Familial AD

EarlyKimmy

Hi everyone. I am new to this group and am in shock. I recently learned that my father and grandfather both died of EOA. I was adopted so I did not know this history until recently. They both started symptoms in mid 60s and died at 69 and 70. I am devastated, terrified, depressed, lost. I have been reading everything I can on this condition. I don’t yet have a diagnosis or early symptoms (that I am aware of) yet, but I feel like I was just given a terminal diagnosis. I don’t know how to cope with this. I called the Alzheimer’s Association and it was nice to talk to someone knowledgeable. That is how I found my way here.

I want to but am scared to get tested for the genes that cause this disease because I know what that will mean. I am 50 and wonder how much time I actually have left. I have a 3 and 8 year old and can’t believe I might not be there for much of their lives. From what I read, there are 3 genes linked to this type of AD and there is a 50/50 chance of inheritance. I am wondering if anyone else learned of a genetic link to AD before its onset,
did you get genetic testing early?
How do you deal with this? Any recommendations?

My friends/family tell me to stay positive and hope for the best, but a positive attitude is not going to change reality. Thank you for reading and any comments you share.

sparkers

I’m so sorry! I’m in my 50’s and was just diagnosed. My children are all grown, so I can’t imagine how difficult it would be, with young children. Hugs!

My mother and grandmother had it and I do now. I lived it every day for 5 years, while I took care of my mother, in my home. I’m very educated on the matter. I’m so glad I took care of my mom! It was the most difficult and rewarding thing I’ve accomplished. It was harder than raising 3 girls as a single mother! But worth it!

It’s not easy! I understand your grip on reality! I want to encourage you to not loose hope though and to get that test! Knowledge is power!

I’m going to share the story of my grandmother. Diagnosed in her 50’s with mild cognitive impairment. She enrolled in college. She did the crossword and sudoku in the paper, everyday. She walked daily, unless weather prevented it. She volunteered at nursing homes, teaching ceramics. She took us with her and made us help. The best life lessons! She lived independently into her 70’s. She lived into her 80’s!

She is my example!

Not everyone gets it, even if their parent and grandparent had it. My mom has two brothers in their 70’s and they don’t have it. So, just challenge your mind, exercise, get on a low inflammation diet, cut out those bad oils and cut down on sweets…and enjoys life with those children and your family! And, don’t be afraid to get those test, knowing is power to start doing something about it. You got this!