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New to forum just diagnosed with Amnestic MCI due to Alzheimers

Jack16
Jack16 Member Posts: 5
First Comment
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After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood work for Alzheimer’s bio markers (strongly positve for tau and amyloid) and now 2 positive Pet Scans

I started Kisunla last week. I am baffled by my symptoms, which a few months ago were very prevalent, but now seem to have subsided to the point where I am wondering if I have been misdiagnosed. My doctors say I have not been, and all along have thought I am positive, but I struggle to believe I am positive as symptoms have subsided.

My neurologist tells me that I have developed “coping mechanisms” and have “reserve cognition “ due to my education level, mind stimulation, socialization and physical activity amongst other things. All of this is new to me and I am frightened but also in disbelief.
Has anyone else experienced sporadic episodes? I would like to hear from others experiencing denial and or symptoms that fluctuate.

Comments

  • Watson1
    Watson1 Member Posts: 22
    10 Comments 5 Likes First Anniversary
    Member

    hi jack i have ad you may be at this this time mild c i so your symptoms are bound to fluctuate. the brain is funny . they say you can't forget something until the thought is completed. what if you complete the thought and its just plain gone.did you have the thought or not that's the problem with alzheimers. you are in a new gray land. i can make myself a cup coffee take it to the dinning room do somtingelse for a millisecond and oh isn't that wonderful i already did just make my coffee and if you weren't paying attention i might have missed the glitch. your keen self-awareness will serve you well.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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