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Sobering development

135

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  • Quilting brings calm
    Quilting brings calm Member Posts: 2,405
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    edited August 2023

    @M1 how long before you find out one way or the other?

  • Iris L.
    Iris L. Member Posts: 4,306
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    M1, I'm so glad the clot is gone. I'm also hoping for an infectious etiology for the liver lesion. There are lots of pathogens on a farm and in fields. Anthrax, brucellosis etc. You're on my prayer list.

    Iris

  • housefinch
    housefinch Member Posts: 360
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    Sending you strength and hoping for good news. I understand never wanting to be the “interesting consult” (am an MD too). Have been and will be thinking of you and your partner.

  • Jo C.
    Jo C. Member Posts: 2,916
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    edited September 2023

    Hey and hello there on Friday morning; am thinking you may have been discharged home yesterday (?).

    What an outlandish whirlwind of highly gobsmacking, stunning,, absolutely unexpected happenings all at once, M. Must be difficult to get one's bearings and have them stick considering . . .

    If home, I wonder if you have anyone lending a hand for a bit as this sure has been a lot of topsy-turvy, upside down experience all at once along with procedures being done on your beleaguered body; bound to make one tired and a bit off feeling; would like to think you have a bit of support while you get rested and settled as best can.

    Good to hear that your Partner has been doing well and even went to the dining room for her meal; that is a plus on the positive side of the ledger for what she had been doing; hopefully that is a relief for your concerns for her right now. Your friends who visit her sound like an awesomely caring pair.

    As we all are; I am thinking of you and checking in to see if you have been here. Sending a bushel basket of best of thoughts and wishes your way.

    J.

  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
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    M1, so sorry you are having these health issues. Glad you’re lungs are better and the embolism removed. I do hope your liver lesion is benign and all your healing can begin. My thoughts are with you and your partner.

  • ButterflyWings
    ButterflyWings Member Posts: 1,752
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    (((M1))) - Continued healing! I saw your posts and was both stunned and distressed to think of you having to suffer health challenges. You are a hero caregiver and partner, devoting such attention and great care for your beloved's well-being, navigating major challenges with clarity and grit despite the impossible sadness dementia creates, while also managing tremendous responsibilities maintaining your property solo.

    Now this. Not fair! As a non medical pro, all I can offer is fervent prayers for best outcomes now and in the future. You are a treasure and we are sending you well wishes for a full recovery and all the support you need to not worry, just breathe right now. You are the priority as your DW is in good hands, thanks to your tireless efforts.

  • toolbeltexpert
    toolbeltexpert Member Posts: 1,583
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    M1 thanks great news about your blood clot those are so touchy. Also good to hear about your dw exploring her surroundings she's still kinda new.

  • SDianeL
    SDianeL Member Posts: 887
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    🙏🙏🙏

  • ImMaggieMae
    ImMaggieMae Member Posts: 1,010
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    M1, thank you for the update. Glad the embolism is gone and you are hopefully home now. Praying that your “interesting case” turns into “unremarkable “. I always like to see unremarkable notations on scans and tests!

    It sounds like your partner is doing well and you are lucky to have friends who can visit her. I hope you can get some help at home while you are recovering.

  • Chammer
    Chammer Member Posts: 140
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    Woohoo! So good to hear no malignancy! But I know this episode has put much on your horizon to consider for future planning. Prayers for your physical and mental health.

  • Caro_Lynne
    Caro_Lynne Member Posts: 346
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    M1/G glad you received some good news! So sobering how life can change in a heartbeat. Thanks for the update xo

  • Jo C.
    Jo C. Member Posts: 2,916
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    edited September 2023

    Oh M; I am greatly relieved on your behalf to hear the results were negative for liver cancer. Wonderful! Here I thought you were home; I am sorry you have need to continue as an inpatient and especially for the stress. Stuff and bother. Have your friends, that lovely couple, been able to visit with you? I imagine the kids are keeping close contact.

    What I think I hear is that there are other issues skulking about; we will be holding you in our thoughts. You too have a three day weekend, but certainly not the one that would have been planned . Well; you are where you have access to the specialists and the rest of the M.D's making rounds as three day weekends are difficult on that scene if one has needs pop up from home. Private room I assume, and nurses and rest of staff hopefully being kind and caring because you are a lovely person in how you treat and care about others.

    "See" you at home soon, keep that chin up and know you have a host of friends on the other end of the electronic tether that really care about you, and may Tuesday come faster than it feels it will right now.

    J.

  • Iris L.
    Iris L. Member Posts: 4,306
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    It's great news that there is no malignancy! Prayer works! Continue recuperating. I will continue praying.

    Iris

  • gampiano
    gampiano Member Posts: 329
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    M1,

    Thinking of you daily, as i meditate on the intentions of each morning. You have many friends here, and the community loves you.

    Maureen

  • M1
    M1 Member Posts: 6,719
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    Maureen and all of you, thank you so so much. The support means the world. I am so fortunate to be receiving great care. The liver issue is what's called a giant hemangioma that could bleed with blood thinners that are the necessary treatment for the pulmonary embolus. Quite complicated, im going to have to follow up with a surgeon but they think im too sick to do it now. Unfortunately i think they're right, im very short breath, and trying to figure out how to plan for whats ahead. Good pulmonologist, hematologist, cardiologist all on board- very humbling to need so much help but grateful to have it.

