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WRONG DECISION
My 88 year old mom has dementia, age related memory loss, depression, stubbornness, and selfishness. She lives 1000 miles away from me and decided to try to live in the same town as me. She moved from her home with daily care to a supported living apartment. She's miserable being here and I'm miserable having her here but…
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Mother not cooperating with maid
My mother ,aged 66,is not able to go to washroom by herself We have maid,who helps her, recently she is not cooperating with her as well. Other than my sister,she does not allow anyone else to be with her. Need suggestions....to deal with mother Also,she is hallucinating....she looks at herself in mirror and gets hyper...…
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Contented Dementia Book
My husband was just diagnosed and I am reading about SPECAL care. This has helped tremendously. The book uses the metaphor of “old photographs”….. things in long term memory. When considering this, why would my spouse do odd things like put the tuna can in the freezer? Wouldn’t that be in your long term memory? Please…
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LO in memory care asking for credit cards, cash and driver license
I moved both parents to assisted living two months ago, and they are now saying both parents need to move to memory care. I am planning for that move shortly. Since they moved two months ago, both parents have been confused and disoriented. I have been holding my dad's wallet that contains a credit card, cash, both of…
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Need advice
My 94 year old father just passed away and my soon-to-be 94 year old mother has been with me for the past 3 weeks. She has dementia. My dad and I had shared caring for her. Now it’s just me, with no family nearby. I’ve had very little sleep while my father was hospitalized and then here in hospice. I’m hoping I’ll have…
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Dealing with the soul-sucking nature of witnessing this disease
I guess somewhere along the line I read that your LO with AD becomes somewhat unaware of how much they have actually declined. The unawareness protects them from fully realizing the impacts and the toll it takes. For those around them however, we do see it. We are aware of it. We also deal with the reality of watching…
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Navigating Family Dynamics: Post removed
Post removed
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Parents in AL, likely moving to MC soon and too hard to visit them
I moved both parents to AL five weeks ago. That was difficult enough. Then last week the DoN called saying both parents seem like a better fit in MC. We met at the facility and agreed to try an increased level of care in AL "for now". After only five weeks, I did not want to disrupt my parents and with another move so…
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What rights do other siblings have that aren’t in charge of guardianship
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Alzheimer's/Alcohol Dementia, Alcoholism, Hoarding and Medication Refusal - what to do?
Hello, My mom has been a lifelong alcoholic who has refused most medical care in her life. She lost her home, was asked to leave her independent living situation due to hoarding, and she is in assisted living now for the last week but seems to have declined. She is physically weak, uses a walker, and is essentially blind…
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My Parent Has Become Aggressive
Immediate need for advice! My parent suffering from dementia has progressed to the point of needing care at a facility full time. My stepparent is doing all possible to provide my parent with the best possible care. My parent has been to three different facilities in the last six months. My parent left the first facility…
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Are these common signs your LO has to move from AL to MC?
I just moved both parents to Assisted Living last month. The Director of Nursing called today and told me that both have declined rapidly since her initial assessment when they moved in and that both should move the Memory Care section. First, how likely do you think it is that both parents declined so rapidly in six…
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Grief and guilt after moving parents to ALF, how to deal?
