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Being trans and caring for someone with Alzheimer's
Hey all, I am new here and looking for some type of support, but am unsure if this is the right place? I am a transgender person early-ish in my transition and my grandmother/best friend has been diagnosed with alzheimer's for around 2 years now. As my transition has progressed, so have her symptoms. Some of my family has…
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Coping with a father with dementia in my 20s
At the behest of my therapist, I am looking for the support of others going through similar circumstances as I am. I feel incredibly alone in my slow grieving process for my father, who is 68, and has been dealing with EO dementia for the last two years. I feel completely out of my depth as a 28 year old person without the…
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cross-post: looking to trade visits with someone in Nashville who's parent is in San Fran Bay
hi there this is my first post and I’m so grateful to be here and for this community. My dad has recently been diagnosed with mild cognitive decline though once he quit drinking, I’m hoping he gets that diagnosis revisited. I’m exploring alternatives to the horrific options that I see in terms of forcing him into memory…
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Grandmothers recent diagnosis - guidance
Hi everyone! My grandmother, and very best friend, was formally diagnosed with Alzheimer’s yesterday. We knew this was coming, as her mother had it and she began showing signs about a year ago. However, I feel so completely lost and heartbroken. I was hoping for a bit of guidance on how to handle the utter darkness I feel.…
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Young caregiver
Hi, I am a 25 year old young caregiver. For almost 4 years now, I have been the sole caregiver of my 58-year-old mother suffering from early Alzheimer's, since my father passed away in 2020 due to the pandemic. I am Italian, but given my mother's condition we moved to China, her homeland, to take better care of her. I…
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Grieving my dad
Hello everyone, I'm new here and I hope it's ok for me to post here even though I'm not a caregiver. I'm 24. My dad was diagnosed with frontotemporal dementia almost 6 years ago, during the summer between my freshman and sophomore years of college. My parents are both in their early 60s and my mom is my dad's primary…
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Father on a fixed income
My dad is located in CA and is living on a small fixed income (less than $2,000 a month). He has zero savings and I am not in a position to help fiscally or in a position to have him live with me. Trying to find any additional help has been impossible. Does anyone know of organizations that help. He is currently in a…
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Questions to be asking
I currently live out of state from my LO. They were recently diagnosed with EOA and from my research I believe that they are in early stage. I call every few days to check in on them. What are some questions that I might want to ask that can help me know how they are progressing through EOA? I know there are limitations…
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About to take over paying daily bills - any advice?
My FIL has Alzheimer's and in the past six months has become increasing unreliable in paying bills. Thankfully, my wife has financial power of attorney - its not the help it claims to be but its something. Anyway, we need to step in but want to find a way to maintain trust. My wife spoke to him about putting bills on…
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Any Online Support Groups
Hello. I am the primary person in charge of my mom’s care (long distance). She’s in a nursing home. I live out of the country and am wondering if there are any online support groups for those who provide lingo-distance care.
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Just starting at assisted living
My brother and I finally moved our mom into an assisted living facility in his town where he's able to visit often. It was not an easy move and it wasn't something she wanted to do, but it needed to happen. At first, she called me every day once or twice (or more). Then, suddenly she stopped calling. I know the transition…
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Need to Move Mom from AL to MC
I moved Mom into AL in January after MUCH convincing and lies that it would only be for a few weeks. She went downhill when she arrived, had behavioral issues and was placed on an involuntary psych hold due to comments and behaviors she was exhibiting. Her medications were adjusted and she is now settling in, but due to…
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Trying to convince a parent to move closer to her children
I have experience with a parent who denies that her memory problems are serious enough for her to need care. My siblings and I are trying to be as patient and supportive as we can; our mom lives with a friend who is aging, and her friend wants her to move out. However, she won't tell my mom that, and mom really doesn't…
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Wrong care facility??
My LO has always been overly sensitive and that seems to be getting worse as the disease progresses. She can't hear so the caregivers speak loudly. (She tells me that they yell at her all of the time) She's not always cognitively aware so the caregivers speak loudly to try to guide her. (She tells me that they yell at her…
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Long Distance caregiver soon temporary in-person/primary - advice?
