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Sydney to Hobart Yacht Race
Sailing was what we did, always together, we started sailing joined our 1st Yacht Club in 1971. This is what I wrote on Boxing Day with a very sad heart. The Sydney Hobart Yacht Race All morning he’s said to me. What time is it on, I don’t want to miss it, I must put it on The cricket was going, the time ticked around,…
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Rapid Mental Decline in My 65-Year-Old Mother: Desperate for Diagnosis and Long-Term Care Solutions
Hello, I’m looking for guidance about how to get help for my mother, who has experienced rapid mental deterioration over the past year with a cycle of repeated hospitalizations and psychiatric decompensation at home. The situation is placing an unsustainable level of strain on my mother, father and the rest of our family.…
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New here
Good morning everyone. I finally took the step for myself. Talking to someone else about what is happening in my life right now and them knowing how I feel. It’s hard to tell someone who don’t know this disease to every understand. Hopefully I can remember this tool and utilize it. Well, my name is Mia. I been caring for…
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Rapid Progressive Dementia/Covid19 Related
MY DW passed on 12/06. After a relatively short, but intensely difficult journey. We did not have a confirmed diagnosis, as the tests were all negative and normal for her age. Her health eas rest of a healthy 45 year old, had not had any hospitalizations, rarely sick with a cold. Sometimes allergies. P. She wa sky…
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Falling Apart Caring for my Mom
Hello. I am not doing well. My dad had Alzheimers in the last 7 years of his life, and I cared for him. I thought that was all over when he died in 2017. Then in 2020, it started all over again with my mom. It's been 5 years now, and I'm going absolutely bonkers. My life is falling apart caring for her. Almost everything…
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Feeling Fragile
I feel so sad. My DH of 54 years has VD stage 5 or 6 our partnership over the years has been so strong, we've worked together in our own business, sailed together, flown together, had our children together, and always relied on and supported each other, and now it's just me calling all the shots. I love him dearly and I am…
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What to do? Mum has been diagnosed with Dimentia
Hi, I am based in Australia and my mum and dad are based in India. Mum has been diagnosed with Dimentia and she could not recognise me. Dad and her are now in care home in India, but for me it is very upsetting to accept that she cannot recognise me. My work is getting affected and I am now becoming very sad ☹️. I don’t…
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Burnout
Today I want to rant, I’m tired and exhausted, I really thought I had a handle on all this, I love communicating and writing on this site, it balances me and helps me to understand that I am not alone but today I feel so despondent for the last few days all I want to do is cry. I don’t want this any more 7 years is enough…
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New, Scared and Confused...
I'm obviously a newbie to this site, as well as the amazing and mysterious world of Alzheimer’s. I began seeing a neurologist last summer because of an inability to think as clearly as I once did. Memory didn't seem like much of a problem since as far as I can remember, I always had a bad memory. Other issues that I…
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Feeling Guilty/Stressed
Hi Everyone - first time here. My father had a stroke last March and was diagnosed with Alzheimer's/Dementia....he is around Stage 4-5. I am an only child and we had to move him in with my family....Husband and 2 kids (13 and 11). It's been a little over a year and it's really taking a toll on me. My job is being really…
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Out of ideas
My Mom has been in memory care almost a year now. It will be a year the first week of September. She was in AL at the same facility for about six weeks before they insisted she be moved to MC. She was wandering at night and anxious most of the time. Once in MC, there was a transition phase, but it didn't have anything to…
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Recent dementia diagnosis
Hi all, I am a young nearly 67 yr old female. Last week I was diagnosed with dementia. Both of my parents passed from the diseasse -my mom at age 84 passed December of last year and my dad passed one week to the day of my diagnosis, July 30, 2024. I was my mom's full time caregiver while she lived with me the last 4 years…
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Mom With EOAD Lacks Motivation
Hi, I’m grateful to have come across this resource. Last year, my mother (60 years old at the time) was diagnosed with EOAD. While the diagnosis came as a shock for someone of her age, we were noticing a decline in her cognitive functions, particular with regards to time (not knowing what day it is, showing up to to…
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Electroconvulsive therapy (ECT)
I’ve recently discovered that some patients with dementia may be treated with ECT in the hopes that it will improve symptoms of depression. Does anyone have experience with this that you can share? Here’s just one article I found about it
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New to this forum. Diagnosed over 4 years ago
