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It's been years since I've gone anywhere.
I haven't left the property in four years, as I work night shifts and have avoided daytime interactions for two and a half years. These sacrifices are what we make for our ungrateful dementia family members we care for.
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To all caregivers Merry Christmas....
Oh how the holidays have changed. Blessed are the caregivers like me.
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Feeling Fragile
I feel so sad. My DH of 54 years has VD stage 5 or 6 our partnership over the years has been so strong, we've worked together in our own business, sailed together, flown together, had our children together, and always relied on and supported each other, and now it's just me calling all the shots. I love him dearly and I am…
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How to support my stepdad as primary caregiver
Hello. I am new to this platform. My mom is in Stage 6 of Alzheimer's. My stepdad is her primary caregiver. I can see that he is in over his head and is stressing out. But he is shutting out ideas for support, saying that he can't handle any more information. He is trying to do everything himself, and I can see the…
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Seeking Advise - I am 25
I am 25 and my mother was diagnosed with early onset Alzheimer’s at 60. I am new here and need help knowing what to do. She’s about in the mild/moderate stage. My father passed away 2 years ago and the only family around is my younger brother who is 22. She has a sister that lives about two hours away. Family and friends…
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I feel like I’m losing myself..
Hello everyone, I’m just seeking help. My father was diagnosed with unspecified dementia 5 years ago while I was in bootcamp. As of 2 ish years ago until current, he’s been severely violent towards my mother and my brother. He’s threatened to kill them, my mom was so scared she’d sleep in her car in the driveway. She…
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Feeling Very Alone
Hi everybody! I hope everyone is having a good day/night. I am 24 and the main care taker for my mom who is 59, she was diagnosed with Alzheimer's back in 2022. The first year since her diagnoses had been pretty uneventful, no huge changes besides getting her disability approved. She had already stopped driving and working…
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Not Sure if it’s the End
Hi all. Been caring for my aunt for almost 2 years. She’s almost in her mid-nineties and came to live with hubby and me close to 2 years ago. It’s been a rough ride, as I’m sure it has for many, here. My Aunt is almost fully incontinent now, and has frequent delusions. I have a little bit of a medical background, but…
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Arguments that seem impossible to stop
Hi, alright I am new on this and taking care of my 72 year old mother. Are there any simple ways to get a person with dementia to stop arguing? Once my mother gets mad it seems impossible to get her to even attempt to think of something different. She likes to just make it seem like I have ruined her entire life and no…
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Anger When Family Tries To Help
Hi everyone! I wanted to reach out and see if anyone else has had experience with this and what you did to mediate it. So I am a caregiver (F25) to my mama with Alzheimer's (F60), and she is on her first big trip since her diagnosis. Her sister took her out of state to visit other family members and my mom is having a…
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Just crappie day
You wake up in a good mood. DH is so negative. You carry on. Try to get him in better mood in nope. Dh complains his tv is not working right. I work it fine explain to him what to do. DH tries again can't do it. Worse mood. Think I'll take a ride! Just me complaining.
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Trying to Do What is Best
We are about to hit the wall with rehab discharge and getting my mom into AL instead of letting her return to her IL apartment. This is going to be very hard since her perception of her abilities and safety issues does not align with reality and she is itching to get back to her bridge games and friends. She has a left arm…
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Respite care services Denver, CO?
Hi- new to this space. My mother was recently diagnosed with beginning stage Alzheimer's and capgras. My father is the primary care partner at the moment and he needs respite. Does anyone know of an assisted living facility in the area that will do short term respite care? Thanks!
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For my auntie
Just joined, walking in Tinley Park Saturday, interested in starting a support group at a wellness comm center.
