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Emotionally draining
For the last 4.5 years I’ve tried convincing my mom to see a doctor because I was concerned. She is unable to see her symptoms. It took behind the scenes convincing my stepdad that she was a getting worse for over a year and him finally noticing to get us to the point that we had an appointment with a geriatric doctor this…
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New and looking for resources
Hi. I just joined this group today, I'm not sure if I'm the intended demographic as I'm not the primary caregiver for my loved ones with Alzheimer's and dementia but I have been struggling with the grief and looking for support. If anyone knows a better group please let me know! My grandfather has late stage Alzheimer's…
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Navigating Long Distance
Good evening. I am new to this site; just searched for Alzheimer's support groups and this showed up. A little (moderately long) background: My mother is in a memory care facility in Washington state. My sister holds ALL of my mother's powers of attorney. My sister and I have been estranged for more than 15 years. For…
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Questions About Deceased Mother
My Mom, who has Alzheimer's, asks about her deceased mother a lot. Her mother died over 20 years ago. Some days Mom believes that her mother is alive, and we go along with that belief. More often, Mom knows that her mother is deceased but thinks that it happened more recently, and that no one told her or took her to the…
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Sad, stressed, and need to talk to others
I am new to this site. My significant other (SO), is battling Alzheimer's. I just need to know what I am able to do to make both our lives easier. I feel like I have already lost a lot of the man I married. He has good days and bad days. But, it has taken a toll on us. I am having to do the things he use to do along with…
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Forgot who I was dealing with :(
Just a vent… I made the tragic error today of forgetting that my mom is not really the same person anymore, the mom I used to be able to have meaningful talks and heart-to-hearts with. … We were having such a nice visit today. I took her my old baby book and we had such a fun time reading it together. Things took a turn…
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one of those self critical days
Hello dear community, I am having one of those days when I question my decisions and see faults and what's lacking. I know that's silly because over these 2+ years I've done several things that needed doing to keep dad safe. Ugh. The reality, though, is that even when I remind myself of the positives I still feel critical.…
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I Need Help
Hello! My name is Aaliyah. I am 23. I was adopted by my grandparents when I was 2 months old. They've raised me without any help from my biological parents. In 2016, my freshmen year of highschool, I lost my grandfather to Alzheimer's. I took it insanely hard. I was one of the only ones he remembered in the end. I had…
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Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
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I lost my mother thirty years ago ...
Right away I found that sharing my story online helped me begin to heal. I started a website in her memory that is still around, although it is in need of updating, and I'm trying to work on that as I have time. It's still here: https://www.zarcrom.com/users/yeartorem/ Also, I will be walking this fall for my 29th year in…
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shaky departure on a low staff day for dad's memory care plus recent "unwitnessed" injuries
Hello all, Dad really wanted to come with me today as I was leaving. He hasn't done that for a while, so I was out of practice. It was also a very low staff day today. For instance, I had to ring the doorbell three times (with long wait periods in between) for someone to come let me in. So I know there's a pretty good…
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Family member's death
My mother has dementia. Her brother died recently (he had Alzheimer's and died of natural causes). My mom is confused and upset by his death and has been believing her brother committed suicide (which is absolutely not true). We are comforting her but does anyone have advice for disabusing her of the suicide notion.
