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Sobering development

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  • Jo C.
    Jo C. Member Posts: 2,916
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    Gosh Marta, what a thing to have happen and who would have thought it. COVID is certainly a sneaky and evil virus with so many implications.

    Our son is beginning to recover from two weeks of COVID and he was recommended to take half an aspirin twice a day after onset and he has done so. Just found out and am surprised. Since the impact of the virus can last 12 months for symptoms to show re clots and PE, it is something that should be more informative for the average person, but I have not seen anything on any program or even the news re such concerns re after effects.

    Now I have to find some good KN95 masks; my DH had ordered some but they are small and not good fits. Really a pain in various portions of one's anatomy to know just which to choose. If any ideas anyone would be glad to hear them.

    And, our M1 will take VERY good precautions so we get him back over the home plate so to speak as he runs his bases to get there.

    J.

  • White Crane
    White Crane Member Posts: 851
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    Dear M1, i’m so glad there is no malignancy. That is a relief! You’ve been in my prayers daily and will continue to be. With your own expert knowledge and that of your specialists, I’m sure you will find a plan of care that works for you.

    Sending lots of love hugs and prayers your way

    Brenda

  • Drapper
    Drapper Member Posts: 79
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    M1 - sorry to hear of your troubles. I’m sending positive thoughts and prayers your way - For both you and your LO.

  • ButterflyWings
    ButterflyWings Member Posts: 1,752
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    edited September 2023

    M1 - So much good news though you are not out of the woods yet. As you can see, your many friends and fans here are so grateful for this! Keep healing (and meditating however briefly on the positive direction of your health).

    We have friends with the long covid impact, even when otherwise asymptomatic. Some with breathing issues, others with cognitive fuzziness, etc. which reminds me so much of why getting to the bottom of effective treatment and cure for dementias, etc. is crucial. It will be helpful to many more people than just PWDs now, it seems, with the COVID-19 cognitive factor that is affecting some.

    Glad you have the medical A-Team in place, and that you are following Drs orders for full, safe, recovery.

  • Jeff86
    Jeff86 Member Posts: 684
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    Thank you for sharing your health issues, M1. You are a profoundly giving member of our community and we all care greatly about you.

    What a tough medical conundrum you are facing, where the best treatment for one issue is contraindicated for another. Fortunately you seem to have a great medical team and of course your own deep knowledge to navigate through these challenges.

    We are all pulling for you. Please continue to let us know how you are doing.

  • Rocky2
    Rocky2 Member Posts: 133
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    Welcome home. I hope you will be able to rest and heal.

    Tom

  • jfkoc
    jfkoc Member Posts: 3,762
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    One's own bed has magical hidden healing powers.

    If you are shakey get on Amazon and have a rollater shipped in. I love mine and the seat is especially handy for transporting stuff to and from rooms.

  • M1
    M1 Member Posts: 6,719
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    Good idea judith. Hard to admit I need it but i probably do. Darn...

  • Ed1937
    Ed1937 Member Posts: 5,084
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    M1, glad you're home. I wish you were feeling a little better, and hopefully just the change of environment will help. You're still in our prayers.

  • Joydean
    Joydean Member Posts: 1,497
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    M1 adding my prayers with all the others. Glad you got to come home and hope you are resting up.

  • ButterflyWings
    ButterflyWings Member Posts: 1,752
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    (((M1))) - So glad you are home and on the mend, though you must feel like you've just finished a prize fight or marathon run. Add my name to the list of those sending you healing thoughts and also lazy ones. i.e., definitely ignore any instinct to clean or cook, or whatever. Pretty please? We just want you to breathe in and out. That's the assignment for a few days (or more).

    Do you /can you get a companion caregiver to help for a few hours a day? So you can just rest and recuperate.

  • GothicGremlin
    GothicGremlin Member Posts: 839
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    So glad you're home, in your own space. Please take care of yourself and give yourself enough space to heal.

  • Iris L.
    Iris L. Member Posts: 4,306
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    You can heal better at home. Get well soon!

    Iris

  • Jo C.
    Jo C. Member Posts: 2,916
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    edited September 2023

    It must feel so good to be at home with all you love around you and your own favorite chair and your own bed and your own pillow. May the days bring comfort and healing.

    J.

  • JeriLynn66
    JeriLynn66 Member Posts: 798
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    So glad you are home !

