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Advice!!
I am new to the group and need advice. My Mom has late stages Alzheimer’s and has been able to be alone for part of the day while I work. This week every day she has been scared, anxious and leaves the house and then cannot figure out how to get back. I have a caregiver but she only comes from 12 to 1 as that is all I can…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Showering /refusing/thinking they have
I am a caregiver ,been one for 5 years. I have not ever came across anyone with this type of situation before. My client refuses to shower. She states that she already has taken one either morning or night but has not. Family has cameras up that proves she does not shower. I have used many tactics as to we can go to dinner…
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Advice for Going Back to Work
I took FMLA for a year to assist with the new diagnosis of Alzheimers for my mom. It was intermittent FMLA so while I still worked, I was able to take off for appointments, my own mental health, and days that seemed like my mom just needed someone to be with her. I was averaging about 20 hours a week rather than my full 40…
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Providing Support for my Family
Hi, I am looking for some advice. For some background, my mom (58) was recently diagnosed with EOA. She no longer works and is home during the day with my brother (28 with down syndrome). My dad lives with them, but works full time. I (25) live nearby with my fiancé and I also work full time. My mom is obviously going…
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New To Forum. Mom has UTI that has progressed dementia symptoms
Hi all. I'm 34 & I've been my mom's primary caregiver since I was 22. For the past decade, she's had some memory problems (misplacing things, forgetting what day it is, forgetting how to navigate some driving routes, forgetting there's a boiling pan on the stove). Yet this was always managable with my help until recently.…
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Falling Apart Caring for my Mom
Hello. I am not doing well. My dad had Alzheimers in the last 7 years of his life, and I cared for him. I thought that was all over when he died in 2017. Then in 2020, it started all over again with my mom. It's been 5 years now, and I'm going absolutely bonkers. My life is falling apart caring for her. Almost everything…
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no meds
My DW was diagnosed with dementia of the altzheimer type frontal lobe complicated by depression. The main concern that I have is I do not know how to help her take her meds. When I offer she either becomrs very agitated with the final statement that she is stupid or says she will. She was given 24 amocycilin by a dentist a…
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Mother Passed Away/Car Keys
My mother passed away 3-4-25. Father was diagnosed with Alzheimer’s January 2023. He has been is early stage to date. Still takes care of himself, but can’t manage bills laundry or cook. I have 2 sisters. One lives right beside him & helps a lot, but works FT. One lives within 5 blocks, helps after work. I live 2 hrs away,…
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Sandwich generation - having a baby while caregiving for dementia
Hi everyone, I have posted a few times here before and this forum has been so helpful. My dad (77, mid stage 5) moved to memory care in September. He has adjusted really well. He doesn't remember home or ask to leave, he is always engaged in activities when I visit, the staff love him, and I think he has made some friends…
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New-ish diagnosis
My father has been diagnosed with MS ALZ and it is clear that the disease is progressing rapidly. What do folks do when the families cannot afford in home care or facility care? His insurances only will cover certain things. He cannot be home alone anymore. Any tips/advice would be appreciated so much we are desperate 😔
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Sometimes I just want to hide
Hi all, been browsing thru these discussions. It nice to know I'm not alone. I'm 66 yrs old and my DW with Alts. is 68. I have allot of mental anguish for my loved one. 44 yrs of married life 2yrs of serious dementia issues. I have troubles with her sometimes telling me she doesn't know who I am-and wants me to get out of…
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Living with Alzheimer's - A Caregiver's Journey
My wife was diagnosed with early onset Alzheimer's eight years ago when she was just 60 years old. I have been her primary caregiver every day since then until her death last month. As a means to help me cope with this terrible disease I wrote a detailed journal of my experience over that entire time. The writing is in two…
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Whom do I believe? My Mom or the caretaker?
Hi Everyone! I'm new to this community. This is my first post. My Dad passed away last fall and I had to take over as my Mom's caretaker. She has dementia and I am her POA and only living relative who is able and willing to take care of her. I have been very overwhelmed taking care of my Mom since my Dad died, especially…
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Thank Your Past Self
Please take a moment and think about something you did in the past, that makes your present situation better. When I started caring for my parents, as I began each visit, I made a new note on my phone. It was always titled Thank You! Each time I benefited from one of my past actions, I put a hash tag on my note. For…
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Not sure what to do.
Im taking care of my grandma who has been diagnosed with dementia, i started taking care of her since i turned 18, this really wasn’t a choice for me but im here and im trying my best everyday however there are things that are popping up making it difficult for me to care for her and i need help, she argues all the time i…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Feel Lost, Need Advice with Mom's Dementia/Alzheimers, Living and Depression
Mom was diagnosed 3 years ago with dementia. We believe she is about 5 - 6 years into it though. She also has severe depression, diagnosed 30 years ago. She is in an AL, but absolutely hates the place. This is her 4th home in 3 years, and the smallest so far (IL, AL, MC, AL). She is again in a severe depression, they seem…
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Not taking it well...
Hi, I am totally new to this...writing and my husband behavior. I also have a hard time with sharing about our life but my daughter told me...mom find some group for your self I can't help you. My husband developed sings of dementia last year in february which we didn't noticed right away. It has been getting slowly…
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Losing/hiding things
Mom (87) was recently diagnosed and declining rapidly. I’ve been staying with her and dad for extended periods of time to help while she adjusts to new meds. She doesn’t recognize items around the house-cooking utensils, her own clothes, linens, food in the cabinets/refrigerator and I have many times “claimed” them as mine…
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Worried about return to workplace
I don't know if I'm the only one here who is a Fed. But now with the return to the workplace my sister and I are scrambling trying to figure out the best way someone can be with mom during the day that is affordable. Everything is so stressful with the info coming from above changing daily - sometimes hourly. I don't know…
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Social security disability claim denied
UPDATE 2/20/25: the local office was closed because of a snow storm (no more working from home I guess) so we called the national line and waited on hold for 2 hours (yes that’s right, can’t wait to see if AI decreases wait times in the future) just to find out that the person on the phone didn’t seem to be able to find…
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Eating and eating and eating
I know this topic can’t only be something that I’m dealing with. Some background here my fiancé and myself moved in with his grandfather a year ago whose health had deteriorated tremendously in the previous year. I thought we would be temporary until he got back on track. Well I decided to remove my blinders about 2 months…
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Medicare and Leqembi
Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…
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Primary Care partner having trouble getting sibling help
New to all of this, and just looking for some support. Mom (75f) been on cognitive decline for several years and recently diagnosed with dementia. I (43F) have recently moved back home to help care for both her and Dad (80M). It can be A LOT. I'm having a hard time controlling my frustration with a siblings who just can't…
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Expectations of Employed Caregivers
My wife is stage 5-6 AD and at home. She is mobile, can communicate, although usually not correctly, still uses utensils to eat, is not incontinent, enjoys social time with others (not so much with me but that is not unexpected), exhibits confusion, anxiety and agitation. Medication has helped with the agitation and…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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From Maybe to Reality
DH in ES thought. Then, several episodes of mis-rememering, including asking our adult son if he remembered a certain episode from his (DH's) youth. For the past 3 weeks he has been just fine, more or less, just the occasional lost word. In my mind I knew he still had Alz, but it just seemed like , well, maybe it will be a…
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In need of support
Hi all, I’m new here, and new to supporting someone with dementia. The long and short is, my aunt has dementia. We haven’t been close, and I hadn’t seen or heard from her much in 30 years. I reconnected with her about 1.5 years ago and she was mostly lucid. She was determined to move to Colorado with me and my kids as she…