Juggling changes (driving, moving) with grief
My 84-year-old Mom lost her husband of 60 years — my dad — just 2.5 months ago. She is really grieving hard. So we are hesitant to add more unwanted changes to her life just yet. The problem is, we believe she is around Stage 3 or 4…. (Doctor just did MMES and she scored 24 out of 30, which was just below normal but we know she is further along than indicated.)
The problem is, I live 2.5 hours away and my brother is 5 hours away. And she's alone. She also very much has anosognosia. And has been getting a bit combative when we try to help her or suggest that she needs to make any changes. I've been driving back and forth at least twice a month just to stay for a couple days and drive her to the store or appointments or whatever. I am already burned out.
I feel that we made one good step in the right direction this past week when we got her to agree to look at an AL community near me. She actually quite liked it, but says she's too young and very adamantly does not want to leave her home so soon after the death of her husband. Note, she is even more adamant about not allowing outside help to come into her home.
Although she has not driven her car in over 2 months, and has said she is nervous/afraid to start driving again, she has now become obsessed with doing just that. She feels it will solve all of our problems — ie., we won't need her to move to AL if she can drive herself everywhere. Again, she puts up a big fight about this and wants to know our reasoning — "my friends who lost their husbands can drive, why don't you think I can?" . She's way too smart to fall for a fiblet about the car.
How can we best handle this? I need to find a way to keep her safe while maintaining my own sanity and I'm really struggling. I don't' want to push too hard while her grief is so fresh.
Comments
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welcome. Sorry for your loss and your Mom’s diagnosis. Unfortunately unless you can provide 24/7 care in her home, you will need to make the decisions and take control. She is unable to reason. She can’t understand there is anything wrong. I would take the keys, disable the car or have it towed somewhere else. If she drives and is in a wreck her insurance could refuse to pay and she could be sued. She should no longer be living alone. She could start a fire and not know what to do. I would look for AL that also has memory care. . AL is not secure enough for dementia care. They don’t provide 24/7 care. So you will need to move her twice. Your goal is to keep her safe. Remember you’re not doing it to her, you’re doing it for her.
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Are you named as her DPOA /healthcare proxy? Who is doing her taxes for 2025, settling your Dad's estate?
If she hasn't been to an elder law attorney to get the paperwork done , getting it done now to avoid having to go to court for a guardianship is prudent. You can say your Dad passing has made you decide to update your papers and maybe she'd like to tag along— "family discount" and all that.
Advise - splitting the health and money functions for a DPOA is messy. A lot of times a parent says Suzy for healthcare and Robert for the finances -you don't want to have to argue about expenses . People can get squirrelly when they realize a dollar saved is an inheritance increased.
If your brother isn't likely to be near where she will live you can suggest he be the backup person for both.
If you aren't going to move her you can hire a geriatric case manager near her but 24/7 in home care and the manager is usually more expensive than being placed.
The elder law attorney can also advise on medicaid for nursing homes and some tax strategies. Help you decide which state is best if multiple states involved.
Right now she is likely to fall prey to schemes, not remember or hide them from you so try to get all her assets under management as soon as practical. With her memory issues watching her handle her money is retroactive, not proactive .
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When I took mom to tour an assisted living facility she was the same way. It was a nice place for someone who needed that kind of care, but she didn’t. The neurologist had just told her it wasn’t safe for her to be home alone. I made an appointment with the facility and signed all the paperwork without her (I have DPOA). I then told her what I had done and when she would be moving in. She was so angry. She demanded to know why. “Just explain it to me” I I tried to explain (bad idea) she said I was being ridiculous and she was perfectly capable of being alone. It was about a month of her barely speaking to me. Like your mom fibs would have never worked. My brother insisted she be told about the move right away. While she was mad she realized she had no choice. She started packing up boxes. The actual move was a nightmare. I had no idea what was in the boxes and my brother said I had no right to root through her personal things. He said if she packed it to go it must be important to her. She had cookbooks, cupcake papers, kings size sheets.. what a mess. Shortly after the move we got her on some new medication. It took a while to get the right dose, but that made a huge difference. At home she often didn’t even get dressed in the morning, she had no one to talk to and didn’t eat well. Al was good for her. She made friends and participated in activities. She is in a nursing home now. She has never understood the reason she needs to be in a facility. I crossed my fingers and said a lot of prayers that she would actually get in the car for the move. I don’t know what I would have done if she refused. So my advice, just make the decision and sign the papers without her. You will never get her to agree. Don’t tell her about the move weeks in advance. I’m not sure I would have told mom until she was in the building. Don’t let her pack, if you do, plan on going through everything before the move. In a controlled environment with a regular routine at Al mom actually made some very minor improvements. Her home was very overwhelming for her. She would never admit it. Getting through dementia without having your loved one angry with you would be quite the feat. I’m so sorry about your dad and I know how hard that must be on your mom. In my opinion you can’t let your sympathy for your moms loss get in the way of getting her the care she needs. Accept she is going to be mad and do what needs to be done to keep her safe. This is tough!
