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Whom do I believe? My Mom or the caretaker?
Hi Everyone! I'm new to this community. This is my first post. My Dad passed away last fall and I had to take over as my Mom's caretaker. She has dementia and I am her POA and only living relative who is able and willing to take care of her. I have been very overwhelmed taking care of my Mom since my Dad died, especially…
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Not sure what to do.
Im taking care of my grandma who has been diagnosed with dementia, i started taking care of her since i turned 18, this really wasn’t a choice for me but im here and im trying my best everyday however there are things that are popping up making it difficult for me to care for her and i need help, she argues all the time i…
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Feeling Fragile
I feel so sad. My DH of 54 years has VD stage 5 or 6 our partnership over the years has been so strong, we've worked together in our own business, sailed together, flown together, had our children together, and always relied on and supported each other, and now it's just me calling all the shots. I love him dearly and I am…
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Self-care (for the caregivers)
I'm helping to care for a parent (ALZ) with my sister. Mom even lives in a retirement community (still independent living) so day to day I do have my own life. It is still so hard. I went to visit for lunch today and now feel exhausted and can't refocus on work. I can't even imagine how much more difficult if I had her in…
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Eating and eating and eating
I know this topic can’t only be something that I’m dealing with. Some background here my fiancé and myself moved in with his grandfather a year ago whose health had deteriorated tremendously in the previous year. I thought we would be temporary until he got back on track. Well I decided to remove my blinders about 2 months…
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PWD needs to go into AL, says she wants to, but won't cooperate.
I have DPOA, and I'm my PWD's only remaining kin. Once a very prim and proper woman, she now yells verbal abuse at me regularly and even curses sometimes - completely opposite her former behavior. We had toured a facility last year, and first she said she liked it, then later she said absolutely not. Recently, she's been…
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In need of support
Hi all, I’m new here, and new to supporting someone with dementia. The long and short is, my aunt has dementia. We haven’t been close, and I hadn’t seen or heard from her much in 30 years. I reconnected with her about 1.5 years ago and she was mostly lucid. She was determined to move to Colorado with me and my kids as she…
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Arguments that seem impossible to stop
Hi, alright I am new on this and taking care of my 72 year old mother. Are there any simple ways to get a person with dementia to stop arguing? Once my mother gets mad it seems impossible to get her to even attempt to think of something different. She likes to just make it seem like I have ruined her entire life and no…
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New Years Eve
How excited was I when we received an invitation to a NYE party from our Sailability Coordinator. I thought this will be great, they understand, we haven’t been out to a party for the last 4 years. When we arrived I noticed the table set for 6 that meant us, the hosts and another couple. We had perfectly cooked medium rare…
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It's been years since I've gone anywhere.
I haven't left the property in four years. I work night shifts doing chores such as feeding the farm animals. Always waiting for the cover of darkness, and have avoided daytime interactions with everyone for two and a half years. These sacrifices are what we make for our ungrateful dementia family members we care for.
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To all caregivers Merry Christmas....
Oh how the holidays have changed. Blessed are the caregivers like me.
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How to support my stepdad as primary caregiver
Hello. I am new to this platform. My mom is in Stage 6 of Alzheimer's. My stepdad is her primary caregiver. I can see that he is in over his head and is stressing out. But he is shutting out ideas for support, saying that he can't handle any more information. He is trying to do everything himself, and I can see the…
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Seeking Advise - I am 25
I am 25 and my mother was diagnosed with early onset Alzheimer’s at 60. I am new here and need help knowing what to do. She’s about in the mild/moderate stage. My father passed away 2 years ago and the only family around is my younger brother who is 22. She has a sister that lives about two hours away. Family and friends…
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I feel like I’m losing myself..
