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Thank you and update
Thank you for the kind words and support on my earlier discussion post. Monday and Tuesday was at my wits end with Dad. Yesterday and today he has been better. I plan to go to a local Alzheimer's support group the 27th. I also talked to my PCP. My sister is another story, I explained to her I need emotional support and she…
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Caregiver Burn Out
My father (he will be 86 on August 22nd) lives with me since my mom passed November 2024. He was diagnosed in 2018. In 2019, the began spending summers with me and wintering in Florida. It got to much for my mom not having help in winters, so in 2021 they began wintering in Texas near my sister. That didn't even last two…
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Struggling to find balance
Hi, dad lives with me and has moderate stage Alzheimer's. Despite lots of other health concerns, his progression has been very slow- I've been giving him care (first IADLs like paying bills, now progressing to physical, Hands-On hygiene and such) for a little more than a decade. In addition to this stressor, last summer I…
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New here caring for 97yo Mom with severe dementia
Hi folks, I have had my 97 yo Mother living with me since March. I am SO overwhelmed - she is snappy and mean most of the time - always right no matter what and I am so demoralized. My name is Faith. We just got accepted for TN Choices group 3 - which is crazy because she needs to be in a Nursing Home - just got accepted…
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Excessive need to grocery shop??
My mom has EO and she insists that we need to go grocery shopping every single day. Not in the sense that she is aware it is daily and believes it to be a daily task, but that she asks constantly, for hours at a time. Daily. It doesn't matter how much food we have she just wants to go. She will open the fridge and say "we…
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Suggestions about what to ask of a home health aid?
We've qualified for 24 hours of help from a home health aid paid by our insurance but I don't know what to ask of this person (if we can find one!). We are both ambulatory, ride bikes together and I manage household chores. My DH is easy going, polite, charming but needs to ask questions all the time and repeats himself…
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Alzheimer's & Alcoholism
My grandmother is a functioning alcoholic & just got diagnosed with Alzheimer's. She refused to have the all day testing done because she would rather sit at home and drink & she hasn't been deemed incompetent to make her own medical decisions so we can't make her do anything she doesn't want to do but they were able to…
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Sundowning and Frontal Temporal Dementia.
Nan is 93 and has had Dementia for about 14 years now. Has slowly gotten worse rather than sharp declines. We are now starting to get sundowning creeping in. Its a run of 7 days of it so far, I'm literally so exhausted i have no idea how i am functioning. She gets up about 1am thinking its 8am, and insists she needs to be…
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Beginning to Resent My Mom
Hello everybody! My dear spouse recommended I write about my recent feelings in here to vent, maybe get some more insight. I am 26 and am the main caretaker for my mom for about 5 years now since her Alzheimer's diagnosis in 2022. Her main "team" is myself, my spouse, and my best friend who moved in with us. I realized I…
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Dad...
My Dad was a narcissistic man my entire life so far and now he is in the nursing home for PT from a back surgery he had at the end of April. Since his surgery, we have discovered he has had multiple strokes, he has been delirious and he has vascular dementia. The surgery took 8 hours and with all of his other issues such…
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Regaining Sense of Self
Hi, all I found the video below just yesterday; and in my case it was quite timely. The video is a little over 10 minutes, but I think it is worthwhile for those of you who feel like you’ve lost who you used to be through all this physical, emotional and mental stress of caregiving. And if you feel like sharing with others…
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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Stressed Rambling Because I'm new to This
Hi everyone, my mother was diagnosed with early onset Alzheimer's and I started living with her about a month ago because she requires full time care. She was able to hide her mental decline for a long time because she has always been very independent, and we didn't have the best relationship. She is already in stage 5 or…
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Diagnosis restarts, conflicting medpro views, I'm burning out
I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…
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Need resources & ideas
Hi, My dad was diagnosed with Dementia in October of 2025 but it has progressed rapidly and he is living in an unsafe situation at home. He falls frequently at night, has hallucinations and can be very agitated and aggressive. My mom is is caretaker and is with him 24/7. I’m extremely worried about her health and well…
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Wife Slow to Move her Mom
My FIL passed away at the beginning of January. He was the sole caretaker for my MIL. They live in a very rural area. He never had her officially diagnosed. Now my wife and I are living with my MIL who according to her PCP has moderate to advanced dementia. As you all know, some days are just infuriating. She will obsess…
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How to keep their mood from ruining yours?
