing my sister of controlling her. We have POA and I tell her we're making the decisions together, but her anger is focused on my sister, who is the…
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Trying to Help my Mother with Memory Loss
Hello all, This is my first post. I am an only child and my parents live a 7 hour car drive away. Last year, I noticed that my mother was experiencing memory loss, but my father is in denial. Last May, I went up to visit and got her to see a neurologist. Her memory loss has gotten worse. She can't remember how many days…
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Suspected Alzheimer’s/dementia
My mom is 57. She is forgetting the answers to questions five minutes after they’re answered and forgetting what store we bought something at when we were there the day before. She didn’t remember making a decision about travel plans until I reminded her of the decision and told her why. She feels like it’s nothing. I’m…