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Sandwich generation - having a baby while caregiving for dementia
Hi everyone, I have posted a few times here before and this forum has been so helpful. My dad (77, mid stage 5) moved to memory care in September. He has adjusted really well. He doesn't remember home or ask to leave, he is always engaged in activities when I visit, the staff love him, and I think he has made some friends…
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Dreading today
Hi All- New to this forum. Thanks everyone for being open and offered support. Makes you realize there are so many of us in the same boat. Caring for my homebound/immobile Mother for the past two years. Diagnosis of Dementia/AlzD/Lewy........even the experts can't figure this thing out. Mom took a turn Saturday morning and…
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Chemical sedation?
My dad (77) has Alzheimer's and is now in a VA-supported nursing home after a number of scary hospitalizations left us with no real alternatives. Recently I was visiting and found him sound asleep. I waited for over 30 minutes, making some noise here and there but he didn't wake. Eventually I went out to talk to one of the…
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Father has AD and I am looking for support
Hello all. Noob here, but I have been taking care of my dad for 5 days per week for the past 10 weeks and am getting some burnout(I am running two households in winter and it's suddenly become nearly overwhelming) I was doing quite well until this past weekend when everything hit me. He's at home as yet, and doesn't need a…
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Administering my moms meds by a non-medical caregiver
My mom has been dealing with Alzheimer’s/Dementia for the last 6 years. She is now end stage and has 24/7 care. I have her medication made up in little pouches and the caregiver were crushing and mixing with apple sauce. I just learned that the agency does not allow the caregivers to crush or mix with food. I do t know…
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New… Dealing with Mom’s Hallucinations
My mom is in her 60s and her pcp says she is having brain slips and in stages of dementia. I am trying to get her seen by a neurologist and someone recently recommended a geriatric psychiatrist as an alternative for an assessment. It has been 3 months since the diagnosis and she was given an antidepressant. She is now…
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New
Hi All- Just found this site and wanting to learn. Wife was practicing Endocrinologist diagnosed in april 2023. Lost all income and moved to another state to be closer to family. She is only 57. We were not ready for this-- Financially or emotionally. Finally able to find a house so settling in, but just overwhelmed with…
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Skilled Nursing Facilities
Many of us could write a book! I have been a caregiver for my brother for the past year when he 'crashed' with Dementia. He's been diagnosed with Frontotemporal Dementia. He was repeating himself for years but 1500 miles between us made me quite in denial I guess of how he was progressing. In september '22 I flew to him…
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finally bringing in caregiver help
Hi everyone, back after a bit of an absence! My Mom is starting her new job, and I really ought to start going back into the office when I'm able to, so we've finally reached the point where we need to bring in outside help to keep an eye on my dad and be available to help when we're not able to. My parents' house is tiny,…
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Obtaining POA in NYS
Hello everybody! I am stuck on how to obtain POA over my mother in NYS. There is so much info on all the different types of POA's my head is spinning. I know the easiest way would be to hire a lawyer, but I don't think I have the money for that. There are tons of "free" templates online, but they're never actually free.…
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New caregiver group reminder
Just a reminder that I started a group to capture the information regularly shared with new caregivers. I added some sites and documents that are often shared (Tam Cummings Handouts, for example) and started a few discussion threads where I thought we could add useful member posts so they're easier to find later. This site…
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New caregiver group reminder
Just a reminder that I started a group to capture the information regularly shared with new caregivers. I added some sites and documents that are often shared (Tam Cummings Handouts, for example) and started a few discussion threads where I thought we could add useful member posts so they're easier to find later. This site…
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Need help but don't know what to do
My grandfather is 84 years old and has had dementia for years now but has recently been declining rapidly so I moved him into my house where my mother takes care of him. He has hospice care so nurses show up twice a week to asess him but thats the only care they provide .She quit her job because he needs fulltime support…
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Venting
It's been 4 months since my mom moved here to my neck of the woods. She moved away from her home of 40 years, her things, her friends, the sunshine, warmth and the ocean. She was worried that when the time came, when dementia was in full swing and she was stuck in SC, she would be all alone. Yet, she's so very unhappy…
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It feels like there are no good choices
Hello, I'm new here. I originally posted in the caregiver group, but I don't think it's very active. I could use some support. My mother with Alzheimers lives with my 89 yr old father in an Assisted Living facility nearby. She is still full of life. She is the sweetest and most loving mother. We still have a wonderful time…
