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Bible Verse to Lift You Up 5/15/26
GOOD FRUIT Galatians 5:22-23 New Living Translation 22 But the Holy Spirit produces this kind of fruit in our lives: love, joy, peace, patience, kindness, goodness, faithfulness, 23 gentleness, and self-control. There is no law against these things! When I was a caregiver, I wasn’t perfect but the Holy Spirit’s fruit…
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Dad recently diagnosed
Hello all. I’m so grateful for these groups. I’m just beginning my Dads journey and I’m alone and need guidance please !!! I am a paramedic for 35 years and have a lot of medical experience but I have ZERO experience with this disease. From what I’m learning this disease follows no normal patterns. I feel like a rookie…
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Alzheimers and Christian Science
My "mother in law" (boyfriend's mother) was recently diagnosed with Alzheimers. We've had suspicions for a while. As we are starting to navigate more caregiving with her around this, we consistently run into tension around her faith, Christian Science. She basically believes it's mind over matter, she will be healed thru…
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Occupying Time
My father has recently lost the ability to drive and is particularly bored. My mom is home with him, but I know it's taxing for her, and all the children are located elsewhere, so we can't support. Can anyone offer suggestions so he isn't just on his phone all day?
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I lost my mother thirty years ago ...
Right away I found that sharing my story online helped me begin to heal. I started a website in her memory that is still around, although it is in need of updating, and I'm trying to work on that as I have time. It's still here: https://www.zarcrom.com/users/yeartorem/ Also, I will be walking this fall for my 29th year in…
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Shock at seeing the reality of dementia
Our local library held its first Memory Cafe yesterday…for caretakers of people with dementia and their partner. My DH is in early Stage 4 and seems "normal" most of the time. There were several people there who were quite advanced in dementia. Although I have read everything about dementia and watched numerous videos, I…
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Sleeping in everything
He's wanting to wear his glasses and sneakers to bed. The glasses press into his skin and irritate it if he does keep them on in the night. He has very oily skin so it builds up under the glasses as well. The sneakers aren't bothering his skin right now but I do worry that they may contribute to pressure sores in the…
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Cell Phone
My father is starting to experience issues with the phone and keeps calling 911, as he thinks he needs to turn his phone off after every use. I really don't want to get rid of it as we're just 2 months past taking away his car which has been a hard adjustment. Any advice?
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Downsizing While Caring for a Spouse with Alzheimer’s — Has Anyone Done This?
Hi everyone, My dad (65) has Alzheimer’s and is slowly declining. At this point, he can’t prepare meals beyond grabbing something simple, and he needs help or reminders with personal care like shaving and showering. His speech and understanding are very limited, and while he’s still in good spirits, his independence has…
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2 years in since crisis mode
Dear Community, Thinking of you all this morning and the support you've so graciously given here. Today I am reflecting and processing. Some days are for surviving. Some days are for crying. Some days are blurs of exhaustion and overwhelm and confusion and grasping for hope and help. Today is not those days for me. Today I…
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Mom (92) mod/sev dementia … suggestions PLEASE
hello … mom (92) has lived with us for 10years but there’s been a gradual decline up until maybe the last year or so … it has gotten worse. i work out of the home so i am pretty much available to her for whatever she needs & at this point i am providing (or assisting/reminding) everything. my husband /my self … our 3boys…
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DEMENTIA WITH GRACE - book & videos on Youtube
I saw this on a podcast and thought it would be helpful to so many. The book is available on Amazon or the link below is for the Youtube videos https://www.youtube.com/c/dementiawithgrace
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Potential PoA Challenge
I have PoA (financial and medical) for my LO with dementia. Other family members and I have a difference of opinion on where my LO should live. I’m just trying to honor my LO’s wishes as long as it’s feasible. I received communications from these family members that make me think they are gearing up to challenge my…
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Wants me near always
My husband only wants me with him to care for him - no relatives or caregivers. He wants me around all the time and if I leave the house, he forgets where I am and thinks I am dead, even with reminders from the relative or caregiver with him. He worries the whole time I am gone. I am his everything, which is a lot to…
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Young diagnosis of early onset ALZwgat to do first?