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A few days ago things were manageable, but then the wheels fell off
My DH has had Lewy Body dementia for 4 years now. He is 85, I'm 75. Up until just recently, we've been doing pretty well. I was even able to leave him at home alone while I work (just 3-4 hours a day in the morning). A few days ago, it was like someone pulled a switch. He has always been very verbal, but now won't stop…
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Struggling Only Child
Hi ya'll, I've recently become a caregiver at the age of 29 as an only child for my father with dementia who is 74. He was diagnosed back in December 2023 with very little notice and had to be moved into a memory care close to my home - I work a full time job and am unable to stop working. It's just him and myself in our…
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DH now stage 6
my DH is now stage six. I’m exhausted physically and mentally. He hallucinates, delusional, wanders, paranoid, agitated and confused. The speech is so bad. He can say a word and make a somewhat sentence but cannot put two sentences together to make a thought. He sometimes thinks his children are small. He asked me to tell…
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Scared
Hi everybody. My loved one with Alzheimer's Disease is my dear mama and I am her main caretaker. I've posted a few times already in here and the support that I receive means more than any of you could possibly know. Todays discussion is just me talking about how scared I am about off this. I mean, when I was a kid and I…
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Long vent, sorry in advance...
In 2021 my grandparents moved my great aunt into the same apartment complex as me, less than a year after my mother passed away suddenly (and without warning) back in 2020. I was instantly forced into caring for my aunt without any sort of discussion. So now I am 35 and am currently the main caretaker for my 94 year old…
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She is the Love of My Life, will she come back for a moment?
My DW, first showed signs of mild cog impairment during covid, July of 2020. Sill very mild what everyone thought was stress related. Then in 2/2022 we both were infected with a severe. Case of covid with brain fog, that I have been able to recover from. Not so luck has been my DW, although I have made many efforts since…
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Feeling Guilty/Stressed
Hi Everyone - first time here. My father had a stroke last March and was diagnosed with Alzheimer's/Dementia....he is around Stage 4-5. I am an only child and we had to move him in with my family....Husband and 2 kids (13 and 11). It's been a little over a year and it's really taking a toll on me. My job is being really…
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Out of ideas
My Mom has been in memory care almost a year now. It will be a year the first week of September. She was in AL at the same facility for about six weeks before they insisted she be moved to MC. She was wandering at night and anxious most of the time. Once in MC, there was a transition phase, but it didn't have anything to…
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Sad and caring formy mom 4 years
I'm new here. I've been caring for my 85 year old mom who was diagnosed with dementia/alzheimers in 2021. She just started asking about her mom, my grandmother every night, who I also cared for when I was a teenager right out of high school when my mom was working back in the early 1980's. My grandmother passed away in…
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Emotional Abuse
Hi there, This is my first post and, I'm really desperate for help or advice. I am moving cross country to care for and support my mother who was just diagnosed with Alzheimer's (though, I think this has been progressing over the last several years). I am doing everything I can to help her and it never seems like enough or…
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New definition of a bad day
Found DH on his hands and knees in the bathroom with poop everywhere. He was trying to clean it up by putting chunks down the shower drain. I managed to get that stopped and got him in the shower while I cleaned up the floor and the toilet. Then I scrubbed him thoroughly and got him dried and dressed. Then I started the…
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pity party day, week, month...
DH was diagnosed with EOAD (age 61) November 2021 after a lumbar puncture. He was MCI at the time. Currently he his solid stage 5 with stage six leanings. He does not shadow, he is velcro. Can't follow simple commands or remember anything for longer than a couple of minutes. Still continent, but the hygiene is out the…
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Where do I Start?
I need to figure out where to start. I’ve got to have some extended “me” time. He drives me crazy with repeated questions, IPhone issues, wet pants, confusion, deliriums, pacing, rubbing his hands, running interference with his truck (I don’t let him drive) and scammers. My life is exhausting. I’m falling into the abyss…
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So very weary...
Visited DH today for a couple of hours. Not very responsive, couldn't get him to look toward me while taking a picture. Last week he was tapping his hands on everything (table, his legs, etc.) Now he's rubbing the palms of his hands constantly. Then he started rubbing my hands. Aide says he is eating everything but has to…