Have any questions about how to use the community? Check out the Help Discussion.

How To Be More Empathetic Towards Mom's Dementia Flashbacks

Penn34
Penn34 Member Posts: 18
10 Comments 5 Care Reactions
Member
edited August 29 in Caring for a Parent

So my older sister (long-distance caregiver who visits every 1-2 months) just took my Asian mom to her first therapy session to work out the grief from my Dad's death (He died 13 years ago) and other emotional issues that fuel my mom's dementia flashbacks. We are going to do more sessions (virtually since I don't drive) and I need advice in meantime.

My sister said that I need to stop shutting down my mom every time she has flashbacks because it's unhelpful. I've been trying to do better by saying, "I hope this helps you let go of Dad." but I'm not sure what else to say.

The reason I have been tactless up until now is because I have been my mom's primary caregiver since my Dad passed (I was 21 when this happened) and I can only get along with her when we are eating and watching a movie or tv show. We used to go out to eat and go to the movies before COVID happened, but now we can't because my mom's health issues put her high-risk for catching COVID.

I have been trying to start living my own life for the past few months by going out and socializing. Up until 6 months ago, I had been just as isolated as my mom has due to my own mental health issues and low-income. With therapy and my sister's help, I've finally started to feel like my age (mid-30s), make my first friend in years, and go on solo dates by myself. When I need a break from my mom, I take Ubers out during the day for a few hours. Despite moving slower, she can still cook, dress herself, and bathe herself (though she only does it every few days). The only issue is that is she is very lonely, which causes her to act petty whenever I go out by myself.

While I understand her being lonely, I don't want my mom to suffocate me just because I am the only other person in the house and that she misses my Dad. I already serve as her navigator when she drives short distances to Asian/American grocery stores and restaurants (I know she shouldn't be driving but I have little to no alternatives and already argued with her about this), manage the bills in the house, and live with her 24/7.

Comments

  • SDianeL
    SDianeL Member Posts: 2,291
    1,000 Likes 500 Insightfuls Reactions 1000 Comments 500 Care Reactions
    Member

    In my opinion your Mom will not benefit from grief therapy. People with dementia can’t remember so therapy may not be effective. If she asks about your Dad she may not remember he passed. I’m not sure what she’s having are flashbacks. Many PWDs are living in the past due to their dementia That becomes their reality. It may come and go. Asking her to let go of Dad does no good. Her brain no longer reasons. If she asks where he is the kindest thing is to fib and say he’s somewhere else and will be back. You might need to repeat that answer many times. Also, she should no longer be left alone. She would not know what to do in an emergency. She could wander off. She should not be driving. She could hurt or kill someone or herself. Her insurance may not pay if she’s in an accident and she could be sued and lose everything. Try disabling the car or parking it somewhere else and tell her it’s in the shop. Learn to fib to her. If you are not able or willing to care for her 24/7, please plan to place her in a memory care facility which she will soon need. Her safety is the main concern. Please discuss with your sister and make a plan together. Did you get a chance to read the book “The 36 Hour Day? It helped me after my husband’s diagnosis. We understand how difficult this is.

  • Penn34
    Penn34 Member Posts: 18
    10 Comments 5 Care Reactions
    Member

    Her geactric care doctor literally recommended therapy and my mom responded well to her first session b/c she has a therapist that's close to her age. She needed therapy years ago and frankly, I'm happy her first session went well considering me & my sister had to fib to get her to go.

    As I mentioned on my previous posts, my sister plans to move me & my mom to VA so that my sister and I can share caregiver duties while living in a house tailored to my mom and our own needs.

    And frankly, I don't think you or anyone else on this forum understands my experience as a low income young adult caregiver of color with little emotional support and resources. I am past tired of people telling me to sacrifice my own emotional needs to take care of my mother; I literally cannot take care of my mother without taking care of myself first. It took a whole year of therapy for me to undo the damage done sacrificing my mental health for my mother's sake.

    Neither my mother nor I have the fianances needed to put her in a memory care facility, it's why I am awaiting for a refferal to the GUIDE program. Even my sister, who makes more money than me, cannot afford to front the cost of putting my mom in a memory care facility.

    Other than rideshares, my Asian mom doesn't have any other options for transportation besides driving like she has been. I already fought with my mom about shopping on her behalf and there is no one nearby that can drive her. I tried looking for non-emergency elderly transportation services and found nothing that covers the county in which we live.

    I wanted to give this forum a chance but barely anything here has helped. I have only felt more overwhelmed and isolated as a caregiver and I don't want to post here any longer.

  • Quilting brings calm
    Quilting brings calm Member Posts: 2,946
    2500 Comments 500 Insightfuls Reactions 500 Care Reactions 500 Likes
    Member

    @Penn34

    I haven’t seen anyone here telling you to forget your needs to take care of mom. What I have seen is the opposite: people here think that the only way you are going to get your emotional needs filled is to stop being mom’s 24:7 caregiver. You want a social life - that’s a normal need for anyone, especially for a 30 something adult. But there is no advice that we can give you about how to get a social life when you are a 24/7 caregiver who doesn’t drive and doesn’t have caregiving help, Because in order to have a social life you have to leave your house on a regular basis.

    You don’t want to listen to our advice about stopping your mom from driving because it’s convenient for you that she drives- even though she may kill someone if she forgets to follow rules of the road. There is no help we can offer for getting groceries if you are not in an area that offers bus or Uber transportation or grocery delivery.
    You end your suster need to talk to a certified elder care lawyer about applying for Medicaid for your mother and just what that entails. Because you heed a plan B for the future because you’ve made it plain that you no longer want to be a 24:7 chargiver- and that’s totally understandable given your mental and emotional needs. However I don’t think your sister intends to be either. Even though she’s building a house.

  • SDianeL
    SDianeL Member Posts: 2,291
    1,000 Likes 500 Insightfuls Reactions 1000 Comments 500 Care Reactions
    Member

    I’m sorry if you feel we haven’t been helpful. We do understand completely what you are going through. Many of us have been where you are. Caring for their LO without help or resources. You asked in this post how you can be more empathetic toward your Mom’s flashbacks of her husband who passed years ago. To be more empathetic you need to realize her brain is not working normally. Her talking about him is caused by dementia. She can’t stop that. No amount of talking to her or therapy will stop it. Once we understand what dementia does to their brains we stop expecting our LO to behave differently. It helped me to stop considering my husband as my spouse and think of him as my patient and me his nurse. It took the emotion out of caring for him. I hope you will reconsider and stay on this forum.

  • sdgz
    sdgz Member Posts: 4
    First Comment
    Member

    People don't know you or the details of your life. You've been living with the reality of dementia caregiving for quite a while.

    No one has the answer for you. You know that.

    Getting annoyed that people haven't figured out a problem when they don't know your life is ridiculous.

    My mom isn't a bad person. When I described things she has done in the past to people, I've heard, 'You may not be able to see it, but your mother is NOT a good person and let X,Y, Z happen to you.' I know my mom made mistakes, and I also know this rando online means well, but they don't know all the tiny details that make up her life and perception. They don't know why she is the way she is. I do.

    So I do the online version of 'smile and nod' while I look over any other posts that may have wisdom to give. Odds are no, but I look just in case.

    This isn't personalized tailored fashion. It's searching a thrift store where you may find gold or absolutely nothing. Look if you want to, you may stumble upon something great.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more