-
Delusions have started for my PWD and I feel lost
Hi, I am the grand daughter and I help give care to my PWD. She has mid stage altzeimers dementia.I've noticed she's started to remeber false memories that didn't happen. She's started to see "animals" that aren't there. this is new. I've noticed this within the last month. How do I go about handling this? What should my…
-
If you are not convienced, let me share this...
Most caregivers know that you should plan as early as you can. And plan for contingencies. Murphy follows Alzheimer's around like a puppy dog. (Murphy's law that says if anything can go wrong, it will.) My 81-year-old DW was officially diagnosed two years ago. She is now in stage 4 or 5, depending… She needed hip…
-
The Fall
Probably the worst situation possible…91 year old with Alzheimer's now with a broken femur… http://simplebender.com/2024/08/17/joy-in-alzheimers-episode-47-the-fall/
-
Siblings involvement in parental care
Does anyone who is caring for their parents have siblings who choose not to be involved and how do you deal with it?
-
Mom With EOAD Lacks Motivation
Hi, I’m grateful to have come across this resource. Last year, my mother (60 years old at the time) was diagnosed with EOAD. While the diagnosis came as a shock for someone of her age, we were noticing a decline in her cognitive functions, particular with regards to time (not knowing what day it is, showing up to to…
-
Move done , blocked phone
Well the move went well as planned into AL. She seemed happy , all be it tired after all the activity she’s not been used to. We did have an issue with the room mate. Per the director the roommate understood the common areas would be shared but she wasn’t going to have it. Thank goodness her family paid for a single suite…
-
Uncomfortable question
My DH watched his parents both go through Alzheimer's/Dementia and it terrified him. He always said "if I ever get like that please let me take my life". He was serious. Now he is at the beginning of this awful disease and on numerous occasions he has said to please let him take his life and "please don't let me live like…
-
Performing a COVID-19 Nasal swab test for PWD
PWD was previously aware of what a nasal swab for an antigen test was for, and performed the nasal swab by oneself (I did the rest of the test) This week, I was asked what the test was for, and I explained; I handed the swab and how many times to turn in each nostril. PWD did that, and then tried to wipe the swab tip on a…
-
Asking for help( caring for a loved oned showing signs of dementia)
Hello everyone, Me & my mom would like some advice. We are currently caring for my grandma & she has been showing signs of dementia. We have been to multiple doctor appointments, just waiting to hear the results. Even though she hasn’t been diagnosed, we’re pretty sure it’s dementia being that in runs on her side of her…
-
Early onset VD/Alzhiemer’s
Hi all, glad I found this community. I haven’t met anyone I can relate to about my situation and it would be nice to have someone to talk to that understands. I brought my mother to the hospital the day before her 59th birthday because she was barely able to walk, could only move one eye, stroke-like symptoms. When she…
-
When he can't stand up anymore
My dad is 81 with dementia and heart failure. He is in hospice at home. My mom (81) and myself ( I'm 50 and have severe treatment resistant depression and physical disabilities) care for him. Twice a week a nurse comes to check on him for 15 min. He is no longer able to walk; he can stand briefly with a walker so we can…
-
Rapid onset Alzheimer’s
I’ve only heard of Rapid Onset Alzheimer’s once. Can anyone tell me if there are guidelines or timelines it follows. My DH was diagnosed two years ago and seems to constantly be on a downward slope. I keep thinking there will be a plateau but he hasn’t found one yet.
-
Doctor appointments
Hi all, My mom (69) was recently diagnosed with Alzheimer's and I (28) am her caregiver. It's difficult being so young and trying to figure some things out on my own. I don't have any experience and no one in my family does either. I am learning as I go. Since my mom has started her diagnosis journey, she finds every…
-
Books that were recommended to me
The Social Worker, Tessa, at The Memory Center Clinic (Dept of Neurology) at the University of Chicago Medicine recommended these 2 books to me, at Ray's appt last Fri. Have any of you checked these out? I read the reviews over at Amazon.com. I ordered these. I'm a retired dinosaur RN. "Travelers to Unimaginable Lands" by…
-
Men’s support group
I know there is a men’s support group called Light Lounge, found in a 2022 discussion thread. Are there any other men’s support groups you have knowledge of?
