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Prepared for so much EXECPT every new symptom my Dad has.
My DD stage 4 has been doing really well. He adapted to the lifestyle changes, the MIND diet. His MRI & bloodwork results are encouraging. He wanted to take a trip with me to see my daughter in Law School (it’s always been his dream to have an attorney in the family) we live in PA she is in IL. The plan was to fly out…
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Sexual aggression in MC
First post here...my dad was diagnosed with vascular dementia last summer. We recently had to move him into MC. He was adjusting well, but then he began exposing himself to others and some touching between him and others. He was moved out of MC onto a regular nursing home floor. A few days ago, the night nurse found him…
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Seeking Advice: Managing Toilets with Dementia Behaviors
My father has late-stage dementia and is exhibiting challenging behaviors that are making it difficult to maintain our home. He’s been pouring food down the toilets, which has caused clogs and damage. He also removed the bolts from one toilet, breaking the wax seal, and it’s now unusable. He’s fixated on guarding the…
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Father Angry & Unhappy in SNF
My father(86 yo), who from what I’ve read has recently entered Stage 6, he has been in a SNF since April. Until recently he has been fairly happy there and hasn’t complained much. I’m not sure most days he really understands where he is, often times he calls it his apartment or thinks he is at work. Other than the dementia…
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Cataract surgery for someone between Stage 5 and Stage 6?
Hi all, My mom has advanced Alzheimers and Vascular Dementia. I guess it is between stage 5 and stage 6. She gets full time care in a skilled nursing home. She can´t do any daily tasks without assistance (though the nurse sets her up to wash her own face and brush her own teethI, can´t walk, needs a machine to take her to…
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Good news (I think)
My Dad was originally diagnosed with MCI Stage 3 and then the doctor upgraded him to Stage 4. He just had his MRI & blood work done. No proteins found in his blood and the MRI was not bad at all. He had Mild changes consistent with his age & Hypertension history. The doctor wants to give him another cognitive test to…
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How to manage putting a pet down
Over the past several months our beloved cat’s nasal tumor has grown larger and her quality of life and weight have deteriorated. DW is middle-stage dementia and can’t seem to remember our discussions of when to let the cat go. Last week we agreed that it was time and scheduled it with the vet for tomorrow. We’ve talked…
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Dad recently diagnosed
Hello all. I’m so grateful for these groups. I’m just beginning my Dads journey and I’m alone and need guidance please !!! I am a paramedic for 35 years and have a lot of medical experience but I have ZERO experience with this disease. From what I’m learning this disease follows no normal patterns. I feel like a rookie…
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Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
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I lost my mother thirty years ago ...
Right away I found that sharing my story online helped me begin to heal. I started a website in her memory that is still around, although it is in need of updating, and I'm trying to work on that as I have time. It's still here: https://www.zarcrom.com/users/yeartorem/ Also, I will be walking this fall for my 29th year in…
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Sharing your LO's background with various providers
My mom has been in the hospital a few times (including the ER, behavioral health, ICU, regular hospital) and also has home care aides and home health nurses come by. Every time we interact with a new provider we need to repeat the same information over and over again, adding in anything new. I started collecting some of…
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forgetting how to use electronics in staging
I feel really dumb asking this, but this is my first rodeo with ALZ… A couple of weeks ago DH was standing in front of the microwave punching a lot of buttons and when I asked him if he needed help, he said that he forgot how to use it. Since then, no problem. Yesterday, he forgot that his IPad has a volume button. He has…
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Mom describing eerie sense of loneliness
One reason my mom decided on her own that she was ready to move to AL was that when she was living at home alone, she was feeling extreme loneliness in the evenings. She described it as something very eerie—just a weird sense of being all by herself in silence. She would sometimes describe feeling like her deceased mother…
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Family member's death
My mother has dementia. Her brother died recently (he had Alzheimer's and died of natural causes). My mom is confused and upset by his death and has been believing her brother committed suicide (which is absolutely not true). We are comforting her but does anyone have advice for disabusing her of the suicide notion.
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Delivering Bad News
Looking for some advice on how to have difficult conversations with someone with dementia. My mom was diagnosed with frontotemporal dementia in January. We recently moved her into an assisted living facility as she is not able to live alone safely anymore. She is relatively young, 63, and while she definitely has some…
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Dementia progressing...