    Yes all the family and friends are rallying and have been wonderful. my son on the west coast is struggling with trying to juggle his school obligations and wanting to be here. I can only hope that my partner is being cared for, they are telling me she's fine but i worry nonetheless and miss her.

  • Denise1847
    Denise1847 Member Posts: 836
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    Dear M1, Thank you for the update. I pray for your healing and full recovery. After all of the caring you have done, it has to be difficult being the patient. Please rest and try to de-stress from all you have been through.

  • Ed1937
    Ed1937 Member Posts: 5,084
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    Great to hear there is no malignancy, but wish that was the end of it. The good news is that the prayers worked. Now you'll get more to help you handle whatever is still in front of you. Stay positive. It will work out.

  • toolbeltexpert
    toolbeltexpert Member Posts: 1,583
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    M1 that's good news about the cancer and it sounds complicated on the giant hemangioma. It sounds like you have a great team lined up. And you can rest assured the team you lined up for your wife are more than capable. I hope you get to go home on Tuesday I continue my prayers for you and your dw.

  • Joydean
    Joydean Member Posts: 1,497
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    M1 so glad to hear the good news, will continue to be praying for you and your family! I join so many others that know what a fantastic caregiver you are for your partner. May God continue to bless you and your family.

  • Marta
    Marta Member Posts: 694
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    So you aren’t anti coagulated now?

  • Jo C.
    Jo C. Member Posts: 2,916
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    edited September 2023

    Giant hemangioma is something I am not that familiar with as I have not seen it in my nursing practice. I can certainly imagine the concerns re anticoagulation. I am deeply sorry for the complexities and for the stress all of this has brought and am glad to hear that you have top drawer specialists with you.

    As for your beloved Partner; I can understand your missing her as well as your concerns. Being a person of deep caring and being detail oriented, this has to be difficult as you have been so attentive and careful with and for her. A significant blessing is the high quality of care you have chosen for her. Perhaps the staff can take some photos or perhaps even little videos to send you from time to time so you can see her. That may be a bit helpful for your peace of mind.

    Will follow and of course as said before; thinking of you and sending prayer on your behalf.

    J.

    (Edited for clarity 9/3)

  • Jgirl57
    Jgirl57 Member Posts: 469
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    Right now you need the kind of love you have given your partner. Let the doctors , your family and friends give you the love that is needed. So sorry for this whammy.

  • Buggsroo
    Buggsroo Member Posts: 573
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    M1, you always have been so kind to me, I really hope your medical issues will clear soon. I suppose being a doctor in your own right, will be difficult because you know very well what is happening. I hope things resolve for you, it sounds like you have calvary to help you. All the best, please keep us informed.

  • M1
    M1 Member Posts: 6,719
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    Marta yes I'm on heparin, the concern is with starting an oral agent that can't be so quickly reversed. Probably not much choice except to start one and take my chances, follow up with the surgeon and the hematologist as an outpatient. Interesting twists still about whether i could have had covid without knowing it, and whether i can be vaccinated again this fall, need to be exquisitely careful about not getting exposed through this next winter. Lots to process! Uneventful day today though which was much needed.

  • Rocky2
    Rocky2 Member Posts: 133
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    edited September 2023

    M1, I'm releived to hear there's no malignancy, but sounds like you have much to focus on with your health. God has graciously answered "yes" to the many prayers offered on tour behalf. For that, I am grateful. I continue to pray for you, your partner, your medical team, your family, and many friends.

    Tom

  • Iris L.
    Iris L. Member Posts: 4,306
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    Hepatic hemangiomas are new to me, but apparently they are not uncommon. You will be in good hands with the hematologist and the surgeon. Keep healing!

    Iris

  • Elshack
    Elshack Member Posts: 238
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    M1,

    You have always a kind support to me after I have posted. I am praying for you and your companion and hope you can concentrate on your healing and not worry about your loved one. I could not visit my DH in memory care for 2 weeks due to my getting Covid last year and found out he did not notice I had not been there for 2 weeks. Then I had the stomach flu a couple of months later and again could not visit for several days and he was ok when I again visited. I know every case is different but I know you have friends that can keep you abreast of how she is doing and also the memory care facility. You have to concentrate on your health and well being and try not to worry as she is getting the best care. Easier said than done I know but I wanted you to know you are in my thoughts and prayers.

  • Jo C.
    Jo C. Member Posts: 2,916
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    I had completely forgotten about the risk of DVTs and Pulmonary Embolism brought by COVID infection. To my surprise when I did some reading, it is a risk that is seen up to 12 months after COVID. For those Members who are not familiar with this, here is a link from the Heart Assn.:

    https://www.heart.org/en/news/2022/09/19/blood-clot-risk-remains-elevated-nearly-a-year-after-covid-19

    The plan for careful monitoring and treatment plan sounds like a sound one; being your expertise as a physician, I am sure this has been very thoroughly and carefully thought out in concert with your specialists.

    More warm thoughts being sent your way,

    J.

  • Marta
    Marta Member Posts: 694
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    edited September 2023

    Thinking of you,M1, and following closely.

    I thought you would find it interesting: my 43 year old son had Covid in the fall. He remained SOB. Months later his Hgb was found to be 7. Full work up-no other etiology identified for the drop in Hgb. He has rebounded with iron supplementation and can mow his lawn without SOB. I am so thankful.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more