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Just got pet results

I’m freaking out because it appears to me that it’s saying I have ad. Now to wait for my appointment to go over my bloodwork and pet results in two weeks. Unfortunately my family has a strong history of early onset dementia, but still, 42 is the youngest in my family if it’s true. I’m hoping doing some research will help quite my mind. All I can think about sometimes is how bad my grandma was the last several years. What’s the best thing to start researching first?

Comments

  • Iris L.
    Iris L. Member Posts: 4,540
    Legacy Membership 2500 Comments 500 Likes 250 Care Reactions
    Member

    Welcome WonderWomanMama. I'm a bit confused, you will be getting your PET scan results in a couple of weeks? What type of PET scan was it? Have you heard of the DIAN study? It is in regards to genetic early onset AD. You might want to check that out. Have you had neurocognitive testing? Please keep us updated with what is going on with you.

    Iris

  • MarDel0917
    MarDel0917 Member Posts: 36
    10 Comments 25 Care Reactions 5 Insightfuls Reactions
    Member

  • TheSteven
    TheSteven Member Posts: 22
    Tenth Anniversary 10 Comments
    Member

    Hi WonderWomanMama,

    I replied to BreeAnn yesterday but never go to read and respond to anyone else.

    Welcome, I was diagnosed with with younger onset ALZ when I was 56 in March 2014. My wife and I eventually determined in my case that it was due to the mercury in my numerous amalgam fillings. I stopped my ALZ progression and reversed most of my symptoms after removal of those fillings at an iaomt.org approved dentist. I documented my journey on my blog which includes the books, steps and links to web sites showing information about the dangers of amalgam and how to detox the amalgam. https://alzconnected.org/home/leaving?allowTrusted=1&target=https%3A%2F%2Fthestevenalztreatment.blogspot.com%2F2015%2F07%2Fstrategy-results-and-log-thus-far.html

    Recently I also heard of others with ALZ who reversed their symptoms by doing fecal transplants from a spouse who did not have ALZ into their colon which helped populate the ALZ spouse with the necessary microbes into their gut microbiome so that it effected changes in the ALZ brain microbiome. There are some free episodes available now to watch regarding the gut microbiome available. The previous series might be available at goodnesslover.com but you can watch some of the free episodes here that might give you an idea as to what to expect https://alzconnected.org/home/leaving?allowTrusted=1&target=https%3A%2F%2Fgutimmunesolution.com%2Ffreescreening%2Fday3-star6sv5t%2F

    Episode 6 talks about how microbes and partially digested proteins escaping from a leaky gut can lead to Alzheimer's and Parkinson's among other diseases. I suggest you watch that. I won't explain all that here since those doctors do a much better job.

    I hope this helps and give you hope

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more