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Mom lives in Independent Living Fac, needs to move to AL, hard 'No!'

davidsp8
davidsp8 Member Posts: 3
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edited August 16 in Caring for a Parent

I am new to this forum. I have found many discussions relevant to my situation. I received a lot of good information from these discussions, but I figured I'd post my question on the off chance some more information may come to light.

I currently care for my Mother with the help of my wife. My mom moved from out of state to live closer to me and my family 4 years ago when she was 79. When she moved here we noticed some minor cognitive issues, but nothing that kept her from her daily routines. We moved her into an Independent Living Facility several miles from our house. She has other medical issues like Congestive Heart Failure, COPD, high cholesterol, rheumatoid arthritis and problems walking from foot reconstructions. She was managing her meds and day to day life 4 years ago. I took over her medical schedule and we take her to all of her doctors appointments. I also would make sure her prescriptions would get filled. Not long after her move, she made me the trustee of her accounts, etc.

Fast forward to last year, she started having issues with her medications. We'd notice she wasn't taking them correctly. So I "took over" her medications by packaging them up in daily pods for an entire month. This worked for a while, but then she'd start taking two days or she'd skip a day. Eventually this led to several hospitalizations because she'd have fluid on her lungs from not being consistent when her meds. So I then started managing her medications on daily basis. Essentially I'd visit her daily and make sure she would take her meds correctly.

Finally this Feb things came to a head because she started having panic attacks complaining "I can't breathe". When they started we'd call an ambulance. But after a couple trips we realized that the panic attacks could be managed by just talking to her and having her take deep breaths. These panic attacks would be intermingled with what I would call dementia attacks. Where mom would just be meaner. Some times she'd threaten to "jump off the balcony" or just be mad at me for no apparent reason. This went on for months, while we tried get help from her PCP, Cardiologist and Pulmonologist. We'd spend the night with her to help her manage the panic attacks. During this time we tried to hire a caregiver and mom ended up kicking her out, because she "didn't need a baby sitter". Also during this time we started looking at ALF, because we were at our wits end. We found one and got added to a waiting list.

At last we were able to get her on some medications to help manage the anxiety and the panic attacks stopped. But all the while we noticed that her cognitive issues were getting increasingly worse.

We took her to a geriatric specialist at our local center for success in aging. She was diagnosed with late onset ALZ, stage 5. The doctor theorized that the panic attacks were a result of her not being able to handle the cognitive loss and they suggested moving her to a ALF.

Trying to convince my mom that she needs to move has proved harder than I expected. The ALF we found earlier sent some people over to give her an assessment. Mom insisted before, during and after that she does not need to move. And the more I tried to explain it, the more she resisted. She literally got up and left the room during the assessment, causing it to end.

We then arranged for a tour of the facility so mom could see it, in hopes it would help to convince her that it'd be a good place for her. Unfortunately, that just made her mad and she refuses to move. She says "She'd rather die" among many other non-viable solutions. She also says “people are sleeping in the halls there”, which they are not. So the ALF moved on to the next person on the waitlist because mom is obviously not ready.

Since the she has essentially “hunkered down". She frequently won't come out of her room. Stays in bed all day. She now wants me to give her her bank statement. Which I had stopped having this mailed to her because it'd cause other issues. She'd claim we were spending her money OR she'd lose it and claim someone snuck in and stole it.

So now she will barely speak to me unless it's to argue. She basically feels that I'm betraying her somehow by managing her finances and trying to take care of her and wanting her to move to AL. I have tried every angle I can think of to convince her that this is best, she won't budge.

I've contacted her geriatric doctor in hopes they could be of some assistance.

Sometimes it's an hourly struggle to get her to take her medicine and eat. My wife or I visit her 2 - 3 times a day in order to make sure she's good, but things just seem to be getting worse.

So for now, we're kind of stuck. We feel very strongly that she needs to be in AL, but can't see how to get there. Any advice would be greatly appreciated.

Comments

  • cdgbdr
    cdgbdr Member Posts: 232
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    Do you have POA? Since she can't make rational decisions at this point, can you remove her from the process and move forward?

  • davidsp8
    davidsp8 Member Posts: 3
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    Thanks for the reply. I do. That’s certainly a possibility.