Hello everyone, I’m just seeking help. My father was diagnosed with unspecified dementia 5 years ago while I was in bootcamp. As of 2 ish years ago until current, he’s been severely violent towards my mother and my brother. He’s threatened to kill them, my mom was so scared she’d sleep in her car in the driveway. She…
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Feeling Very Alone
Hi everybody! I hope everyone is having a good day/night. I am 24 and the main care taker for my mom who is 59, she was diagnosed with Alzheimer's back in 2022. The first year since her diagnoses had been pretty uneventful, no huge changes besides getting her disability approved. She had already stopped driving and working…
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Not Sure if it’s the End
Hi all. Been caring for my aunt for almost 2 years. She’s almost in her mid-nineties and came to live with hubby and me close to 2 years ago. It’s been a rough ride, as I’m sure it has for many, here. My Aunt is almost fully incontinent now, and has frequent delusions. I have a little bit of a medical background, but…
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Anger When Family Tries To Help
Hi everyone! I wanted to reach out and see if anyone else has had experience with this and what you did to mediate it. So I am a caregiver (F25) to my mama with Alzheimer's (F60), and she is on her first big trip since her diagnosis. Her sister took her out of state to visit other family members and my mom is having a…
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Just crappie day
You wake up in a good mood. DH is so negative. You carry on. Try to get him in better mood in nope. Dh complains his tv is not working right. I work it fine explain to him what to do. DH tries again can't do it. Worse mood. Think I'll take a ride! Just me complaining.
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Trying to Do What is Best
We are about to hit the wall with rehab discharge and getting my mom into AL instead of letting her return to her IL apartment. This is going to be very hard since her perception of her abilities and safety issues does not align with reality and she is itching to get back to her bridge games and friends. She has a left arm…
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Respite care services Denver, CO?
Hi- new to this space. My mother was recently diagnosed with beginning stage Alzheimer's and capgras. My father is the primary care partner at the moment and he needs respite. Does anyone know of an assisted living facility in the area that will do short term respite care? Thanks!
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For my auntie
Just joined, walking in Tinley Park Saturday, interested in starting a support group at a wellness comm center.
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A few days ago things were manageable, but then the wheels fell off
My DH has had Lewy Body dementia for 4 years now. He is 85, I'm 75. Up until just recently, we've been doing pretty well. I was even able to leave him at home alone while I work (just 3-4 hours a day in the morning). A few days ago, it was like someone pulled a switch. He has always been very verbal, but now won't stop…
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Struggling Only Child
Hi ya'll, I've recently become a caregiver at the age of 29 as an only child for my father with dementia who is 74. He was diagnosed back in December 2023 with very little notice and had to be moved into a memory care close to my home - I work a full time job and am unable to stop working. It's just him and myself in our…
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DH now stage 6
my DH is now stage six. I’m exhausted physically and mentally. He hallucinates, delusional, wanders, paranoid, agitated and confused. The speech is so bad. He can say a word and make a somewhat sentence but cannot put two sentences together to make a thought. He sometimes thinks his children are small. He asked me to tell…
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Scared
Hi everybody. My loved one with Alzheimer's Disease is my dear mama and I am her main caretaker. I've posted a few times already in here and the support that I receive means more than any of you could possibly know. Todays discussion is just me talking about how scared I am about off this. I mean, when I was a kid and I…
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Long vent, sorry in advance...
In 2021 my grandparents moved my great aunt into the same apartment complex as me, less than a year after my mother passed away suddenly (and without warning) back in 2020. I was instantly forced into caring for my aunt without any sort of discussion. So now I am 35 and am currently the main caretaker for my 94 year old…
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She is the Love of My Life, will she come back for a moment?
My DW, first showed signs of mild cog impairment during covid, July of 2020. Sill very mild what everyone thought was stress related. Then in 2/2022 we both were infected with a severe. Case of covid with brain fog, that I have been able to recover from. Not so luck has been my DW, although I have made many efforts since…
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Feeling Guilty/Stressed
Hi Everyone - first time here. My father had a stroke last March and was diagnosed with Alzheimer's/Dementia....he is around Stage 4-5. I am an only child and we had to move him in with my family....Husband and 2 kids (13 and 11). It's been a little over a year and it's really taking a toll on me. My job is being really…