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I'm new here and I want out...: (
DH diagnosed one month ago and our lives are out of control. I am the caregiver, now only driver, home caretaker, as well as the target of his anger, rage, distrust, you name it. Not sure what to do, where to start. I dont even know this person really...and I now realize thats been going on for years. Here I thought we…
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Nanny Cam vs. Security Cam
Hi all, so the topic of installing cameras has come up many times as a means to keep an eye on my folks and the certified aides. Dad vocalized not wanting them on grounds of his privacy being invaded which I understand. However, it’s just getting more & more concerning with aides being lazy, falling asleep, and mom growing…
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Planning a Family Forum
Hi, everyone. I am in charge of planning a support group for resident's families, but I have been working in memory care for only about 5 months now. Yes, I have learned a lot about dementia and Alzheimer's and have a range of topics I would like to talk about at this family forum, but I would love to hear what other…
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Sudden worsening of symptoms
Hi all, I am new here. My dad was diagnosed with dementia in March of 2023. I still live at home with him and my mom. He had been living pretty normally since his diagnosis with a mild decline as to be expected. At his last doctor appointment on Monday 1/29/24 his doctor started him on Wellbutrin to aide in his depression…
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Getting my LO into bed
My LO is in late stage dementia. She can no longer stand without a walker and assistance. Getting her into bed requires lifting her off her commode chair and, while holding her up, pulling on her pull-up. I then lift her onto the bed. She often resists or slumps in my arms. There must be a better way. The pull-up is a real…
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Hello
Good afternoon. After reading my Alzheimer’s devotional this morning, I was led to connect with other caregivers. My mother has Alzheimer’s and vascular dementia. My sister and I care for her in her home along with two paid caregivers. It’s hard. Mom was officially diagnosed in 2020, and she is steadily regressing. I feel…
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New to this site and Alz/Dementia info
My husband was just diagnosed with Mild Late Onset Alzheimer's w/Dementia with Mood Disturbance (depression/anxiety). I've been a mess, exhausted, frustrated, angry, then sad, isolate, alone... I'm in Los Angeles, CA and just hoping to reach out to anyone who could talk with me about all of this. Thank you!
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Dealing with nonstop silliness
My DH has moderate to severe dementia. A few days ago he started speaking fluently in gibberish and he has kept at it for several days. He uses very little normal language and spends his waking hours with nonsense words and rhyme. It was kind of humorous at first and now it has become somewhere between annoying and…
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Newly diagnosed DH
I'm not sure what resources are available to me. I know that there is so much that I need to do, but don't know where to begin.
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Stages
I saw a question in one thread about the dementia stages. I just added a thread in the new caregivers group to capture a couple of staging tools I've found useful.
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Nighttime bedwetting
Hi. I am new to this site. My.mom has moderate alzheimers at this point. She has always been very Independent and was always her wish to be as Independent as possible. We have help during thr day but she is alone at night, which was fine til now as she follows her regular routines and we have a camera in her room to…
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Dreading today
Hi All- New to this forum. Thanks everyone for being open and offered support. Makes you realize there are so many of us in the same boat. Caring for my homebound/immobile Mother for the past two years. Diagnosis of Dementia/AlzD/Lewy........even the experts can't figure this thing out. Mom took a turn Saturday morning and…
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Chemical sedation?
