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Getting overnight caregiver
We've been trying to take shifts watching mom overnight to make sure she doesn't slide out of bed or get stuck in the railings on the hospital bed. Thankfully she hasn't had any issue since being in the new bed and with us watching. We're still not getting enough sleep ourselves and it's starting to impact our job…
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First time posting
Hello Everyone. This is my first time posting in the forum and I thought I’d do a brief introduction. I’m a caregiver for my mom who has dementia. She just turned 73 earlier this month and she was diagnosed with dementia about 5 years ago. I work from home so I can tend to my mom. Aside from work and my mom, my days are…
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Don't Know what to do
My mom has had Dementia for a few years now and it is overwhelming at times especially when she says things like I (her daughter) or my aunt (her sister) are trying to harm her when that is not true. She doesn't even remember my name or that I am her daughter but I know it is just the disease but it still affects me at…
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Repeating the same story
My brother is in an assisted living facility and I provide in-person care 2 or 3 times a week for about 3 hours each visit, and talk on the phone daily. He repeats the same stories every time we talk (nearly word for word). For example, he will say "did you know they found salt on Mercury (slight pause) who cares!!!" Other…
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Primary Care (PC) Doctor is Undermining the Neurologist
Because Alzheimers runs significantly in my mother's family (killed my grandmother and three of her sisters), I knew as soon as I started seeing tale tell signs in my mother I knew what was happening. After many, many months I finally convinced her to see a neurologist. So I asked her doctor for recommendations for a…
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seeking advice, updates, met with private duty nursing/caregiving
Hi everyone. I'm back in my dad's "good graces" -- I know he gets jealous/upset when he thinks my mom is spending time with anyone, so I was eventually going to be the target of his ire. I gave him some space and have slowly been getting back into the usual swing of things. I've had a contact with a homecare/private duty…
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Feeling Overwhelmed
Hello, I am here to learn about this diagnosis and to get support in making choices in the best interest of my aunt as well as those of us who are caring for her. My aunt has been diagnosed with dementia with psychosis in November. She is 83. She has no spouse or children and she has been living alone in her home since my…
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some updates - meds, guardianship, new behavioral patterns
Hi everyone, hope the holidays were smooth and enjoyable for everyone. I attended my family's Thanksgiving without my Mom which was strange. I really, really like our hospice nurse and the entire staff. Through all of this experience they've been the most supportive and like... comprehensively attentive out of all the…
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Am I going crazy...
For the past 3 weeks my DH has been sleeping all day long. He hasn't been eating and has lost a lot of weight. He was diagnosed with Dementia about 6 years ago. If he gets up, it is usually about 5 pm and he rarely gets dressed. BUT now, for the last two days, he has gotten up around 3 pm and gets dressed? He has actually…
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New Here & Need to vent - Mom has Alzheimer's and Dad is stubborn...
Hi Everyone - I am so happy to find this community as I am definitely struggling with many things! I mostly just need to share and vent and I appreciate the space to do so. Here goes. My parents (married 60 years) live together in a 55+ community (independent - no outside help except family) about 30 minutes from me. My…
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PWD over-estimating their abilities - any strategies for coping?
My 94 yo mother was diagnosed with dementia last July. She is in stage 4. She lives in a CCRC. She's been there 6 years in a cottage living independently. Now we have a succession of aides coming in for various tasks, like medication management and general supervision. She complained about that a lot at first, but seems to…
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Suspected dementia: need advice
Hello! Brand new to this. Please know I'm grateful for your help. -Relocated 93 YO Mom (and elderly dog) from Florida house to indep. living near me in WA, Jan 2023. Very indep. woman; very stressful for her. -Since then, I've noticed STM loss and taken over bills. Also big changes: she has stopped her voracious reading;…
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hospice, meds, changes, etc.