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yes my brother and I are DPOA and handling taxes, bills, all finances. She fortunately wants nothing to do with that.
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I’ve been with her for the past week and she has done nothing but yell at me for the last 3 days. She is accusing me of treating her like a baby, she’s angry that I won’t let her drive, etc. I know it is her fear of losing her independence and fear of what is going on in her brain, and I know it’s also part of the disease— personality changes. We NEVER had fights in the past.
I am literally sick to my stomach over this and on the verge of a nervous breakdown. I don’t know how I’m going to possibly handle dragging her kicking and screaming to AL.0 -
I’ve been with her for the past week and she has done nothing but yell at me for the last 3 days. She is accusing me of treating her like a baby, she’s angry that I won’t let her drive, etc. I know it is her fear of losing her independence and fear of what is going on in her brain, and I know it’s also part of the disease— personality changes. We NEVER had fights in the past.
I am literally sick to my stomach over this and on the verge of a nervous breakdown. I don’t know how I’m going to possibly handle dragging her kicking and screaming to AL.
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I know I'm late to this message thread but my heart goes out to you. My mom fought going to AL too. When she realized that I was serious and that I was about to take her 400 miles from home to an AL close to me, she started going through her address book. She called multiple old friends and distant family members to tell them she was being forced to move against her will. You can imagine the calls I got, since most of these people had no idea that she'd been struggling with cognitive impairment.
I too feared that she would flat out refuse to get into the car when the time came. But she got in, in spite of the fact that a couple of friends stood crying in the driveway. I think somewhere deep down, she knew that she needed help. Or she just didn't comprehend that she could actually walk back into her house and refuse to go. It was rough, but within a few weeks she was getting into the routine at AL, without the stress of managing meals, finances ,transportation, all the things that had made daily life so hard for her over the past few years.
I hope that your mom makes a good adjustment too. It's heartbreaking to have to uproot her, but you are doing it for her safety. Just as a young child cannot understand why parents make some decisions, so our loved ones with dementia can't understand what is in their best interests. The sad difference is that children grow in their understanding, while our impaired parents continue to lose their mental abilities.
Peace and blessings to you.
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The only way I was able to get my dad to stop driving was have the doctor do it. One week my dad was literally yelling at me and hanging up the phone because he insisted he was fine to drive 50 miles across the Bay Bridge to see a friend. I called his doctor, they said he was due for a check up, he went in and the doctor did the MOCA test (15/30) and said "Mr. X, you have dementia, you have no memory and it is my duty to tell you you cannot drive." My brother and I ambushed him and met him at the doctor's and my brother drove him home. He was completely accepting, just worried how he was going to get groceries. I had already contacted an agency and set up someone to come in and help 3 times a week.
That lasted 4 months and we moved him to assisted living 2 weeks ago. We also had to used the doctor to help with that - I blamed the doctor and said he thinks my dad needs more help. I gave my dad the choice of someone coming in 24/7 or going to a nice AL facility. After lots of tears and fighting again, and my husband playing "good cop", suddenly my dad relented and agreed to move. So far so good now, he seems to like the place he is in. He says everyone is super nice and he loves the food. And most importantly he is safe.1 -
Thank you for this response. It gives me hope. We actually made some progress this week — my mom fell while taking her trash to the end of her driveway. Broke her glasses, was all bruised/scraped, and had to be helped by the neighbors. It was humiliating for her and she called me the next day and said she realizes she can't keep living on her own. Two days later, she has changed her tune, but we're getting there.
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@lilacgirl "she called me the next day and said she realizes she can't keep living on her own. Two days later, she has changed her tune, but we're getting there."
If you are waiting for her to re-make that decision to move and then consistently remember and stick to it- my experiences recommend you don't . You'll just be grinding yourself up and she'll get upset at the topic being raised.
Her brain isn't capable of that level decision making and emotions tend to over whelm and "no" is the fall-back response.
Different places use different names for the levels of care , AL may not be the right level for her , it supports the residents but doesn't monitor them and they can go off campus.
If you try to staff her staying in her home , she can wander if not 24 hour care and it tends to be more expensive.
I'd get with your brother and between you pick a place near one of you to make care easier - maybe a place with both AL and MC in case you want to try AL first , don't bring her on the tours. Have her visit your home, then go there for lunch , the staff can help.
First few weeks may be tough for her until she gets settled, but she'll be safe. Now it isn't easy on any of you and she isn't safe. What if she'd fallen in the bath or backyard …
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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