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Late stage/seventh stage care
I'm fairly sure mom's completely in the last stage now, no longer straddling six and seven. I'm trying to find resources on what exactly her care needs are for this stage in life because it's vastly different than anything I've been through before. I have tried some web searches but they all seem rather vague and general…
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Getting overnight caregiver
We've been trying to take shifts watching mom overnight to make sure she doesn't slide out of bed or get stuck in the railings on the hospital bed. Thankfully she hasn't had any issue since being in the new bed and with us watching. We're still not getting enough sleep ourselves and it's starting to impact our job…
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First time posting
Hello Everyone. This is my first time posting in the forum and I thought I’d do a brief introduction. I’m a caregiver for my mom who has dementia. She just turned 73 earlier this month and she was diagnosed with dementia about 5 years ago. I work from home so I can tend to my mom. Aside from work and my mom, my days are…
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Don't Know what to do
My mom has had Dementia for a few years now and it is overwhelming at times especially when she says things like I (her daughter) or my aunt (her sister) are trying to harm her when that is not true. She doesn't even remember my name or that I am her daughter but I know it is just the disease but it still affects me at…
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Repeating the same story
My brother is in an assisted living facility and I provide in-person care 2 or 3 times a week for about 3 hours each visit, and talk on the phone daily. He repeats the same stories every time we talk (nearly word for word). For example, he will say "did you know they found salt on Mercury (slight pause) who cares!!!" Other…
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Primary Care (PC) Doctor is Undermining the Neurologist
Because Alzheimers runs significantly in my mother's family (killed my grandmother and three of her sisters), I knew as soon as I started seeing tale tell signs in my mother I knew what was happening. After many, many months I finally convinced her to see a neurologist. So I asked her doctor for recommendations for a…
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seeking advice, updates, met with private duty nursing/caregiving
Hi everyone. I'm back in my dad's "good graces" -- I know he gets jealous/upset when he thinks my mom is spending time with anyone, so I was eventually going to be the target of his ire. I gave him some space and have slowly been getting back into the usual swing of things. I've had a contact with a homecare/private duty…
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Feeling Overwhelmed
Hello, I am here to learn about this diagnosis and to get support in making choices in the best interest of my aunt as well as those of us who are caring for her. My aunt has been diagnosed with dementia with psychosis in November. She is 83. She has no spouse or children and she has been living alone in her home since my…
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some updates - meds, guardianship, new behavioral patterns
Hi everyone, hope the holidays were smooth and enjoyable for everyone. I attended my family's Thanksgiving without my Mom which was strange. I really, really like our hospice nurse and the entire staff. Through all of this experience they've been the most supportive and like... comprehensively attentive out of all the…
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Am I going crazy...
For the past 3 weeks my DH has been sleeping all day long. He hasn't been eating and has lost a lot of weight. He was diagnosed with Dementia about 6 years ago. If he gets up, it is usually about 5 pm and he rarely gets dressed. BUT now, for the last two days, he has gotten up around 3 pm and gets dressed? He has actually…
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New Here & Need to vent - Mom has Alzheimer's and Dad is stubborn...
Hi Everyone - I am so happy to find this community as I am definitely struggling with many things! I mostly just need to share and vent and I appreciate the space to do so. Here goes. My parents (married 60 years) live together in a 55+ community (independent - no outside help except family) about 30 minutes from me. My…
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PWD over-estimating their abilities - any strategies for coping?
My 94 yo mother was diagnosed with dementia last July. She is in stage 4. She lives in a CCRC. She's been there 6 years in a cottage living independently. Now we have a succession of aides coming in for various tasks, like medication management and general supervision. She complained about that a lot at first, but seems to…
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Suspected dementia: need advice
Hello! Brand new to this. Please know I'm grateful for your help. -Relocated 93 YO Mom (and elderly dog) from Florida house to indep. living near me in WA, Jan 2023. Very indep. woman; very stressful for her. -Since then, I've noticed STM loss and taken over bills. Also big changes: she has stopped her voracious reading;…
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hospice, meds, changes, etc.
Hi y'all. Just checking in and updating on the progression of things. I'm positive my dad (83, general dementia diagnosis) is transitioning to a new stage. Sleeping more, shorter attention span, eating less. He doesn't chit-chat with me like he was before. Things moved quickly with our switch to the new PCP & health group.…