Hi y'all. Just checking in and updating on the progression of things. I'm positive my dad (83, general dementia diagnosis) is transitioning to a new stage. Sleeping more, shorter attention span, eating less. He doesn't chit-chat with me like he was before. Things moved quickly with our switch to the new PCP & health group.…
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Go Home Gone wrong
have not posted for a while, spouse with moderate dementia, diagnosed two yeas ago. 11/6 somewhat normal day, trip to the store for bananas, daughter and grand kids visited to jump in leaf pile, spent more than normal amount of time out doors. had a great time. around 4PM I was taking the dog for pre dinner walk, when she…
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Want to connect with others whose parents have long-term mental health issues
I'm new here and looking to connect with people who are caring for parents with long-term mental health issues. My mother was finally diagnosed with co-occurring AD and clinical depression after a suicide attempt in December 2021. However, she has a long history of untreated mental health problems. Her depression and…
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Caring for Grandma
Good morning. I'm new here. My wife's grandmother is in mid stages of Alzheimer's and is at home. Grandpa is her primary caretaker and does not want to move her to a memory care facility. He also doesn't allow much help. My wife and I go over every couple of weeks to wash grandma's hair and try to get her into a change of…
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2 Parents with Dementia - HELP
Hello, I’m new here. I’m 31 and over the last two weeks, both of my parents have been diagnosed with Alzheimer’s/Dementia. My dad is only 56 and has ben diagnosed with mixed dementia - doctors are still trying to figure out his “unique situation” as he has no previous health conditions. He hasn’t been has a cavity before.…
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New(ish) Diagnosis and EOAD
Hello, I am a 48 year old wife whose 58 year old husband has recently been diagnosed with dementia. We are awaiting PET scan and more testing (always more testing) for a "type" of dementia. We have 2 children (21 and 18) that are in college. I started noticing symptoms a year ago, and then in February of this year he had…
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New to Forum: Introduction 👋🏻
Hi all, My partner was about 26-27 when she started to realize her mother was having difficulties recalling basic things. We are 31 now. Her mother lives independently (alone) and does not know what is happening. My partner is more or less her mother's only family. My partner's sister, her mother's other daughter, lives on…
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Mom thinks we live in an identical home across town
Mom (MIL) was diagnosed with dementia, most likely Alzheimer's, last November. My husband and I moved in with her about 2 months ago. Dad passed away last June. A number of months ago Mom would tell us about Dad working on a house across town that was identical in every way, inside and out, to her house. She marveled at it…
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More Men Are Taking Care of Aging Parents. They Feel Unprepared.
Good WSJ article here: https://www.wsj.com/health/wellness/men-caregivers-aging-parents-sons-ba7a6d71?st=2mo7qktf0ucw7yt&reflink=desktopwebshare_permalink
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Bible Verse to Lift You Up 10/14/23
Hoping all my friends here are strong in the Holy Spirit. Hugs to all, Ronnie (Veronica Kelly Badowski) FORGET THE PAST & PRESS ON Philippians 3:12-14 New Living Translation “I don’t mean to say that I have already achieved these things or that I have already reached perfection. But I press on to possess that perfection…
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New to this group and to ALZ
I'm new to this group, and DH was recently diagnosed with Alzheimer's. He is 61, and his father was diagnosed with dementia, as well. I can see, now, that he has actually been struggling with symptoms for about 2 years, but I had hoped that they were simply post-surgical cognitive issues. Today, he was told by the…
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Caring for LO when they're sick
Hi everyone, I've been absent for a bit -- we hit a semi-stable routine while we wait for our appointments with the new physician's group that was recommended to us. This post is one-part me venting/unloading about the Great Excitement of the past few days and one-part seeking wisdom. For those who don't want to read the…
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Safe Decongestants/pain relievers
New guy here. My dad and I have been taking care of my mom for about six years now. She has dementia, not Alzheimers specifically. I'm looking for recommendations for over the counter meds that are safe for her to take for runny noses and aches and pains. Google has given me unhelpful and contradictory info. Any help…
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Moving my folks into my house
My dear mom (DM) has Alzheimer's. My dear dad (DD) is her primary caregiver. They are both in their mid-eighties. We live in the same town, as does my sister and my brother. I assist my DD care for DM, plus a caregiver comes in 3 days a week. Additionally, DM attends a day program 2 days a week. Three years ago, I had my…
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How to communicate with a parent in denial
Hello! Rather abruptly it has become clear my mom will need to be in MC for at least the immediate short term, or even longer. She had an episode of delirium after attempting to travel solo to a family member, and while she has largely recovered, her baseline is way worse than before this episode. She was released from the…
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Institute of Aging's Companioa program
Has anyone used Companioa, a program where the goal is to stay at home (as opposed to AL or MC), by using a combination of "care coaching" for caregivers, some home care, adult day care, and care management (medication, medical appointments, etc.). It seems to be a middle ground between 1) doing caregiving totally on your…
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Trouble helping my mother
My mom has been diagnosed with dementia for quite some time. She can't communicate with us properly, she can't do anything by herself yet we can't help her with everything since she isn't communicating back to us when we ask her. It's even the basic things like food, she can't give me or any of us an answer that we can…
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Care Taker Under 30
Hello to all! I'm making my first post here to try and gain some insight from people who are in a similar position as I. My mom is not even 60 yet, but she was diagnosed with Alzheimer's (early stage thankfully) back in 2022, so this is all still fairly new as we both adjust to our new realities. It's been quite difficult…