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Rapid Progressive Dementia/Covid19 Related

MY DW passed on 12/06. After a relatively short, but intensely difficult journey. We did not have a confirmed diagnosis, as the tests were all negative and normal for her age. Her health eas rest of a healthy 45 year old, had not had any hospitalizations, rarely sick with a cold. Sometimes allergies. P. She wa sky caretaker through cancer, brain any risk, lupus, spine surgery after crushing injury 911, add she was a wonderful perfect person,
So, a month after the vaccinations came out, she showed mild Ciotti symptoms, then another vaccine, more symptoms, I'd theft and becoming honeless due to invasion of our privateaid fir home, while we had been away for 6 weeks.s, due to our son in laws nearly dying. Strangers, tooook over our home and the contents.

everyone tries to tell you that it's stress it's causing her PTSD that caused her to have Kong fog but I don't know I kind of thought differently. Go to the doctor or the doctor does a cognitive test and she said she's perfectly healthy. It's probably. two years later my wife is gone. She didn't get a diagnosis until July 2020 and they still didn't have an MRI to confirm it so in September they finally got her an MRI after the. Now I'm taking off a year and a half already by then of work because I walked away from my job wanting to find out what was wrong with my dear wife. It was really sad when the only option I had by the time October came around this year was to put her in hospice and I've been on this to get some help.

After she went on hospice the hospice team and the doctor said she's perfectly healthy. She'll probably live in several. She should be on hospice a couple years probably at least and so that's kind of what I banged on you know. She anyway she never had the so I wanted to have her have that but she was just now in stages of dementia and she wouldn't sit still I'll be at that she had me up 24 seven I probably got two or three hours of sleep and night on average for the last two years less and less the year went by.

They say that people dementia don't succumb to their dimension, which is in my case is true. Mind your wife got something something going on with her stomach or maybe have become constipated and her confusion and everything else. She began defecating everywhere and I was cleaning I to keep her to shower all night called come out. He said nobody was on Thanksgiving.

Later on she started vomiting. And I thought when she's gonna bounce back, she you know she's so healthy. Later my wife passed away. I thought I feel like you know starvation and she wasn't able to eat or drink for days and Hospice gave us a vacation. This was in the life and a way to treat her.

Made a decision for brain and then I couldn't brain donated in time because her demise is coming up too quickly. So I went ahead and paid for the external auto because they don't do that normally with. And the results came back as rapid progressive dementia due to COVID-19.

At this point she is one of the very few. The medical community doesn't recognize Covid or LC as a cause of Alzheimer's or Other dentists, but, I will say. It is a shame we cannot look into tge fact that covid is a real problem for all of us, when it comes to our health, brain health or physical. I adamantly believe that her illness was the direct result of the covid pandemic.

This is very raw for myself and our child and grandchildren. I am hoping to help others in dealing with the caregiving support. Ideas, and better understanding / communicating within our LO.
her decline was very difficult with the unpredictable behaviors, wandering etc. I was very fortunate and so was she for then rapid dementia.

What I will say, is. If you believe it why ar ein teh last stage. Do yourself the favor stick around I was so fortunate to be with her so much that her final 24 hours before she passed away she became completely lucid and was able to talk to me and hold my hand and we had a wonderful and we were able to communicate like she would never had dementia. Although she was weak and she couldn't raise her wanted to know happened to her. S nothing was and I was so fortunate for that and I believe she was too.

I thought I was we'd be putting her in a memory care home in the beginning of this year. And part of me wishes she was still here and I would do it all over again, but I'm so glad I spent as much time as I could with so if you have that opportunity and you're the spouse, it's worth it not to have all the money in the world. It's worth it to be with them. In my opinion.

2022

Comments

  • hiya
    hiya Member Posts: 76
    25 Likes 25 Care Reactions 10 Comments First Anniversary
    Member

    what a journey!! I’m sorry for your loss. You can tell how much you loved and devoted your time to caring for your DW. Make sure you care for yourself now.

  • eaglemom
    eaglemom Member Posts: 613
    Legacy Membership 500 Comments 100 Likes 25 Insightfuls Reactions
    Member

    Thank you for sharing. I am so sorry for your loss. Feel free to come here to share whenever you need. And as hiya said, please be kind to yourself.

    eagle

  • midge333
    midge333 Member Posts: 363
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    Member

    I am sorry for your loss.

  • Russinator
    Russinator Member Posts: 57
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    Member

    I am sorry for your loss.

  • Jgirl57
    Jgirl57 Member Posts: 529
    500 Comments Fourth Anniversary 100 Likes 25 Insightfuls Reactions
    Member

    So very sorry for your loss. Peace to you and your family

  • DrNani
    DrNani Member Posts: 20
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    Member

    thank you. Exhausted and ready to figure out my new normal

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more