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Here's what helped us <3

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LibraryAnn
LibraryAnn Member Posts: 3
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Member

Hi everyone. We recently lost my Dad after many years with Alzheimers. I wanted to share what helped us, in case it can help someone else!

1. Check to see if in home hospice care is available to your loved one - it might be available sooner than you think.

The criteria for in home hospice care are kind of complicated. In our case, my dad qualified because he had a specific combination of symptoms. But hospice care doesn't necessarily mean that your loved one is on their death bed, but that they've lost the ability to do certain things in the progression of what is, eventually, a terminal illness. Hospice care can help with toileting, dressing, bathing, and figuring out appropriate medication dosage.
"Patients are often brought onto hospice services [months after] they were eligible."
https://www.ncbi.nlm.nih.gov/books/NBK538196/

Talk with your doctor about eligibility as your loved one's symptoms change.

2. Zinnia TV

My dad suffered from hallucinations in the last year of his life. If the TV news was on, he found it very distressing, and he would often talk about figures he saw on TV for days or weeks on end. We stopped playing the news around him and got a subscription to Zinnia TV. It was calming for him —- and for me, too.

3. If your loved one likes animals, arrange for visits.

My dad loved animals. I was able to bring my dog to visit him once a week and even long after he lost the ability to recognize me, he would light up at the sight of my little pup, even temporarily releasing him from his hallucinations.

I hope these suggestions help someone out there! If you have other suggestions for things that have helped you, please comment 😁

Comments

  • harshedbuzz
    harshedbuzz Member Posts: 5,319
    Eighth Anniversary 5000 Comments 1,000 Insightfuls Reactions 1,000 Likes
    Member

    Library Ann—

    I am sorry for the loss of your dad.

    Thank you for circling back with some excellent advice. Zinnia looks like a wonderful idea. Dad was confused and frightened by most TV; this would have been a godsend to my mom.

    HB

  • akc783
    akc783 Member Posts: 14
    5 Care Reactions First Comment
    Member

    Thank you so much for the tip. I will definitely look into them. I am sorry for your loss.

  • SDianeL
    SDianeL Member Posts: 1,742
    500 Insightfuls Reactions 500 Likes 1000 Comments 500 Care Reactions
    Member

    thank you! This will help so many.

  • ReineckeB
    ReineckeB Member Posts: 9
    First Comment
    Member

    Thank you! My mom loves the news but she does seemed frightened and disturbed by the stories. I will try Zinnia to see if that is better for her.

  • lisn2cats
    lisn2cats Member Posts: 31
    10 Comments 5 Care Reactions 5 Likes
    Member

    Great tips (and I'll look into Zinnia). Question - can one be moved from AL/MC to their home for in-home hospice care. My mom isn't there yet, but I know how much she loves her home and I plan to clean out the clutter but keep everything else pretty much the way she had it.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more