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How to hold a conversation with a relative who has dementia?
I have a relative who was first diagnosed with dementia a few years ago and over the last few years I have noticed it is becoming increasingly difficult to maintain a two way conversations with her. I feel awkward about asking too many questions as I don't want to make her feel uncomfortable and she is quick to hang up the…
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Repeating the same story
My brother is in an assisted living facility and I provide in-person care 2 or 3 times a week for about 3 hours each visit, and talk on the phone daily. He repeats the same stories every time we talk (nearly word for word). For example, he will say "did you know they found salt on Mercury (slight pause) who cares!!!" Other…
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Constantly Arguing
Does anyone else argue with their spouse/ partner regarding care of a parent with dementia? If so, have you found anything that works to help alleviate the stress on your relationship?
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Home Help
Hi, I am a 21yo and I live with my Grandma who is late stage in dementia. I need help finding homes. I am in constant therapy for PTSD from the abuse and need guidance. I feel like either I go into a psych hospital or find her a home. If there's any recs that someone can give me I would be most grateful.
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My spouse has early dementia
:o :/
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Am I going crazy...
For the past 3 weeks my DH has been sleeping all day long. He hasn't been eating and has lost a lot of weight. He was diagnosed with Dementia about 6 years ago. If he gets up, it is usually about 5 pm and he rarely gets dressed. BUT now, for the last two days, he has gotten up around 3 pm and gets dressed? He has actually…
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New to the forum-Questions
I am new to the forum. My wife has Alzheimer's and was diagnosed officially a couple of months ago. She is 71. She has balance issues, difficulty getting up and standing, very poor appetite, and is sleeping a lot. Pretty much all day today. She complains of pain--sciatica, although I think it is something that is happening…
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PWD over-estimating their abilities - any strategies for coping?
My 94 yo mother was diagnosed with dementia last July. She is in stage 4. She lives in a CCRC. She's been there 6 years in a cottage living independently. Now we have a succession of aides coming in for various tasks, like medication management and general supervision. She complained about that a lot at first, but seems to…
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hospice, meds, changes, etc.
Hi y'all. Just checking in and updating on the progression of things. I'm positive my dad (83, general dementia diagnosis) is transitioning to a new stage. Sleeping more, shorter attention span, eating less. He doesn't chit-chat with me like he was before. Things moved quickly with our switch to the new PCP & health group.…
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Go Home Gone wrong
have not posted for a while, spouse with moderate dementia, diagnosed two yeas ago. 11/6 somewhat normal day, trip to the store for bananas, daughter and grand kids visited to jump in leaf pile, spent more than normal amount of time out doors. had a great time. around 4PM I was taking the dog for pre dinner walk, when she…
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Adjusting to the decline & hospice
Hi everyone, we have a nurse practitioner coming to the house next Friday and then the week after that we'll be having a virtual visit with his new physician. I've also been in contact with a hospice/homecare group for about the entire time he's been home. She checks in on how he's doing, and she recommended this new…
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Destroying Things
I care for my mother-in-law and she spends a lot of time destroying things. Tearing things apart (especially anything made of paper or cardboard) and writing on things (marble coasters, artwork, kitchen tools, anything), cutting things up (the corners of furniture). I have no idea what to do. I don’t give her a hard time…
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Driving - got Mom’s doctor to have “the talk” - I feel so guilty
This is my first post. I apologize it’s so long. My 94 y.o. mother was diagnosed with dementia in July (mixed ALZ/vascular). I’d say she’s gone from stage 3 to stage 4 in just a few months. My brothers and I have been trying to get her stop driving. We encouraged her to take advantage of the on-call driver in her CCRC…
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Replacing hearing aids
My mother is in skilled nursing facility with mid-stage dementia. She has hearing aids and has lost one of them. It is normal for her to have them come out during the day and need to be put back in. We had them on a cord attached to her shirt but she still managed to lose one. My quandary is- to I replace the missing aid?…
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Caring for LO when they're sick
Hi everyone, I've been absent for a bit -- we hit a semi-stable routine while we wait for our appointments with the new physician's group that was recommended to us. This post is one-part me venting/unloading about the Great Excitement of the past few days and one-part seeking wisdom. For those who don't want to read the…