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Witness of My Mother’s Passing
This piece is a witness to my mother’s final days with Alzheimer’s. I wrote it some time ago, but I wasn’t ready to share it until now. For privacy, I’ve changed names and identifying details, including her last name and the town where we lived. This piece includes honest descriptions of the dying process, including…
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Mom struggling to remember my late Dad :(
I was really taken aback today. My father passed away in December. My mom has been heavily grieving him ever since— I know she would look at his picture every day and have a good cry. We moved her from their home into AL near me this past week. Today I had lunch with her, and I was thinking "Wow, she seems really with it…
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My mom is gone, grieving and pissed off (just a vent I guess)
10 years of dementia and the last three were exceedingly difficult and I feel I've been through a meat grinder (I am a different person now). I was the only person in the family (her only daughter) to step up and try to help navigate all of her care needs, as well as the legal and financial situation of my parents (both in…
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Sabotaging everything - Caring for my Great Grandma after losing her daughter, my Grandmother
Hello there. I'm posting because I don't know what else to do, I guess I'm looking for guidance, someone to let me know that I'm not going crazy. My Great Grandma is 101 years old, lives alone in her house she's lived in her entire life. We've tried to get her into assisted living but she refuses and her doctor says at…
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My oldest dearest friend has dementia
My friend since 1980, the person who has stood by me through thick and thin, who has always been there for me, even when I was living far away…had a fall resulting in a brain bleed in October 2025. I had been visiting her one afternoon a week before this happened and even then, I thought there was a slight amount of…
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Leqembi
Hi, Dad went for his first MRI after 1 month of being on Leqembi. The doctor's found internal bleeding and brain swelling. Dad will stop taking infusions. In June the doctors will give him another cat scan to check his brain. If he improves, they will put him back on leqembi. Honestly, I am against him doing this infusion…
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Having a hard time about my dads diagnosis.
Preface: (DAD WAS VERY RECENTLY DIAGNOSED & PUT IN A HOME ABRUPTLY SO IM STILL IN SHOCK) Hey! My name is Blair and I’m 28, I have 4 beautiful boys, ages 1,3,5&7. My dad can’t remember their names or how many I have. I’m having a hard time. He was just out into a home in September. He hates it but it’s for his safety. We…
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When friendship is impacted
I suspect a dear friend of mine has early onset. This person's mother had Alzheimer's and passed away as a result. My friend is in their mid-60s and is dealing with the recent death of a spouse so for the past two or so years I've attributed recent behavior changes (verbal outbursts, mostly) to grief and having to navigate…
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Juggling changes (driving, moving) with grief
My 84-year-old Mom lost her husband of 60 years — my dad — just 2.5 months ago. She is really grieving hard. So we are hesitant to add more unwanted changes to her life just yet. The problem is, we believe she is around Stage 3 or 4…. (Doctor just did MMES and she scored 24 out of 30, which was just below normal but we…
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Loved one spouse just passed
Spouse of the loved one with dementia just passed last week. They are good with day to day activities of course have moments of grief but they keep asking when the funeral is although the funeral Was last week. Then get upset to re-live that and to then upset because they cannot remember the funeral happened. How can we…
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MMES test
Finally got my mom to her doctor, discussed with the doctor first our concerns about her confusion and memory loss, they gave her the MMES test — and she scored a 24 out of 30, which is just below "normal." Our experience with her is that she is much worse than this. She has been struggling for a long time with dates,…
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Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
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Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
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How are you? I'm...here.
Sometime I'll have time To properly mourn When people stop asking What year you were born But my time is your time For however long You need me to turn on You favorite song I wake you up gently We'll do it together I write down the day And the time and the weather I carry your books While you search for your name On the…
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Barely Surviving Everday…
Hi, I am new here. By a grace of God, I was given this website, believe it or not from a woman that was a customer service representative at the Treasury Department. My mom has Alzheimer’s, and I suspected it four years ago and sent the alarm to the family. Nobody believed me, and thought it was natural aging, and…
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Mother to Mother
Hi everyone, My name is Stacey. My mom was diagnosed with Alzheimer’s last year at 64 years old. We saw signs for a few years now looking back, but we always just chalked it up to anxiety symptoms. My mom is my best friend and I am having such a hard time with this diagnosis. Since last year, things have really progressed…
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being prevented from communication
My DW of 45 years has ALZ and is living in an assisted care facility. The oldest daughter has POA. She and an unknown DR have implemented what they call a "NO CONTACT" plan where I am being prevented from any communication with my wife. They say this is for her "well being" and that it is permanent. She is taking 3 or 4…