Self-Care
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Self-Care
Discussion List
- My wife is in the mid to later stages of AZ and is struggling to communicate, she sits quietly most of the time. In addition to AZ she has a genetic eye defect that is incurable, she is legally blind …
- Hi everyone, I have posted a few times here before and this forum has been so helpful. My dad (77, mid stage 5) moved to memory care in September. He has adjusted really well. He doesn't remember home…
- I took FMLA for a year to assist with the new diagnosis of Alzheimers for my mom. It was intermittent FMLA so while I still worked, I was able to take off for appointments, my own mental health, and d…
- My dad was diagnosed with Alzheimer’s the Monday after Thanksgiving in 2022. Luckily, it has been progressing very slowly. He lives with my mother and is watched by her full time. On Monday, my mom wa…
- I'm helping to care for a parent (ALZ) with my sister. Mom even lives in a retirement community (still independent living) so day to day I do have my own life. It is still so hard. I went to visit for…
- BE STRONG AND COURAGEOUS! Joshua 1:9 New International Version 9 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you whe…
- This is my first post! This year has been very hard for me. I moved in with my parents in February, got them well enough to move to AL in April. My mom never fully recovered from the shock of moving a…
- Our father has been going for extended periods without showering or changing his clothes (40 days at a time), which has led to skin lesions. He has incontinence-related issues too. These challenges ca…
- Our father has been going for extended periods (40 days at a time) without showering or changing his clothes, which has led to skin lesions. He also has incontinence issues on top of it. We are limite…
- if you’re in Delaware, southeastern Pennsylvania, eastern Maryland, or south Jersey, I’m hosting a dementia caregiver meeting on behalf of the AFTD. It’s on Saturday, October 26 at 10:30 in Middletown…
- I’m hosting Meet and Greet on behalf of the Association for Frontotemporal Degeneration in Middletown, DE on Saturday, October 26. I’ll post again as we get closer but save the date if you live in the…
- Gifted link for 30 days below. Article states that GLP-1 receptor agonists like Ozempic may reduce inflammation, which can provide other benefits beyond weight loss, and that "There’s also increasing …
- I am new here. My DM was diagnosed with Alzheimer’s 3 years ago but is in denial. He is slowly getting worse and I think he is in stage 3-4. I have two issues: 1. He is now talking to pictures of fami…
- :/ Is there any information on support groups for the spouses or partners or the caregivers or info on what it can do to a relationship or marriage? Any information is greatly appreciated!
- My Mom has been in memory care almost a year now. It will be a year the first week of September. She was in AL at the same facility for about six weeks before they insisted she be moved to MC. She was…
- Hi all, I am a young nearly 67 yr old female. Last week I was diagnosed with dementia. Both of my parents passed from the diseasse -my mom at age 84 passed December of last year and my dad passed one …
- So, hello, I'm new here. I've been feeling very isolated, alone, confused, frustrated. My mom is a drinker. She got a dwi in January. She's almost 75. She's almost died. She was almost 3 times the leg…
- I need to figure out where to start. I’ve got to have some extended “me” time. He drives me crazy with repeated questions, IPhone issues, wet pants, confusion, deliriums, pacing, rubbing his hands, ru…
- My great grandmother passed away due to dementia. Since she was very old, we didn't take her symptoms seriously, which I believe prevented us from detecting dementia early. Looking back, early diagnos…
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- Every morning we listen to music, usually the Beatles or Elton John stations on Amazon Music. We sing along and sometimes "kitchen dance." Today, while singing along to Bohemian Rhapsody he came up wi…
- So, I’m moving back home to help out. I’m an only child and my dad is having trouble taking care of my mom on his own. She fell at the beginning of this year and broke her foot and her shoulder. I end…
- I have a habit of minimizing or stuffing down feelings and emotions. My therapist has given me the assignment of telling someone about something I am struggling with. Not to look for a solution but as…
Quick Links
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
Looking for information and support for Alzheimer's disease or other dementias? Click here to view our Dementia Resources