Not sure if this is the place to introduce myself; but I had Encephalitis twice - from West Nile Virus and Powassan Virus AND Lyme Disease 7 times. Dr. told me the viruses started this ball rolling. I was doing well, dealing with changes in my life, except not driving. I haven't accepted that well. I've been going between…
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Personal Stigma
Why is the stigma associated with mental health, dementia, Alz, etc. so pervasive? It affects all of us, even those afflicted……
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Obsessions
Hey dear people, again, new to this and can't imagine this journey that I'm on and how long it will last without losing my mind... I'm not being disrespectful, it's just where else can I voice my frustrations and worries~ so my DH seems to find a topic (finances, an old worry, etc.) and fret for hours on end, going into…
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What rights do other siblings have that aren’t in charge of guardianship
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How To Balance Life
Hi everyone! Hope you and your LO’s are well. I have been having a lot of problems having a proper “work-life balance” for lack of a better term. My mom’s (60) diagnosis and required care takes up all of my energy, thankfully she’s still able to move around and shower herself and use the bathroom on her own, and those were…
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Flew home and found mom in self neglect
I am the youngest of 7, and my mother’s only girl. I’m the favorite and so I have the best relationship with her. My mom is 74, and I noticed something was wrong last year when she was showing some short term memory loss, not answering her phone, and making excuses to not fly to Colorado to visit her kids. Saying she was…
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Competely overwhelmed and in tears or on the verge of tears ALWAYS
Hi all! I'm new here. My 59 yo DH was diagnosed with early onset alzheimer's and primary progressive aphasia in Sept 2020. He was able to continue working until Dec of 22. He's been home and frustrated and bored and angry since then. He gets so confused and believes things that haven't happened. Sees things and people do…
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Dont want to lose the memory
Hey, good morning! I don't know if I am suffering from Alzheimer's or dementia because I don't see the difference between them, but there are many instances where I forget things and names of people so often. It's difficult for me to finish the work I started. I take things very seriously and feel that I am not worth…
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LO with ALZ
Thirteen years or so ago my Mom started to get angry. She and I worked together; she was the boss and I was one of the employees. My Mom wanted things done a certain way and she also started to exhibit memory issues. Then suddenly one month she got hit by a nasty illness that resulted in her being put in a medically…
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Need advice--meds, good days, bad days, anticipatory grief
Hi, this is long but I don't know that it can be abbreviated. My mom is 86 and has been having symptoms of dementia for the past couple years. I don't know which kind she has because she has not been formally diagnosed by a neurologist. I suspect it is lewy body. Anyway, it has gotten really bad last November after having…
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A life sentence
I feel so god-forsaken. My DH is in stage 6 (I think) and his constant combativeness and total confusion ruin every single waking day. Truth is I don't even like him anymore and we've been married for 50 years. When he was diagnosed the neurologist said "this isn't a death sentence" and I remember thinking "no, it is a…
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Has Your Loved One Ever Had Behavioral/Cognitive Changes from Both UTI & Medicine?
Hello, Recently, my sister, who has Alzheimer's, was started on an anti-seizure medication. Shortly thereafter, she started exhibiting extreme behaviors and the staff at her memory care unit were concerned she had a UTI. I took her to her neurologist who said it was the anti-seizure medication that caused her symptoms and…
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My Mental Health
Hello, my mom is in the final stages of Alzheimer's. I still go see her at the NH and it still is so painful to see such a vibrant woman deteriorate for the past 7 years. I don't know if she knows who I am or who she is at times I say to my self "why go"? It's good when I see her and she is still in bed, her hair is not…
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LO Actively Refuses to Socialize
Hi everyone! I hope you all had very happy holidays, and a happy new year! My mama (diagnosed with early stage Alzheimer's) has always been a social butterfly. However, due to Covid-19 and her diagnosis, has become quite sheltered. I've been told multiple times how socializing is key for a person with Alzheimer's/Dementia…
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Im struggling...
I feel like I'm drowning... I am my dad's caretaker. He has vd. I am grieving my life I left in Texas that I left in Feb. 2022 to take care of my dad in CA. I am having trouble just functioning day to day.
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Caregiving mixed with trauma from parents’ marriage
My parents have been unhappily married for four decades. Essentially, they hate each other, which I view as a foundational trauma of my life—that they remain married I mean. My mother has what seems to be stage 6 dementia and right now, by necessity, my father is the primary caretaker. He’s worked hard at being patient and…