-
Wendy Williams diagnosed with PPA and FTD
I know about her because when her talk show was still on the air, I'd see it when I was on the treadmill at the gym. The volume was always turned down, so I can't tell you the format of the show, only that it seemed fun and was kind of high energy. So today I saw the news about her. Here's the article I saw. She's the same…
-
MC facility not going well, but I just can't bring him home
Sorry, I just need to talk to people that know what I'm going through. Bob has been in memory care since 4/1. At first I thought things were going great, but then the downward slide started. I feel betrayed by all the positive things they told me before I chose to place him and now I just feel stuck in a bad situation.…
-
Activities to distract FTD dad
I'm reading all your posts with great interest and gratitude for all what I'm learning about this awful illness and lovely relatives that live its consequences with so much care, love and life-openness. I wanted to check if anyone had ideas for how to distract my dad when he starts with his obsessive routines. Until a…
-
I saw an update on Bruce Willis
Stuff I track …. As I read through the article, I saw that he just turned 69. I guess he stepped away from acting in 2021 or 2022, which means he was older than 65. I always thought that FTD was kind of an early onset kind of thing, but maybe I'm wrong. Or maybe he's just at the outer edges … I thought I'd post the article…
-
Some research to share
I had coffee with @GG06 today (it was so good to see her!). She shared some articles and a webinar that she thought I would find interesting. Sharing with you: https://alz-journals.onlinelibrary.wiley.com/doi/pdfdirect/10.1002/dad2.12183 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7202045/
-
Would you make tough decisions if it was allowed?
Bob has been in Memory Care exactly 1 month now. I look at him now, and realize the lengths I went to when he was home to maintain a certain level of normalcy. I worked like crazy to continually take him to the bathroom so he didn't wear diapers, now he's in diapers all day. I gave him nutritional snacks all day long…
-
husband 40 yrs old FTD
my husband just got diagnosed with fTD , I need help in finding him a place he can go during the day because I need to sleep during the day because I work at night.his family helps out with him right now but its getting to much for them . just need help with every thing
-
Interesting, if true
Smartphone app could help detect early-onset dementia cause, study finds It seems to be proficient at detecting FTD
-
Just need to vent and have someone listen.....
So, This past week I made the decision and arrangements for Bob to go to a memory care facility on 4/1. By far the hardest thing I've ever done. I still work full time, and I finally admitted to myself that neither my job or my husband/patient were getting the attention they need and deserve. Something had to give, and…
-
FTD young onset
My 55 year old husband was diagnosed with Alzheimer's 11/2023. We have will be married 31 years this April with 3 children and 7 grandchildren. Previous we had were separated for 2 years due to him checking out of life with everyone. We got back together last March 2023 for one last try. His behaviors were more bizarre,…
-
FTD staging tool
@ButterflyWings posted this and I wanted to make sure we saved a copy for the group.
-
Middle of end stage 7
My husband is only 66 and was diagnosed in 2018 with frontal lobe dementia with expressive aphasia. I am his full-time caregiver at home with the help of hospice since 2022. Currently his FAST score has him placed in the 7b stage. This last 6 years has been the most difficult time for our family and we have been told it…
-
Long distance care giver
My sister who lives in another state than I do has dementia. I don't seem to be able to get information from her family as to the type she has or what medication she may be on. I know she is getting worse and I am getting more phone calls from her. I don't quite know how to handle our conversations besides distracting her…
-
New Here (sort of)
Hi...my name is Carolyn, and I had posted on another group here (caregiver group), and a member kindly replied that it would be a good idea for me to join the FTD group as well. My 70-year-old DH had a 12-minute-long major seizure (first ever) back in mid-November, was diagnosed with AZ while recovering in the hospital.…
-
I'm having a hard time.
I was searching for support groups because I am having a really hard time and found you all. I am just so sad and grieving for my brother Doug. If I had to guess from the chart posted here that my brother is in about stage 5. There is me and my two older brothers. None of us had children so it is just us and we have always…
-
New milestone?
