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plitchfield
plitchfield Member Posts: 1
5 Care Reactions
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in Caring For a Spouse or Partner
Hi everyone, I am so relieved to have found this group. Mh (67) was diagnosed in January. Early stage of dementia. He is also a type 1 diabetic. I’m trying my best to cope and get through each day. It is hard to say the least. I say to myself, let’s have a good day! Some days are better than others. I have ordered the 36 hour book, it seems like it will be helpful. And I’m sure this group will be as well. Thanks for sharing. Just knowing I’m not alone means so much!
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  • charley0419
    charley0419 Member Posts: 476
    100 Likes 100 Care Reactions 100 Comments Second Anniversary
    Member

    book is very informative, going through same wife not very bad yet, no driving hasn’t cooked in 2 yrs very forgetful.

  • Russinator
    Russinator Member Posts: 252
    100 Likes 100 Comments Second Anniversary 25 Care Reactions
    Member

    Welcome to our group.

  • Chris20cm
    Chris20cm Member Posts: 45
    25 Care Reactions 25 Likes 10 Comments 5 Insightfuls Reactions
    Member

    Welcome! The book "Travelers to Unimaginable Lands" by Dasha Kiper is one of the best of the dozens of books I have read since DW was diagnosed 8 years ago. The insights there can be applied to ease our burden in many ways.
    Feel free to ask anything at all, there will be surprises along the way, some good and some not so good.

  • Bestillmylove
    Bestillmylove Member Posts: 10
    5 Care Reactions First Comment
    Member
    https://alzconnected.org/discussion/73473/new-to-the-group

    Hi! Welcome. My husband was diagnosed with Alzheimer a little over a year ago at the age 57. He also is Type I diabetic (he was diagnosed with type 1 Diabetes 2021) He is already at moderate stage with the Alzheimer. I am still working, so the challenges are real. I basically manage is diabetes because everything happened at once he doesn't have the cognitive ability to do so.

    This group is very helpful. Be sure to go easy on yourself!

  • midge333
    midge333 Member Posts: 535
    500 Comments 250 Likes 100 Insightfuls Reactions 100 Care Reactions
    Member

    Type 1 diabetes is a risk factor for both alzheimer's and vascular dementia. My DW has had type I diabetes since she was 8 years old. She was diagnosed with vascular dementia at the age of 60. She had had symptoms since age of 56. There are several others on this board whose spouses have type I diabetes and dementia. Perhaps we should start some type of subgroup although I would not know where to start…

  • H1235
    H1235 Member Posts: 976
    250 Likes 500 Comments 100 Insightfuls Reactions 100 Care Reactions
    Member

    Welcome. This article is very informative.

    https://www.smashwords.com/extreader/read/210580/1/understanding-the-dementia-experience#hlangandcommun

    This staging tool is also good.


    https://static1.squarespace.com/static/6372d16ea4e02c7ce64425b7/t/63f7b80d80d8aa3e3aa4a47d/1677178894184/DBAT.pdf

  • Karen711
    Karen711 Member Posts: 149
    100 Comments 25 Insightfuls Reactions 25 Likes 25 Care Reactions
    Member

    Welcome plitchfield, and sorry for the reason you had to find your way to this group. I second the recommendation for “Travelers to Unimaginable Lands”. Excellent book, very supportive of caregivers!

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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