  • White Crane
    White Crane Member Posts: 851
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    Oh, I’m so glad you’re home! Like others have said, let yourself rest and recuperate. Prayers continue.

  • toolbeltexpert
    toolbeltexpert Member Posts: 1,583
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    Glad to hear your home. A caregiver for you right now sounds appropriate. You gotta take care of you.

  • Gig Harbor
    Gig Harbor Member Posts: 564
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    Praying for good news for you.

  • Emily 123
    Emily 123 Member Posts: 747
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    Glad you're home, M1. Please take care of yourself!

  • Elshack
    Elshack Member Posts: 238
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    Please give us an update on your health. Saying prayers for you and your dear companion.

  • M1
    M1 Member Posts: 6,719
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    Thanks elshack. Im home, pretty much in bed since getting here late Monday, shocked at how short of breath i am. Seeing my internist tomorrow. My partner is okay, has not asked for me. Fell again yesterday and is not letting others help her shower. Everything feels on hold.

  • Battlebuddy
    Battlebuddy Member Posts: 331
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    M1,

    It must be so hard to be mostly in bed. I know you want to be better so you can visit with your dear partner. I hope and pray the breathing improves soon. We are all pulling for you.

  • Iris L.
    Iris L. Member Posts: 4,306
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    Keep resting!

    Iris

  • Jo C.
    Jo C. Member Posts: 2,916
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    Glad you are seeing your Internist tomorrow, it will be a positive to have his/her assessment, input and support. I hope you are having someone in to provide support at home for the time being as you deal with all of this.

    Being in bed most of the time be a bit boring and negative in thoughts, but it is good to hear that you are taking good care of yourself and adhering to what is best at this point in time.,

    Having had to do that myself, what I found assisted me in keeping myself more occupied to pass time and to take my mind off of what was happening in my body was to have items that would change my brain pattern. Had my laptop next to the bed, my Kindle, had a TV in the room, and got a David Oulett Wordsearch book as well as a Stanley Newman Crossword puzzle book (they are very good quality with spiral binding, slick covers and really good paper inside.) I found that if I was highly uncomfortable or feeling unsettled or even on hold on a phone call waiting forever to get through, the crossword puzzle book was helpful. Overall, the Kindle was the best thing to keep my mind occupied and to help time to pass a little faster. I think that more than anything, those items got my brain from sensing the discomfort and unsettled concerns taking my thoughts elsewhere.

    Good to hear that your Partner seems calm and not upset by your not being there. Eventually, the staff will figure out a work around in getting her showered. I wonder if she in some way feels embarrassed being nude in front of staff. If so, they can even bath her through a T-shirt or other item, still gets most of the job done.

    Keep taking good care and am sending best of thoughts for your healing and well-being,

    J.

  • ButterflyWings
    ButterflyWings Member Posts: 1,752
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    Thanks for the update M1. We all are hoping for smooth, speedy and full recovery for you, from here on out. Do you have a pulmonologist that could possibly be referred for breathing expertise in this situation? It must be worrisome to think MD thoughts on top of how most of us think when we are under the weather.

    I'm so glad you have access to such good medical resources and specialists. They will see you through this. Keep resting and breathing. We are sending you so much positive, healing energy. You'll be back on your feet before you know it!

  • Mint
    Mint Member Posts: 2,675
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    MI know you are a physician but I’m your friendly respiratory therapist lol. Sometimes when we are sick hard to remember everything, at least it was for me. You may already be doing this but want to remind you to take a deep breath hold it and count to 5, exhale. Do 10 every hour when awake. Also frequently change positions when you are laying in bed. Hope you start to feeling better.

  • M1
    M1 Member Posts: 6,719
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    Thanks you guys and Sayra, you're absolutely right-am seeing internist today and will ask about any benefit to pulmonary rehab. May be outweighed by need to avoid covid exposure though. Patience is hard when im so anxious to be back on my feet, this is clearly going to take a while.

  • Ed1937
    Ed1937 Member Posts: 5,084
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    I'm sorry you aren't able to get out the way you would like. But at least you're at home instead of a hospital. Prayers continue to come your way. Wishing a quick recovery for you so you can get out again, and feel better.

  • Caro_Lynne
    Caro_Lynne Member Posts: 346
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    Good luck today at the internist; hope all goes well! Stay safe xo

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more