I’m a new member. My husband (48) was diagnosed Ed last week with Early AZ via blood test and pet scan. What do I do now?? I’m lost. Sad. Angry and need a path.
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Bathroom accidents
Hi everyone. My mother is the primary caregiver for my father, who has Alzheimer’s that has been progressing quickly. We need some advice. Over the past few months, he has started having significant difficulties with toileting hygiene. He’ll use the bathroom but is no longer able to complete the wiping process — usually…
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Witness of My Mother’s Passing
This piece is a witness to my mother’s final days with Alzheimer’s. I wrote it some time ago, but I wasn’t ready to share it until now. For privacy, I’ve changed names and identifying details, including her last name and the town where we lived. This piece includes honest descriptions of the dying process, including…
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I needed an outlet to rant sorry I rambled
I am 25 and I quit my job about a year ago to help my parents take care of my grandmother with Alzheimer's. She lives with my parents but I do not live with them. I take care of my grandmother during the day and anytime my parents need help on the weekends, which isn't too much. Lately she's become very combative and…
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Fluctuating hearing
Does anyone have experience with their LO having fluctuating hearing loss? My DH with AL does have hearing loss, but has been able to understand me if I speak just a little louder than normal. But, lately, there have been several days when he hasn't heard me or everything is garbled for him. I cannot tell if he is actually…
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I need advice - My husband with dementia keeps scissors for 'protection'
My husband has dementia and has become very focused on keeping a pair of scissors with him because he believes he may need them if an intruder comes into the house. He keeps them close at all times, carries them in his back pocket, and even sleeps with them. I have thought about taking them away while he is in the shower,…
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Caregiving Song
When your wife is diagnosed with Alzheimer's and you dedicate your life staying with her at a nursing home. This song is written for both of us. Being a caregiver is not easy, this is my way of coping with the everyday stress. Hopefully, you enjoy the song as much as I did making it.…
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New member. Caring for DH
My DH is somewhere between early and middle stage. He was diagnosed in 2022, at age 71, 13 months after my mother died of Alzheimer’s (she stopped taking nourishment) at the age of 93. That was a nightmare because it was Covid with my mom and no paid caregivers were available when she started needing 24 h caregiving so it…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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New member, helping my parents
My mom has Alzheimer's - stage 4 or possibly stage 5 (somewhere in between?) - clearly at the stage where she needs extra help but is incredibly resistant to accepting any help outside of family. She will basically scream about how accepting help will make her decline faster… etc (she was an RN for years and has experience…
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Dementia needs
My DH was diagnosed 9 yrs ago with early onset dementia and just recently with Parkinson. I've made the following purchases which have made both our lives better. A small,lightweight wheelchair from Amazon, adult bibs, washable mattress pads, a bedrail, satin sheets and silk pajamas to help him slide in and out of bed. I…
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Sleeping 12 hours a night
DH was diagnosed two years ago, but has likely been impacted for 6 years. He was quite accomplished, so he was able to “cover” for many of symptoms as he declined. While ALZ runs in his family (grandfather, father, aunt, uncle, but not his brothers - yet) DH was able to make it to age 60+ without symptoms. For most of our…
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On the verge of a nervous breakdown
Hi everyone I am new here and not sure what to say or even where to start I just feel like I am losing my sanity. I do not know if I am the only person this type of situation has ever happened to or if I really am going crazy. It is a complex story; 7 years ago, I moved in with my mom who had had a stroke and was in the…
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Mom with Parkinson’s dementia LTC guilt
Hello. This is my first time posting. My Mom is in LTC. She’s been there 6 months after a fall. She guilts me and wants me to let her go home. She cried today because she doesn’t think she belongs there. Her bf is wanting her to go back home too, though he complained when she lived in the home about how difficult it was.…
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NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…