Today, for the first time, Ralph wet himself during the day. I've recently started putting him in a pullup at night, but leaving him in normal briefs during the day. He wet the diaper overnight. And then he wet his pants this afternoon. He couldn't get his pants down in time. Prior to last week he hadn't had any urinary…
-
AFTD Webinar bvFTD
Good morning, Early on in the diagnostic phase of Paul's FTD, I was all over the AFTD website scouring for information. I haven't looked at it much recently. Last night I went on and re-read some articles and decided to watch a webinar on bvFTD. It was EXCELLENT! The speaker was a neurologist - MD and PhD. She spoke in…
-
Some later stage behaviors
Yesterday I posted in the general caregivers forum about getting my sister evaluated (and then accepted) for hospice. If I'm doing this right, the link should be here. My rationale for the evaluation is there. Even though Peggy is very late stage 6 but probably early stage 7, she still knows who all of us are. I think…
-
In person support group
I had the opportunity to attend a support group meeting this afternoon. I was apprehensive. I had previously attended a meeting at the local modern maturity center. At that meeting all the participants were quite a bit older than me, everyone else was dealing with alzheimer's, and I felt like I had more information than…
-
CDR Dementia Staging Instrument Plus NACC FTLD
Hi Group, I wanted to share this dementia staging tool I found that includes categories for language and behavior. For some reason I can't send the link, so I'm trying to attach the pdf to my message. Let me know if you can't access the document.
-
The Last Good Christmas
@Jeanne C. started a thread in the spouse/partner forum about Christmas and whether we're doing alright. I thought about posting there, but decided it might be inappropriate because it's not my spouse who has dementia. So I thought I'd start up my own thread here. My last bona fide good Christmas was in 2018. Peggy had…
-
Pressure to place hubby
Recently several people keep "hounding" me as to when I'm going to place Bob.....just how do you decide?! I connected with the wife of a co-worker this week who lost her mother to FTD 2 weeks ago. It was so amazing to hear her story and some of the things their family went through on their journey. She said her dad was…
-
Are you happy?
Paul has asked me this question periodically throughout our marriage. I remember vividly one time in June 2021. He wasn't showering, was angry, depressed, narcissistic, and generally miserable to be around. He said, "Look, if you're not happy, you can just leave." I told him, crying, I wasn't happy, and I may. That was a…
-
FTD - NIH Research Article Review
Hi again, I'm on a roll today. @JeanneC shared this article with me a couple of weeks ago. It's lengthy but gives excellent information. I thought it would be a good one to post. Progress and Challenges in Frontotemporal Dementia Research: A 20-Year Review - PMC (nih.gov)
-
FTD-Eating Behaviors
Hi Group, I just read this article on a study of changes in food preferences, eating behaviors and neurodegeneration in the brain. It was posted on the ALZ Forum, but thought I'd include it here too. Brain Imaging Gets the Scoop on Eating Disorders in FTD | ALZFORUM
-
FTD Stories
As I’m sure you can appreciate, there is so much more to this story then I am going to share. I don’t have enough time to type it all, and you don’t have the time to read it! I’m going to do my best to give you a comprehensive, abbreviated overview of our story. I hope you will share yours too. My husband started…
-
The story of Bob
Our story is similar, yet different, like all aspects of dementia. DH was a high school biology/anatomy/env. science teacher for over 25 years. In the spring of 2015 he came home and suddenly announced he was retiring at the end of the school year (he was 60). Following retirement, he was a sub teacher 3 days a week. We…
-
Symptoms/Behaviors/Type
Hi All, Identifying my husband's type of FTD has been perplexing. He has behavior and language issues, but determining the dominant deficit is difficult. The neuropsychologist and his dementia specialist have diagnosed him with both behavioral and semantic FTD. His MRI showed mild atrophy in the right anterior temporal…