When my mother with early-to-moderate dementia has a bad day--ie., crying, anxious, or angry--I find it greatly affects my own mood. I am having a hard time separating my own feelings from hers, I guess. I have recently been prescribed Lexapro and it is helping to some degree, but I am wondering how other people manage to…
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Anyone have advice about power outage?? and Life in General?? My first post.
Today our home lost power for no apparent reason.. Maybe car hit a pole.. maybe lightning? I don't know.. but my parents, mostly my mom with Alz COULD NOT understand that I couldn't call someone and just have it fixed. It was out for about an hour and the complete off the chain conversation had me completely dumbfounded?!?…
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A Brain Tumor & Dementia!
My first post & it will be a lengthy back story. Sorry but I am about to stroke out. My wonderful step father of 52 years passed in March of 2023 & then my Dad passed November 2023. In Jan. 2023 found out my Mother had a very large meningioma brain tumor. Only found because she would have what I call absence seizures. She…
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Caring for my mom from afar
It was suggested that I post over here as the "Caring Long Distance" forum doesn't get as many views. I edited this from the original post with some more detail ... My mom has Alzheimer's which appears to be at stage 4. She lives with my Dad out of state and I'm about an hour away while my brother is closer to 2 hours. My…
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New member, helping my parents
My mom has Alzheimer's - stage 4 or possibly stage 5 (somewhere in between?) - clearly at the stage where she needs extra help but is incredibly resistant to accepting any help outside of family. She will basically scream about how accepting help will make her decline faster… etc (she was an RN for years and has experience…
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Care from out of state
Hello. I am in Atlanta and my parents are in Cincinnati. My mother has Alzheimer's and my father is her primary caregiver. I am feeling more and more that my dad needs more help than he is asking for and maybe even a respite care partner to come to the house for my mom so he can have a break. My godmother currently comes…
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"Survivor's" Guilt
I find that in addition to feeling guilty for the pain I am causing my mom by taking away her independence, I feel a form of "survivor's" guilt, in that it is very hard for me to allow myself to enjoy basically ANYTHING. I feel guilty feeling happy when I know she is struggling with so much (grief at the loss of her…
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Home care aggression
Hi! I’m looking for some advice - mom my was “approved” for 24/7 at home care but we’ve been struggling with her being aggressive to outside caregivers. She’s so sweet - until she’s not- which seems to take about a week then she wants them “out of her house”. She’s on all the typical Alzheimer’s medications & mood behavior…
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Bible Verse to Lift You Up 2/28/26
Psalm 5:3 WAITING EXPECTANTLY New Living Translation Listen to my voice in the morning, Lord. Each morning I bring my requests to you and wait expectantly. HOLY SPIRIT, please continue to help me think Your thoughts so I remain strong on the inside, so I am able to serve and glorify Jesus as a loving caregiver. In His name…
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Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
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Mom Won’t Stop Staring Out the Door
This is kind of a funny one, but I don’t know what to do about it. My mom has Alzheimer’s disease (moderate stage), and she loves looking outside through our windows and door. The problem is is that we have a shared driveway, so there’s usually people walking past our door. To be honest I personally would feel kinda…
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Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
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Burn out
Hi, Lately, I feel so tired and burnt out physically, mentally, and emotionally. My dad was diagnosed with Alzheimers in August. He started his first treat with Leqembi on Tuesday. He was sicker than a dog. I am watching my mom struggle to take care of him. I feel like I don't know what to do. I give my mom good advice. I…