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Grief and guilt after moving parents to ALF, how to deal?
Last month I moved both parents to an ALF. I did research in advance and found a nice place close to both their kids. Initially, I felt relieved. One month on however, I feel mostly grief and guilt and am surprised. Is this common? Mom has mobility issues and AD for nearly seven years. Parents now are 86 and 89. What…
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Mom with Dementia constantly leaving home
Hi! I’m new here. I travel for work and bring my mom with me because I am an only child. We’ve been doing this for the last few years. She was doing well for the longest time, but she was just formally diagnosed with Dementia after she left where we’re currently staying and got lost. A neighbor called the police and they…
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My DW & Hospice Education
Today, my DW of 25 years was released from the ravages of of this evil disease (+ cancer) and is, truly, in a better place. I was lucky enough to be by her side, holding her hand, when she passed. And I might have been alarmed at the changes she underwent, if not for having learned about the signs and sounds and changes…
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Resources for Early-Onset Dementia
Hi all, I am looking on behalf of a friend for resources/support groups/etc for people with early-onset dementia, and caring for someone with early-onset dementia. She is located in the NYC area so anywhere within a 1 hour radius there or any online resources would be amazing. Looking for things like support groups,…
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How to have DH let family and friends know of his diagnosis
Hi, I"m new here (although did use this site often when helping with my Mom who passed from Alz). THis time my DH has been diagnosed with demientia - though we haven't narrowed it down to a specific type yet. SO still early on. MY DH is still in denial or hoping something will "fix" the mild(his perception) issues he's…
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Dementia vs stage 4 lung cancer - advice needed
For those who have experience being a caregiver for someone who has significant co-morbidities, could you help me understand how to address my MIL’s changing needs? MIL is almost 92. She has had lung cancer for 10 years. The oncologist believes the tumors are very slow growing due to two immunotherapy treatments 7 years…
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Grieving my dad
Hello everyone, I'm new here and I hope it's ok for me to post here even though I'm not a caregiver. I'm 24. My dad was diagnosed with frontotemporal dementia almost 6 years ago, during the summer between my freshman and sophomore years of college. My parents are both in their early 60s and my mom is my dad's primary…
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Moving MWD To Indiana
Hi! My mom who lives in FL was diagnosed with ALZ in June 2023. It has progressed quickly that by December was confusing me with her deceased sister, missing medications, taking the next morning of meds after every nap, forgetting where my brother & I live etc. She lives alone in FL but has a boyfriend who comes over daily…
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POA and Uncle who is mad and is threatening to change it
Hi everyone. My sister and I are new to taking care of our Uncle who has dementia. My Aunt (his wife of 70 years) died last year. We have started seeing that he is declining. He says he has a million dollars in a bank that consumers can't even have accounts, he just went out and bought a brand NEW truck for 65k in cash and…
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Vascular dementia, alcohol abuse, presenting well around others and friends who tell her she's fine.
I am taking care of my 74 yr old aunt who has vascular dementia (middle stages) and suffers from alcohol abuse. I moved her 1yr ago from STL to SFO and got her an apt where my 77yr old father stays with her for company. She had been having falls regularly in STL and when I moved her she had just had 12 staples remove from…
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Virtual Reality Experience
has anyone had any positive experiences using VR headsets with their loved ones?
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Dad will not acknowledge anything from the doctor
Hello, I am 37 years old, and I am trying to navigate this awful disease with my father.We are based out of California. He is 72, and he has put himself into a lot of danger (financially and physically). Some of our neighbors have called APS on him, but the neurologist says he is fully capable of making his own decisions.…
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When you take care of family members with AD,what can cheer you up or bring back old happy memories?
Sometimes I feel frustrated when taking care of my grandpa with AD.I don't feel like he's the same him anymore, and we seem to be the most familiar strangers.I wonder what will bring you guys the old happy memory that cheer you up to continuously look after your family members. Hoping to receive some kind answers to help…
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Are we just destined to endure a long slow decline?
This sounds harsh, but is there such a thing as someone getting ill for 1-2 years and managing sufficiently, then just taking a sharp downward turn for a few weeks or months and shuffling off this mortal life? By contrast, the last seven years my parents have just declined slowly and steadily while losing cognitive…
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Unsure about my diagnosis
I had a brain scan that showed my hippocampus is at 5%, but no tau tangles so it’s not Alz. My speech is slower then it was, I forget things all the time, I have trouble with thinking things through. My emotions are ridiculous. How long before I’m lost?