-
Looking for care help for EO Alz Canton, GA
*** closed... thank you *** Hello. I am looking for someone to help my brother-in-law care for my sister. She is 61 with beginning late stage Early Onset Alzheimers. They live in the Woodstock/Canton area. What is the best way to find someone that knows what they are doing? He has interviewed so many that don't quite get…
-
So very weary...
Visited DH today for a couple of hours. Not very responsive, couldn't get him to look toward me while taking a picture. Last week he was tapping his hands on everything (table, his legs, etc.) Now he's rubbing the palms of his hands constantly. Then he started rubbing my hands. Aide says he is eating everything but has to…
-
Argumentative
Hi new here my mom has had dementia for 2 years she thinks she can do whatever she want .she cancels dr appointments when she knows they Important and she argues with me she not going she does have other health issues I don't know how to help her understand how to get her to go without a argument
-
How can I care for my mother on my own without losing myself?
My mother is 61 and has been diagnosed with dementia. I'm young - 33 and dating. I have a life to live but I am also the only person who can care for her. My father died 10 years ago and my living brother refuses to support her care as he "has done enough in this life" after my grandfather had dementia and father died of…
-
Should I tell Dad he has Alzheimers?
Is it more helpful or hurtful to remind my Dad that he has Alzheimers? My Dad refuses to move to AL. He says they are doing fine. We try to give him examples of why he's not but it feels like this is more hurtful than helpful, especially since he won't remember the conversation. What do we do/say instead? I find myself…
-
New Article Sent by my CELA: 5 Medicare benefits consumers should know about. TRUE??
Hello fellow caregivers, My CELA just sent me an article titled, "Alzheimer’s disease and dementia care: 5 Medicare benefits consumers should know" because she wanted me to know that it looks like Medicare Part A will pay for up to 35 hours of in-home care per week for dementia patients who are homebound and require…
-
what does this mean & what are next steps
Hello, my LO is starting to exhibit physical challenges that I think are related to her ALZ diagnosis. I noticed maybe a month or 6 weeks ago that every now and then I would see that she would shake. So we bought plastic plates and cups for the house but she refuses to use them. Well this morning she couldn't manage a…
-
How much to share with loved one
Hi. I am new to this group, and I have recently realized my aunt is farther along with memory decline. She has been diagnosed with Mild Cognitive Impairment. She has allowed me to assist with a lot of her healthcare needs and some bills (like internet/phone). But she told me I absolutely could not do anything with her…
-
Looking for my Care-Giver Peers with Spouses with Early-Onset ALZ Denver Area
I am a 60 year old man living in the Denver area. My wife was diagnosed with early onset at age 53 in 2020. I have attended our local monthly group but it gets so crowded and rarely is there enough time for serious discussion. It is emotionally draining and hard to find coverage so I can attend the meetings at the time…
-
Mother-in-law with Alzheimer's diagnosis refusing treatment/diagnosis
Hi all, I am new to this forum. My mother-in-law was diagnosed with early stages of Alzheimer's about nine months ago. Since then, it has been an uphill (upmountain?) battle. She has refused to accept the diagnosis and will not return to see her neurologist despite MRI and cognitive confirmation of the disease. She has…
-
New to this
Hello everyone. My step-mother and Mother both have Alzheimer's, early stages for Mom and getting more advanced for step-mom. Any advice on navigating this without it breaking me? I also am worried since my Grandfather also had it and I've been experiencing some loss of words, and forgetfulness, I may be next. I've had a…
-
How do you process your thoughts, feelings, and slow burning grief?
Hi everyone. I’m new here. So glad I found this online community. The last three years have been super intense. From my mother getting diagnosed to losing her job to hiring at-home care, and the moving to assisted living in Jan 2023. This is a short summary, of course. But now she needs 24/7 supervision and it’s just SO…
-
Memory Care--The Fishbowl
Memory Care is a closed and controlled environment, welcome to The Fishbowl
-
Not Diagnosed yet
I have been left with the responsibility of caring solely for my grandmother who is showing very progressed signs of dementia. My issue is, how do I get her a diagnosis and help, if she refuses to go to the doctor and her son (who is states away) has POA over her and refuses to acknowledge there is a medical need? I am so…
-
Lumbar Puncture?
Good evening everyone. My mom was diagnosed today with Alzheimer's. But she doesn't fit the diagnosis 100%. The part of her brain that should be damaged/shrinking seems to be fine on the MRI. So the doctor suggested a lumbar puncture to 100% confirm the diagnosis. I know the procedure is painful and causes issues, so I'm…