My dad (77) has Alzheimer's and is now in a VA-supported nursing home after a number of scary hospitalizations left us with no real alternatives. Recently I was visiting and found him sound asleep. I waited for over 30 minutes, making some noise here and there but he didn't wake. Eventually I went out to talk to one of the…
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Father has AD and I am looking for support
Hello all. Noob here, but I have been taking care of my dad for 5 days per week for the past 10 weeks and am getting some burnout(I am running two households in winter and it's suddenly become nearly overwhelming) I was doing quite well until this past weekend when everything hit me. He's at home as yet, and doesn't need a…
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Administering my moms meds by a non-medical caregiver
My mom has been dealing with Alzheimer’s/Dementia for the last 6 years. She is now end stage and has 24/7 care. I have her medication made up in little pouches and the caregiver were crushing and mixing with apple sauce. I just learned that the agency does not allow the caregivers to crush or mix with food. I do t know…
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New… Dealing with Mom’s Hallucinations
My mom is in her 60s and her pcp says she is having brain slips and in stages of dementia. I am trying to get her seen by a neurologist and someone recently recommended a geriatric psychiatrist as an alternative for an assessment. It has been 3 months since the diagnosis and she was given an antidepressant. She is now…
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New
Hi All- Just found this site and wanting to learn. Wife was practicing Endocrinologist diagnosed in april 2023. Lost all income and moved to another state to be closer to family. She is only 57. We were not ready for this-- Financially or emotionally. Finally able to find a house so settling in, but just overwhelmed with…
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Skilled Nursing Facilities
Many of us could write a book! I have been a caregiver for my brother for the past year when he 'crashed' with Dementia. He's been diagnosed with Frontotemporal Dementia. He was repeating himself for years but 1500 miles between us made me quite in denial I guess of how he was progressing. In september '22 I flew to him…
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finally bringing in caregiver help
Hi everyone, back after a bit of an absence! My Mom is starting her new job, and I really ought to start going back into the office when I'm able to, so we've finally reached the point where we need to bring in outside help to keep an eye on my dad and be available to help when we're not able to. My parents' house is tiny,…
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Obtaining POA in NYS
Hello everybody! I am stuck on how to obtain POA over my mother in NYS. There is so much info on all the different types of POA's my head is spinning. I know the easiest way would be to hire a lawyer, but I don't think I have the money for that. There are tons of "free" templates online, but they're never actually free.…
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New caregiver group reminder
Just a reminder that I started a group to capture the information regularly shared with new caregivers. I added some sites and documents that are often shared (Tam Cummings Handouts, for example) and started a few discussion threads where I thought we could add useful member posts so they're easier to find later. This site…
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New caregiver group reminder
Just a reminder that I started a group to capture the information regularly shared with new caregivers. I added some sites and documents that are often shared (Tam Cummings Handouts, for example) and started a few discussion threads where I thought we could add useful member posts so they're easier to find later. This site…
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Need help but don't know what to do
My grandfather is 84 years old and has had dementia for years now but has recently been declining rapidly so I moved him into my house where my mother takes care of him. He has hospice care so nurses show up twice a week to asess him but thats the only care they provide .She quit her job because he needs fulltime support…
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Venting
It's been 4 months since my mom moved here to my neck of the woods. She moved away from her home of 40 years, her things, her friends, the sunshine, warmth and the ocean. She was worried that when the time came, when dementia was in full swing and she was stuck in SC, she would be all alone. Yet, she's so very unhappy…
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It feels like there are no good choices
Hello, I'm new here. I originally posted in the caregiver group, but I don't think it's very active. I could use some support. My mother with Alzheimers lives with my 89 yr old father in an Assisted Living facility nearby. She is still full of life. She is the sweetest and most loving mother. We still have a wonderful time…
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Late stage/seventh stage care
I'm fairly sure mom's completely in the last stage now, no longer straddling six and seven. I'm trying to find resources on what exactly her care needs are for this stage in life because it's vastly different than anything I've been through before. I have tried some web searches but they all seem rather vague and general…
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Getting overnight caregiver
We've been trying to take shifts watching mom overnight to make sure she doesn't slide out of bed or get stuck in the railings on the hospital bed. Thankfully she hasn't had any issue since being in the new bed and with us watching. We're still not getting enough sleep ourselves and it's starting to impact our job…
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First time posting
Hello Everyone. This is my first time posting in the forum and I thought I’d do a brief introduction. I’m a caregiver for my mom who has dementia. She just turned 73 earlier this month and she was diagnosed with dementia about 5 years ago. I work from home so I can tend to my mom. Aside from work and my mom, my days are…