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Not taking it well...
Hi, I am totally new to this...writing and my husband behavior. I also have a hard time with sharing about our life but my daughter told me...mom find some group for your self I can't help you. My husband developed sings of dementia last year in february which we didn't noticed right away. It has been getting slowly…
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Losing/hiding things
Mom (87) was recently diagnosed and declining rapidly. I’ve been staying with her and dad for extended periods of time to help while she adjusts to new meds. She doesn’t recognize items around the house-cooking utensils, her own clothes, linens, food in the cabinets/refrigerator and I have many times “claimed” them as mine…
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Worried about return to workplace
I don't know if I'm the only one here who is a Fed. But now with the return to the workplace my sister and I are scrambling trying to figure out the best way someone can be with mom during the day that is affordable. Everything is so stressful with the info coming from above changing daily - sometimes hourly. I don't know…
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Social security disability claim denied
UPDATE 2/20/25: the local office was closed because of a snow storm (no more working from home I guess) so we called the national line and waited on hold for 2 hours (yes that’s right, can’t wait to see if AI decreases wait times in the future) just to find out that the person on the phone didn’t seem to be able to find…
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Eating and eating and eating
I know this topic can’t only be something that I’m dealing with. Some background here my fiancé and myself moved in with his grandfather a year ago whose health had deteriorated tremendously in the previous year. I thought we would be temporary until he got back on track. Well I decided to remove my blinders about 2 months…
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Medicare and Leqembi
Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…
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Primary Care partner having trouble getting sibling help
New to all of this, and just looking for some support. Mom (75f) been on cognitive decline for several years and recently diagnosed with dementia. I (43F) have recently moved back home to help care for both her and Dad (80M). It can be A LOT. I'm having a hard time controlling my frustration with a siblings who just can't…
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Expectations of Employed Caregivers
My wife is stage 5-6 AD and at home. She is mobile, can communicate, although usually not correctly, still uses utensils to eat, is not incontinent, enjoys social time with others (not so much with me but that is not unexpected), exhibits confusion, anxiety and agitation. Medication has helped with the agitation and…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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From Maybe to Reality
DH in ES thought. Then, several episodes of mis-rememering, including asking our adult son if he remembered a certain episode from his (DH's) youth. For the past 3 weeks he has been just fine, more or less, just the occasional lost word. In my mind I knew he still had Alz, but it just seemed like , well, maybe it will be a…
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In need of support
Hi all, I’m new here, and new to supporting someone with dementia. The long and short is, my aunt has dementia. We haven’t been close, and I hadn’t seen or heard from her much in 30 years. I reconnected with her about 1.5 years ago and she was mostly lucid. She was determined to move to Colorado with me and my kids as she…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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Arguments that seem impossible to stop
Hi, alright I am new on this and taking care of my 72 year old mother. Are there any simple ways to get a person with dementia to stop arguing? Once my mother gets mad it seems impossible to get her to even attempt to think of something different. She likes to just make it seem like I have ruined her entire life and no…
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Did I Give Up Too Soon?
Following a violent outburst (mom attacked her in home caregiver) when she had a UTI, I made the difficult decision to place mom in MC. Tomorrow will be 2 weeks. She is more lucid than the other residents in her MC, but 'loops' verbally a lot, and it is clear that there's significant decline within the past 3 months. I am…
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Timeline
Took my mom to her appointment on Thursday and we were given an estimate of how long we have with her and I just don’t believe it. She still walks and talks. Yes, she needs care with showing and toileting and only sometimes how to eat. But has so much personality still. Has anyone ever got an estimate and how accurate was…
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Supporting both parents
Both my parents (79 and 78) live with us in their own attached apartment. My mom (79) is in the very early stages and is still very active. My dad is struggling with her memory changes and becomes angry and frustrated with her. I am looking for how best to support my dad wand how best to support myself as we navigate this…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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New Years Eve
How excited was I when we received an invitation to a NYE party from our Sailability Coordinator. I thought this will be great, they understand, we haven’t been out to a party for the last 4 years. When we arrived I noticed the table set for 6 that meant us, the hosts and another couple. We had perfectly cooked medium rare…
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Getting my mom to her doctor appointment
I made my mom a Neurology appointment on 1/13. My dad is worried that if she finds out she'll have a total breakdown. So far she doesn't seem to have gotten any notifications about it, but she likely will get a text and/or email reminder for it. If we can even make it to the appointment day without her finding out and…
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Hypnagogic hallucinations
My wife told me she's been having trouble when trying to fall asleep because she's seeing things like vivid scenes of people and something like static on an old TV. We did a Google search and it sounds like hypnagogic hallucinations. We haven't been able to find any connection with MCI or dementia. But this is something…
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Rapid Progressive Dementia/Covid19 Related
MY DW passed on 12/06. After a relatively short, but intensely difficult journey. We did not have a confirmed diagnosis, as the tests were all negative and normal for her age. Her health eas rest of a healthy 45 year old, had not had any hospitalizations, rarely sick with a cold. Sometimes allergies. P. She wa sky…
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Dealing with addiction
Hello all, I'm new to this community so I'm not sure on the etiquette but I desperately need help. I recently had to take on the caregiver role for my grandfather. It's mostly okay I'm learning to handle all kinds of things I never knew I could do but I am struggling to deal with his addictions. He drinks and smokes…
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Change of living arrangements
Hi all, first time posting on one of these discussion boards but hoping for some help to support my partner as she navigate’s her grandmother’s dementia. Grandma (in her late 80s) has had several strokes which have accelerated dementia symptoms. Until recently she had been able to live somewhat independently in her own…
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Apparently dementia can cause Grinchiness
DH took down the Christmas tree I put up last week while I was in the shower. He had been complaining about it being up. He took it off the table and put it by the back door. It was a small fake tree. I am so thankful that none of our beautiful ornaments were broken. I put the tree away but left some ornaments out and hung…
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To all caregivers Merry Christmas....
Oh how the holidays have changed. Blessed are the caregivers like me.
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New Here - 33 looking for support for mother diagnosed with AD
I am not normally one to reach out for support in this format but I feel very isolated in my mother’s recent Alzheimer’s diagnosis. We have seen her condition worsen over the last few years and last year there was a huge red flag for us when she couldn’t remember opening gifts at Christmas. I was 2 weeks postpartum and…
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From the NYT: The Lives They Led
This end-of-year article includes a section on Naomi Feil. You'll need to scroll down quite a bit to find it. https://www.nytimes.com/interactive/2024/12/20/magazine/people-who-died.html?unlocked_article_code=1.jE4.z51J.efbTs9_Va8M0&smid=url-share
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Daughter helping care of DW
I searched all over for comments about my daughter helping me care for my DW. Most of what I saw were complaints/concerns about lack of help. So is it reasonable for me to think that we can do it? And for how long? DW was diagnosed MCI in 2016 and AD 2018. Age 73. Behaviors don't perfectly fit a stage, but it is probably…
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Help needed… grandfather thinks he fell in love with a nurse and had a big outburst, dementia?
I'll try to keep this as short as possible. My grandfather recently had a toe amputated about two weeks ago as it became infected (diabetic). He had to then come home on IV antibiotics, that I was to administer (i'm his grandson and POA). One day when I went to visit, a few days after the surgery, he had a nurse in his…
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Guns
Hi my father is in the early stages of Alzheimer’s. We live in rural Alaska and he has always had an arsenal of guns in our home. He always carries one with him everywhere we go. He hasn’t given me any reason or worries about his guns. He also hasn’t shot them in almost year or so. But I know there is going to be a day…