Last month I moved both parents to an ALF. I did research in advance and found a nice place close to both their kids. Initially, I felt relieved. One month on however, I feel mostly grief and guilt and am surprised. Is this common? Mom has mobility issues and AD for nearly seven years. Parents now are 86 and 89. What…
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Mom with Dementia constantly leaving home
Hi! I’m new here. I travel for work and bring my mom with me because I am an only child. We’ve been doing this for the last few years. She was doing well for the longest time, but she was just formally diagnosed with Dementia after she left where we’re currently staying and got lost. A neighbor called the police and they…
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My DW & Hospice Education
Today, my DW of 25 years was released from the ravages of of this evil disease (+ cancer) and is, truly, in a better place. I was lucky enough to be by her side, holding her hand, when she passed. And I might have been alarmed at the changes she underwent, if not for having learned about the signs and sounds and changes…
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Resources for Early-Onset Dementia
Hi all, I am looking on behalf of a friend for resources/support groups/etc for people with early-onset dementia, and caring for someone with early-onset dementia. She is located in the NYC area so anywhere within a 1 hour radius there or any online resources would be amazing. Looking for things like support groups,…
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How to have DH let family and friends know of his diagnosis
Hi, I"m new here (although did use this site often when helping with my Mom who passed from Alz). THis time my DH has been diagnosed with demientia - though we haven't narrowed it down to a specific type yet. SO still early on. MY DH is still in denial or hoping something will "fix" the mild(his perception) issues he's…
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Dementia vs stage 4 lung cancer - advice needed
For those who have experience being a caregiver for someone who has significant co-morbidities, could you help me understand how to address my MIL’s changing needs? MIL is almost 92. She has had lung cancer for 10 years. The oncologist believes the tumors are very slow growing due to two immunotherapy treatments 7 years…
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Grieving my dad
Hello everyone, I'm new here and I hope it's ok for me to post here even though I'm not a caregiver. I'm 24. My dad was diagnosed with frontotemporal dementia almost 6 years ago, during the summer between my freshman and sophomore years of college. My parents are both in their early 60s and my mom is my dad's primary…
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Moving MWD To Indiana
Hi! My mom who lives in FL was diagnosed with ALZ in June 2023. It has progressed quickly that by December was confusing me with her deceased sister, missing medications, taking the next morning of meds after every nap, forgetting where my brother & I live etc. She lives alone in FL but has a boyfriend who comes over daily…
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POA and Uncle who is mad and is threatening to change it
Hi everyone. My sister and I are new to taking care of our Uncle who has dementia. My Aunt (his wife of 70 years) died last year. We have started seeing that he is declining. He says he has a million dollars in a bank that consumers can't even have accounts, he just went out and bought a brand NEW truck for 65k in cash and…
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Vascular dementia, alcohol abuse, presenting well around others and friends who tell her she's fine.
I am taking care of my 74 yr old aunt who has vascular dementia (middle stages) and suffers from alcohol abuse. I moved her 1yr ago from STL to SFO and got her an apt where my 77yr old father stays with her for company. She had been having falls regularly in STL and when I moved her she had just had 12 staples remove from…
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Virtual Reality Experience
has anyone had any positive experiences using VR headsets with their loved ones?
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Dad will not acknowledge anything from the doctor
Hello, I am 37 years old, and I am trying to navigate this awful disease with my father.We are based out of California. He is 72, and he has put himself into a lot of danger (financially and physically). Some of our neighbors have called APS on him, but the neurologist says he is fully capable of making his own decisions.…
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When you take care of family members with AD,what can cheer you up or bring back old happy memories?
Sometimes I feel frustrated when taking care of my grandpa with AD.I don't feel like he's the same him anymore, and we seem to be the most familiar strangers.I wonder what will bring you guys the old happy memory that cheer you up to continuously look after your family members. Hoping to receive some kind answers to help…
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Are we just destined to endure a long slow decline?
This sounds harsh, but is there such a thing as someone getting ill for 1-2 years and managing sufficiently, then just taking a sharp downward turn for a few weeks or months and shuffling off this mortal life? By contrast, the last seven years my parents have just declined slowly and steadily while losing cognitive…
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Unsure about my diagnosis
I had a brain scan that showed my hippocampus is at 5%, but no tau tangles so it’s not Alz. My speech is slower then it was, I forget things all the time, I have trouble with thinking things through. My emotions are ridiculous. How long before I’m lost?
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Nightmares, Temporary Psychosis or Insanity
I have Vascular Dementia and was diansed 4 years ago. I would say my Dementia is mild to middlin. I have nightmares every night. Sometimes I wake up and feel as if I have lost my mind, or have temporary psychosis ( insanity). I am confused beyond anything I experience while awake. I cannot function at all. I feel as if…
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Help! To move or not to move a parent diagnosed with dememtia
Mom was diagnosed in January 2024. She mechanically very functionally. Sister and I can’t agree about moving her from where she has lived for 24 years to where sister and I live. Mom started showing signs of memory lose two years prior to diagnosis. How does one determine if moving is right or not as I have heard horror…