  • terei
    terei Member Posts: 720
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    The way this will succeed is if you stop discussing this with her. Arrange for a facility to take her + the day of the move, tell her you are going to lunch, take her to the facility + have lunch there with her. Tell her the doctor has ordered that she be there til you can get her medications adjusted and leave. The AL staff will help you with all of this. If they need to come to do an assessment, tell her it is because her current facility is requiring it because Medicare requires it. Use any excuses that you wish.

    You cant win any argument with her, it is part of the disease. She is ruling your whole family with her behavior. Do what you need to do for her and your own benefits. Good luck

  • H1235
    H1235 Member Posts: 1,129
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    The number one rule of dementia is don’t argue. This does NOT mean let her do whatever she wants! She is never going to agree to the move. You need to do what is best for her. She is not able to make those kinds of decisions anymore. She is going to be angry and mad. It stinks. My mom hates me. But she is safe. Make up whatever fib you need to to get her into AL. As DPOA you have an obligation to protect her and keep her safe, even from herself. If a kindergartner refuses to go to school you don’t just say ok you can stay home alone today. That is what you are doing here.

  • ARIL
    ARIL Member Posts: 186
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    Unfortunately this is a common experience. It is awful—but people on this forum absolutely recognize what you are going through. Stop arguing and trying to persuade. Her brain is not functioning properly, and she cannot reason as she once could. It is time to do what you know is best for her.

  • harshedbuzz
    harshedbuzz Member Posts: 5,586
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    You are going to need to move her asap. You want to do this before the facility gives you a 30-day notice and your options become limited.

    She's not getting the level of support she needs where she is even with you and your DW doing all you can to help her. TBH, given the sort of issues you are seeing, she's likely a better candidate for a MCF than a hospitality-model AL. My cousin mistakenly thought mom wasn't ready for MC and chose an AL. The other ladies quickly surmised that she had significant cognitive impairment given her inability to keep up with their activities and conversations and we kind of mean to her. A few weeks in, she fell and wasn't found for up to 12 hours as AL residents at this place got daily well-checks. Most meds were distributed at meals.

    TBH, I thought I was going to have to sneak up behind dad with a chloroform-soaked handkerchief to get him placed. It was easier than I expected. I did not discuss the decision: dad had no say in what needed to happen to keep him cared for. We created a therapeutic lie, aka fiblet, about him seeing a new doctor to make sure we were doing all we could for him. We drove him to the MCF and staff met us in the lobby and whisked him away. He was angry for an adjustment period— your mom will be too. We told dad he was in a posh rehab to get stronger which meant 1) he believed this to be temporary and 2) his return home wasn't our choice to make. Remember, you aren't doing this to her but for her.

    Another option, as she's been willing to go to the ER, would be to hire medical transport to take her to the new place as a special hospital stay. Other fiblets people changing facilities have used have been an apartment due to be painted or the bathroom upgraded.

    Some MCFs suggest family wait 2-4 weeks before visiting to allow their LO to adjust and bond with their new care team.



    Good luck.

    HB

  • SDianeL
    SDianeL Member Posts: 1,997
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    one of the first things I learned here was “you can’t reason with someone whose reasoner is broken” Its time to take control and don’t ask her. Other suggestions above to move her are good ones. Make sure the AL facility will allow her to age in place as she requires greater levels of care so you won’t have to move her again to memory care. The book “The 36 Hour Day” is excellent to understand dementia behaviors.

  • davidsp8
    davidsp8 Member Posts: 3
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    @terei , @H1235 , @ARIL , @harshedbuzz, @SDianeL thank you all for your feedback. All of your comments have helped so much!

    I know that we're not supposed to argue, but yet I am! I get caught up in the moment and well, I forget about the bigger picture. As for tricking her, I have been resisting against it. But based on your feedback, it sounds like I need to get over that and rip the band-aid off. Ugh, this disease is so hard!

    Thanks again for all of your help.

  • tboard
    tboard Member Posts: 138
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    No one ever wants to move to Memory care or even assisted living. You will need to use any combination of trickery and force that works. I got my mom into memory care by telling her that she was going on vacation. I dropped her off at a nursing home where m dad was staying. While she was there I moved furniture and other belongings to AL. I brought her there after I had it all set up and decorated. It took her a few weeks to adjust but ultimately she was much happier there then she had been at home.

    People who have dementia rarely believe that they have it which means their adult children have to be the grownups and sometimes the bad guy.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more