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My 83 years old Mother thinks the Male Neighbor is stalking her & she now thinks he is in my room
My Mother was diagnosed with Dementia in June 2023, she is a retired teacher (55 years) & hold 3 master's Degrees, she was extremely attractive, but she was always unkind, selfish, and focused on men. My father was not good to her, they divorced when I was a baby (he was also a very Dark Black man, and for light-skinned…
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I Need Help - Early Dementia/Paranoia
Hello to all! I am currently the grandson of my nana who I am led to believe that she is getting the early or moderate stages of dementia. She lives alone at a senior living apartment complex. However, for the past year or so - she keeps claiming multiple things. From someone drilling into her apartment, People are after…
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Struggling with my stress
Hi. I’m new to this group. My father passed away a few years ago. He had Alzheimer’s. We had full time live in care for him. Last year my mother was diagnosed with vascular dementia. She is getting worse rapidly. She has a flat that is part of an independent living community. However she is now struggling to live…
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Newly Diagnosed Mom
Hello, My mother was recently diagnosed with moderate dementia. It seems to have accelerated once she moved into AL, which was her decision. She is well cared for however is requesting that my brother and I call her multiple times a day. Any tips for setting reasonable boundaries while at the same time helping her as much…
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PWD & physical/occupational therapy
Hi everyone :-) How do you know when to stop PT/OT? Brief context: Dad fell, broke his hip, had hip surgery, was diagnosed with dementia while in ER, was transferred to subacute rehab for PT/OT. We made the decision to bring him home because his mental health and cognition were heavily declining in SAR and he was not…
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Can I receive phone support for assistance to the aid or caregiver about parent
Can I receive phone support for assistance to the aid or caregiver about parent
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Trying to support an aggressive grandfather
I’ve been taking care of my great grandfather for almost two years, the rest of the household is too harsh to him and it causes problems. I cannot convince them to get him help. I am 20, cannot drive and have put everything aside to take care of a three person household. How can I help my grandfather who has gotten worse,…
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I need help
I dearly want to travel and visit my new grandbaby in California. I had given up traveling with my husband, who is probably stage six with Alzheimer’s, because it was so very disruptive to him. But he’s in a different stage now. He no longer shadows me everywhere I go, and he no longer has the intense anxiety/delusions…
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Mother in denial and agitated, paranoid, mean
My mother has had multiple strokes. The past stroke, 2 years ago truly did her in. She is unable to stand on her own without assistance and she has full paralysis on her left side. The strokes also exasperated her personality disorder (narcissism) and she says hatful things to myself and my father. Her doctor mentioned she…
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Mom with early onset dementia, I'm feeling lost
Hey all, this is my first post here so I hope this is okay. I'm the oldest of two siblings and our mom was diagnosed with lewy body dementia around two years ago at the age of 60. She's been in assisted living for roughly that same amount of time. She's on a laundry list of medication and often seems to be in a daze, is…
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When is the right time for AL?
Hello. This is my first post. My 87 year old MIL was diagnosed with dementia (Alzheimer’s +) in March of this year. This brought clarity to the cognitive and personality changes we had been noticing over the past couple of years. Memory changes are really the least of her symptoms. She does have trouble with memory recall…
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Dementia with psychiatric issues
Hello, My dad was diagnosed with atypical (non motor) Parkinson’s with Dementia 3 years ago. His major quality of life symptoms are tenesmus (feeling the urge to go to the bathroom) to the point where he spends most of his days on the toilet. We’ve taken him to the GI and they have run many abdomen CT scans and it’s just…
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My mom hates her RCF and wants her cat back.
:'( about five months ago. We had to move my mom from an AFH to and RCF. She hates it. There are six other residents with varying degrees of disabilities and some with dementia. My mom has vascular dementia, and Alzheimer’s. She was diagnosed at 69 years old and will be 71 this year. since moving to the RCF, I have noticed…
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Dementia, Broken Hip, and next steps
Hello, First time posting. My mother is 95 and was lving independently with caregiver assistance until she broke her hip a few weeks ago. She has been through a lot since 2018 - kidney timor ablation; treatment for APL (acute promyelocytic leukemia), a small stroke, and now this. She is in rehab connected to the retirement…