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Nightmares, Temporary Psychosis or Insanity
I have Vascular Dementia and was diansed 4 years ago. I would say my Dementia is mild to middlin. I have nightmares every night. Sometimes I wake up and feel as if I have lost my mind, or have temporary psychosis ( insanity). I am confused beyond anything I experience while awake. I cannot function at all. I feel as if…
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Help! To move or not to move a parent diagnosed with dememtia
Mom was diagnosed in January 2024. She mechanically very functionally. Sister and I can’t agree about moving her from where she has lived for 24 years to where sister and I live. Mom started showing signs of memory lose two years prior to diagnosis. How does one determine if moving is right or not as I have heard horror…
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New fast progressing signs of Dementia
Hi new here and in search of helpful feedback. My 85 year old dad has not been officially diagnosed with dementia yet but his pcp and er doctors all agree that he is showing all signs of being that. His behavior has changed so rapidly. He started with spying on all of us, my mom, my boyfriend and myself. We thought it was…
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Need to Move Mom from AL to MC
I moved Mom into AL in January after MUCH convincing and lies that it would only be for a few weeks. She went downhill when she arrived, had behavioral issues and was placed on an involuntary psych hold due to comments and behaviors she was exhibiting. Her medications were adjusted and she is now settling in, but due to…
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How do you keep in touch with friends and family?
My dad moved to memory care about a month ago. He moved states, about a 5 hour drive, to be in a facility closer to me. At first I had hoped the MC staff would be able to help my dad talk on the phone or zoom with friends/family, but I don’t really think that’s something they do. My dad doesn’t have his phone because he…
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First time to forum - realized I needed a support group
My DH had AD diagnosis last summer '23. He had declining memory over the past 5 years with all tests - 3 times over those years- MRIs, MRAs, EEGs, etc. and all said Normal. The only test declining was the neuro-psych test which verifies he is down to the Minimum of short term memory. He will be 70 in June - I am 66. It is…
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Need advice--meds, good days, bad days, anticipatory grief
Hi, this is long but I don't know that it can be abbreviated. My mom is 86 and has been having symptoms of dementia for the past couple years. I don't know which kind she has because she has not been formally diagnosed by a neurologist. I suspect it is lewy body. Anyway, it has gotten really bad last November after having…
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A new diagnosis
Recently the diagnosis for my spouse is vascular dementia. I do not know what to do next or what help to get. I would appreciate any suggestions. Thank you
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Sadness for my MIL
It’s been an emotionally tough day. Nothing out of the ordinary but it’s been close to two years MIL has lived with us. And I was particularly tired of not having any time alone; cooking, cleaning, entertaining and listening to her talk, talk, talk. But as I was sitting here mentally listing the 101 things I have to do…
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A life sentence
I feel so god-forsaken. My DH is in stage 6 (I think) and his constant combativeness and total confusion ruin every single waking day. Truth is I don't even like him anymore and we've been married for 50 years. When he was diagnosed the neurologist said "this isn't a death sentence" and I remember thinking "no, it is a…
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Early Stages: assessment, support, education
Hello, I am in the early stages of needing to get my LO a neurological assessment and get educated as their child on the best ways to support them moving forward. It's hard to know if they are in early stages or if aging and isolation and depression are the culprits. (want to acknowledge that i know they will exacerbate…
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Suggestions please
Hey everybody, 1st time posting. I noticed hubby having memory loss and confusion over a year ago, he is 52. Last July, he ended up in the hospital for a week, and scans confirmed something was going on in the area of his memory and emotions. Bad short-term memory loss, can't remember places he went the same day, says he…
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possibly transitioning to next stage?
Hi friends, It feels late at night even though it's 7:30PM here. Wanted to check-in about the kookiness we've had going on today. Some catch-up from the last couple of weeks: my dad might be starting to struggle with eating/using his hands. More confusion about how to do things (take pills, drink from straw). As he's…
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sad
Mom: "I'm Mary. Who are you" How the heck do you know when to put your Mom who has dementia in assisted living or memory care. I'm struggling here.
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Diagnosis needed ASAP
My dad is showing signs of dementia. He forgets things so quickly. He’s very short-tempered. This has been going on for years. He’s in denial. His mom passed away in 2011. She suffered from Alzheimer’s. How do I go about getting him some help? Do I reach out to his doctor?