My mom's dementia has been progressing so fast. She lives in a skilled nursing home, but no longer knows where she is. Although I am not her caregiver, I am her primary everything else. It is so hard to talk to her and hear her be so lost and confused. There's times where her voice sounds so familiar, like we can just have…
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A New Level of Loneliness
I see that I had a post last year about the loneliness of living with a spouse with AL. Of course, the disease has progressed. I'm guessing that he is more stage 4 than 3. Really, who can tell for sure. We have a daughter who is not currently speaking to us as she works through some things. Exactly what things, she did not…
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how to care for angry person
How do you care for parent who is angry at you. My mom constantly tells me and others I am stealing her stuff (shampoo, and other stupid stuff) She has gotten to a point where she is banning from her home, but I am the closest of family member and the most available to help my dad. She apparently rants all day to him. How…
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Entering the fun new phase of paranoia
My mom has been in AL for just over 2 weeks. She finally had her doctor's appointment there with the doctor on staff to establish her as a new patient. It was a very painless exam, he just wanted to go over her medications and he could not have been nicer — she complained about how one of her pills is not delivered to her…
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Need resources & ideas
Hi, My dad was diagnosed with Dementia in October of 2025 but it has progressed rapidly and he is living in an unsafe situation at home. He falls frequently at night, has hallucinations and can be very agitated and aggressive. My mom is is caretaker and is with him 24/7. I’m extremely worried about her health and well…
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Mom Might Get Evicted from Memory Care
This may sound harsh, but it's our reality right now. We moved our 84-y.o. mother with dementia into a lovely memory care facility last week. The dementia symptoms advanced quickly - she was driving and socializing mid-February, and a month later she's getting lost in her own neighborhood, forgetting where she is, and…
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Need emotional support
Hi everyone, I'm caring for my aunt who raised me when I was a child. She has early-stage Alzheimer’s and is currently living alone. Her son has been out of contact with the family for about 10 years, and we haven’t been able to find him. She misses him deeply and talks about him every day. My aunt has memory loss. Because…
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I need advice - My husband with dementia keeps scissors for 'protection'
My husband has dementia and has become very focused on keeping a pair of scissors with him because he believes he may need them if an intruder comes into the house. He keeps them close at all times, carries them in his back pocket, and even sleeps with them. I have thought about taking them away while he is in the shower,…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Nursing facility. Does anyone have advice on mom’s boyfriend who constantly stirs the pot.
I am my mom’s HPOA/DPOA. She has a boyfriend she lived with for 28 years. Since she was placed in a nursing facility 6 months ago after a fall he is constantly stirring the pot. Today she told me she’s getting a petition signed to say she doesn’t have dementia and “it’s a secret”. She has Parkinson’s and related dementia.…
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Reassure me that I am doing the right thing
My dad passed away in December and my mom has been living alone ever since, 2.5 hours away from closest family (me). She has what my brother and I believe to be stage 4 dementia based on the DBAT assessment. Last month her PCP only diagnosed her with "memory loss," she scored a 24/30 on the MMSE, but he did take away her…
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The "Trial Period" approach
I posted yesterday about how we are putting my mom into an AL community in a couple weeks. She agreed to go there, thank god, mostly after we followed the facility's recommendation of telling her it's a 30-day trial period. This seems to be a common approach. However, I feel like this is going to backfire on us.…
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Having a hard time about my dads diagnosis.
Preface: (DAD WAS VERY RECENTLY DIAGNOSED & PUT IN A HOME ABRUPTLY SO IM STILL IN SHOCK) Hey! My name is Blair and I’m 28, I have 4 beautiful boys, ages 1,3,5&7. My dad can’t remember their names or how many I have. I’m having a hard time. He was just out into a home in September. He hates it but it’s for his safety. We…
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Dementia needs
My DH was diagnosed 9 yrs ago with early onset dementia and just recently with Parkinson. I've made the following purchases which have made both our lives better. A small,lightweight wheelchair from Amazon, adult bibs, washable mattress pads, a bedrail, satin sheets and silk pajamas to help him slide in and out of bed. I…