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Dementia caregivers in the UK
Is anyone here from the UK?
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Whom do I believe? My Mom or the caretaker?
Hi Everyone! I'm new to this community. This is my first post. My Dad passed away last fall and I had to take over as my Mom's caretaker. She has dementia and I am her POA and only living relative who is able and willing to take care of her. I have been very overwhelmed taking care of my Mom since my Dad died, especially…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Feel Lost, Need Advice with Mom's Dementia/Alzheimers, Living and Depression
Mom was diagnosed 3 years ago with dementia. We believe she is about 5 - 6 years into it though. She also has severe depression, diagnosed 30 years ago. She is in an AL, but absolutely hates the place. This is her 4th home in 3 years, and the smallest so far (IL, AL, MC, AL). She is again in a severe depression, they seem…
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Delusions of Persecution -- What to do?
Brand new here, so I apologize if this has been covered before elsewhere, but I'm at my wit's end. My mother has been living in the early stages of Alzheimer's for a few years now (forgetting things, no short term memory, having more and more trouble completing thoughts). Just recently my Dad had a (minor) stroke and was…
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Not taking it well...
Hi, I am totally new to this...writing and my husband behavior. I also have a hard time with sharing about our life but my daughter told me...mom find some group for your self I can't help you. My husband developed sings of dementia last year in february which we didn't noticed right away. It has been getting slowly…
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Moving parents from home to IL/AL
Both parents have ALZ diagnosis and currently live independently with support from a 2x/week care giver and daily support from sibling living nearby. Their needs are increasing and we want to move them to an IL w/cont home health aide support. The place has AL (currently no openings) but no MC. The mom is very resistant to…
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Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophrenia but turns out I was wrong. He refuses treatment and therapy in every way. I try my hardest to support him with my…
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Does your spouse resent that you put him/her into Memory Care?
How common is it that a person entered into Memory Care against their will resents and refuses to let their spouse to visit them? My concern is that she no longer wants to see me after I put her in memory care. Background: My DW has a moderate to advanced level of Dementia. She is in denial there is a problem. She already…
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PWD needs to go into AL, says she wants to, but won't cooperate.
I have DPOA, and I'm my PWD's only remaining kin. Once a very prim and proper woman, she now yells verbal abuse at me regularly and even curses sometimes - completely opposite her former behavior. We had toured a facility last year, and first she said she liked it, then later she said absolutely not. Recently, she's been…
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New here, looking for support
My mom has been on a steady cognitive decline over the past 2 years after a big fall and some medications she was placed on. We have not been given the diagnosis of Dementia due to the fact that she will not get tested and gets extremely angry when it is suggested. (She has always had anger issues and does not let anyone…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Daughter to Mother with Dementia, just moved from the Lebanon to Los Angeles
My mother, almost 79, was diagnosed in November 2020. We've had to move out of our home of 20+ years in order to make a new life here. The move has been really hard on both of us, especially her. My dad had to stay behind until he can get his visa to move in with us. Her body is suddenly failing to do simple things, she…
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Mom stopped walking, starting hospice consultation
I’m exhausted. Mom moved in with us 2.5 months ago. We rehabilitated her after a failed rehab stay following a hospitalization. But she’s declining. Hospice support sounds promising because I need more help. She stopped walking today due to intense pain in her bad hip, but she also shuffles/drags her feet so maybe it’s…
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When to move?
My husband was diagnosed with MCI a year ago and is declining. We had planned to downsize, but now I'm wondering if that would be too disorienting for him. He already carries a lot of anxiety before this diagnosis, and I worry that a move will accelerate his condition. On the other hand, it really is time to get out of…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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Arguments that seem impossible to stop
Hi, alright I am new on this and taking care of my 72 year old mother. Are there any simple ways to get a person with dementia to stop arguing? Once my mother gets mad it seems impossible to get her to even attempt to think of something different. She likes to just make it seem like I have ruined her entire life and no…
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Diagnosis questions
I mentioned in my first thread that I'm not a primary caregiver for my MIL, but I want to try to be informed and helpful when I do interact with her. What I'm curious about is the diagnosis of dementia, from a qualified medical professional. My sister-in-law has medical power-of-attorney for my MIL, and she and her husband…
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A Local Nightmare
This was in the news not far from me. A woman was found wandering near 2 very busy streets in a primarily residential (mostly single-family homes) area. It's interesting that she seems dressed for the weather.
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Rapid Mental Decline in My 65-Year-Old Mother: Desperate for Diagnosis and Long-Term Care Solutions
Hello, I’m looking for guidance about how to get help for my mother, who has experienced rapid mental deterioration over the past year with a cycle of repeated hospitalizations and psychiatric decompensation at home. The situation is placing an unsustainable level of strain on my mother, father and the rest of our family.…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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Looking for someone to help me launch Support Grouo.
I am the Pastor/Chaplain for Holbrook Acworth. I am looking for someone to help me facilitate a monthly support group at our location.
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Rapid Progressive Dementia/Covid19 Related
MY DW passed on 12/06. After a relatively short, but intensely difficult journey. We did not have a confirmed diagnosis, as the tests were all negative and normal for her age. Her health eas rest of a healthy 45 year old, had not had any hospitalizations, rarely sick with a cold. Sometimes allergies. P. She wa sky…
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Bredesen randomized controlled trial
I recently listened to an interview on People’s Pharmacy with Dale Bredesen. He mentioned that he is the study chair for a randomized controlled trial for his approach to addressing a treatment approach for MCI or early stage dementia. Here’s a link to the page with more info about the trial…
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Checking the weather repeatedly
Our father frequently turns on the Weather Channel throughout the day and night. He runs to the door, looks outside, and returns to his room to turn on YouTube and watch animal videos. Six/Seven times a day now. We imagine this is possibly to ensure the Weather Channel isn't lying to him. This cycle repeats several times a…
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Calling to shut off utilities
Our father has developed a belief that the utility bills are "stealing" his money, leading him to make phone calls to PG&E and Earthlink, demanding his money and requesting them to close his accounts. Fortunately, we have successfully established contact with the companies to prevent any potential disruptions in service so…
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Lack of Showering
Our father has been going for extended periods without showering or changing his clothes (40 days at a time), which has led to skin lesions. He has incontinence-related issues too. These challenges can be difficult to address, especially when faced with the limitations set by authorities who claim our father has…
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Lack of showering
Our father has been going for extended periods (40 days at a time) without showering or changing his clothes, which has led to skin lesions. He also has incontinence issues on top of it. We are limited in our ability to intervene due to legal restrictions making these challenges difficult to address, especially when faced…
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Untreated Nurosyphilis Dementia
We've quickly realized the importance of connecting with others who understand what we're going through. We're currently caring for our father, who has been suffering from untreated Neurosyphilis, GPI, Tabes Dorsalis, and dementia for several years now. Despite our best efforts to convince him to seek treatment, he has…