Hello all! My mom (79) has moderate Alzheimer's. I live in another state with my husband and kids, but I will be in the role of fulltime caregiver temporarily in a couple weeks, because my Dad has to have a triple bypass and valve replacement. Mom can carry on conversations, but won't remember them - gets lost, needs help…
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Searching for a at home caregiver (6 hrs a week) for Denver
Hi-My mother has early ALZ and is presently being taking care of my by my competent brother and father, but they need support! I am a long-distance helper trying to find a great caregiver to come support 3-6 hrs a week but having trouble navigating the millions of options and would love a referral. Does anyone have someone…
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Venting
It's been 4 months since my mom moved here to my neck of the woods. She moved away from her home of 40 years, her things, her friends, the sunshine, warmth and the ocean. She was worried that when the time came, when dementia was in full swing and she was stuck in SC, she would be all alone. Yet, she's so very unhappy…
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Convincing LO to Move
New here and need help... 4 months ago, I came to my parent's house out of state thinking I was going to support my parents for a few weeks, working remotely, for my mom's knee replacement surgery. Long story short, I have been back home for 56 hours because my mother fell and fractured 4 ribs, contracted asymptomatic…
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Struggling with a solution
Hello everyone! My name is Michael. I live in South Carolina about 4 hours away from my parents. My mother has dementia and her cognitive decline has been rapid over the past few months. My father has health problems and hearing issues, but is able to take care of himself. However, my mother requires a lot of monitoring.…
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How to hold a conversation with a relative who has dementia?
I have a relative who was first diagnosed with dementia a few years ago and over the last few years I have noticed it is becoming increasingly difficult to maintain a two way conversations with her. I feel awkward about asking too many questions as I don't want to make her feel uncomfortable and she is quick to hang up the…
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Sister with dementia
My sister is 67 y/o and lives about 100 miles from me. My mother recently passed and I have been dealing with her ALZ the past few years. Although I have other siblings, it falls heavily on my shoulders. My sister lives alone in a smaller town. Her husband died in Jan 2022. Her son lives in San Antonio and actually has…
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New to mothers ALZ
Hello - I'm Erik and I have been holding so much emotion inside since my mom's formal diagnosis of ALZ. My family lived a very tumultuous life as a child leading to my parents always living a part. My mom went onto 3 ex-husbands in search of love, while raising 3 boys on her own. She found her prince of 20 years who is a…
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Nursing Support for Hospital Visits
Hi All! I'm new to this group. My sister has dementia we believe due to vascular system issues. She lives in a Memory Care facility. Recently, she's had some health issues with declined responsiveness. The facility sends her to the ER via ambulance. The issue is I'm in FL and she is in MO. It frightens me that she is going…
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Guilt of supporting from afar while other family members moved in
Hello, Grateful to find this community! Like me, I'm sorry we need to be here, but I'm relieved we can all lean on each other a bit. I live hours away from my Mom. We received results today from her neurologist about her brain health and he is of the opinion she has the early signs of Alzheimer's. We aren't surprised, but…
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How to handle difficult father who is caregiver to my mom with end stage dementia
Hey all, My mom with advanced alzheimers is still living at home with my father who is a psychiatrist, very conservative Christian, and strongly wanting to keep my mother at home as long as possible. My brother died last year so it is just my sister and I trying to support while being states away. We offered for years…
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Trying to help from out of state and feel like I'm drowning.
First of all, I'm very relieved to have found this resource. I have so many questions and worries, and many sleepless nights over the last couple weeks. I have a stepmother who was diagnosed with early stage Alzheimer's awhile back, so I think it's likely progressed since then (probably stage 4 now if I had to guess). I…
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How to Cope with Guilt
Background - I am a remote caregiver. I live short plane ride away but on a different island than my parents. My mom was diagnosed with vascular dementia in 2016 (7 years) ago and she is in stage 6. She lives with my dad and they're both in their 80's. I am married with two kids. I have my onw business and volunteer on two…
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Help finding a doctor for my mother
Hello. This is my first time on this forum. I am a daughter starting to support my mother who is showing signs of cognitive loss. I live out of state from her and need advice on how to find a good medical provider for her to see to get a diagnosis and start treatments.