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New Alzheimer's Diagnosis
My 70 year old wife just diagnosed with moderate late onset alzheimer's dementia. Looking for caregivers in similar circumstances that would like to discuss what you are going through and share support.
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Mom (92) mod/sev dementia … suggestions PLEASE
hello … mom (92) has lived with us for 10years but there’s been a gradual decline up until maybe the last year or so … it has gotten worse. i work out of the home so i am pretty much available to her for whatever she needs & at this point i am providing (or assisting/reminding) everything. my husband /my self … our 3boys…
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Recomendacion para un Geriatrico doctor que hable español en los angeles county?
Hola, mi mama (75) ayer fue diagnosticada con alzheimer's. Esta en las primeras etapas y el hipocampo apenas se esta agrandando. Tengo muchas preguntas pero no se ni donde empezar. Vivimos en los angeles, yo vivo con mi esposo y mi hermana mayor. Mi mama vive sola a 5min de nuestro apartamento y la visitamos diario. No…
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Sleep too much?
My mother’s sleep patterns have changed over the month. She previously would sleep 9-10 and nap once during the day. Now, she goes to bed as early as 5pm and sleeps until 11am AND naps from about 1-4pm. It can change day by day, but she is just constantly sleeping. She’ll eat breakfast but that’s the only meal. No…
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New Here
Hi, my mom has been having cognitive decline for a few years but hasn't been diagnosed. She turned 70 last year and Ive been trying to help but have little help or resources. She can still mostly take care of herself, has my father.. so power of attorney is not in the cards yet. My father has his own problems and won't be…
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Stage 7 +++?
My DW, after years of going through the stages has entered the last weeks. Has been in home hospice care for 2 months. There was a fall about 10 days ago. Has been bed ridden since then. Just water and orange juice. Very few words and atrophy of the limbs. Just another new grieving phase. Thank goodness for daily nurse…
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Wants me near always
My husband only wants me with him to care for him - no relatives or caregivers. He wants me around all the time and if I leave the house, he forgets where I am and thinks I am dead, even with reminders from the relative or caregiver with him. He worries the whole time I am gone. I am his everything, which is a lot to…
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Dementia needs
My DH was diagnosed 9 yrs ago with early onset dementia and just recently with Parkinson. I've made the following purchases which have made both our lives better. A small,lightweight wheelchair from Amazon, adult bibs, washable mattress pads, a bedrail, satin sheets and silk pajamas to help him slide in and out of bed. I…
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Tips for taking care mom has alzheimer
Hello, my name is Cindy. I and my sister live with my mom who is 84 years old and has alzheimer over 14 years now. Her behavior is changing every moment especially at night time. She was happy, and talking and certainly turned strange to us like saying we steal her stuff. She made up stories that never happened. We have to…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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Join Our Caregiver/Grief Support Group
https://chat.whatsapp.com/IyfD6t2EHeFB11LOSye1eIError link to join our WhatsApp support group. we also meet Thursday nights on zoom
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Mid-stage Dementia : Agitation and Aggression
My father has dementia. He lives with my mom in their home, and my mom is his primary caregiver- I am his secondary caregiver. About a year ago he started having issues with incontinence. A few months ago he was determined to be mid- stage dementia. After many months of urging my mom, she agreed to hire a part time…
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Kisunla infusions- treatment side effects
Hello, My dad is about to start his Kisunla infusions. I am hoping to hear from people whose loved ones or they themselves have experienced some of the infusions what the possible side effects have been. I am familiar with the listed side effects, but would like to hear from individuals who have experienced the infusions…
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Our 1st day
My wife (65) had lab work done recently and today the results were posted to her account that the lab work indicated that she has Alzheimer’s and we received a referral for a PET scan that is needed by insurance to ok the IV treatment. My wife is devastated and I have no idea how to begin to comfort her.
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Where do I start?
My 72yo Mom was just diagnosed with dementia. She lives alone. I have no clue what I’m doing. I have an appointment with senior services to do an assessment (not even sure what they do?) and an appointment with neurologist (not until end of next month). Is there a checklist somewhere? ugh, I don’t know where to start. I…
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Libre3 insulin system
Greetings - My husband is 81 and was diagnosed with Alzheimer's as well as vascular dementia about 5 years ago. He has very brittle diabetes and has just been upgraded from the Libre2 to the Libre3, which is different in many ways. The sensors look like little buttons and have a small part that goes under his skin. He's…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Feeling sad and drained.
Hi everyone. I am new to this group, as I am finally trying to better myself by seeking some sort of help. I am 20 years old, and my mom has just been officially diagnosed with Alzheimers. I am the youngest of 4 siblings by 10+ years and I am still living at home and going to school. My dad is still working and my siblings…
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Double Trouble - New to the group
I moved back to NE from Florida almost 3 years ago. I knew before I moved to Florida that my mom’s memory was getting increasingly worse. Once I moved back, I realized just how bad it had become in that short amount of time. We were able to get her to a neuropsychologist and have her tested. She has Alzheimer’s.…
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I wonder if I am seeing things not there
My wonderful husband of 49 years was diagnosed 2 years ago with MCI, he is slipping more (forgetting conversations that just occurred, throwing out items we need, personality changes, etc.) and I anticipate at our appointment with his neurologist later this month, he will "upgrade" his diagnosis. All of this being said, my…
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I am so scared
I'm so scared of what this diagnosis means for me and my mom. I've worked with a number of Alz patients while working in emergency psychiatric departments or adult psychiatric departments. It was brutal. Devastating to their kids and devastating to see their moments of clarity, briefly realizing they are losing their…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's disease.
After losing my father to a long battle with Alzheimer's, I wrote this essay to give a glimpse into this horrific disease, draw attention to the red flags (there are many people who, at this very moment, have a family member with dementia yet still do not realize it), and especially to help people navigate through the…
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Got the Job. Now What?
I was offered the job in Manhattan. Start date 10/20. 3 weeks from now. I should be celebrating, but it just complicates my situation. I have three options, none of which seem very good: 1. Take the job, and move both me and my mom up there, somehow, in 3 weeks. Find new apartments in NY, break leases, hire moving company,…
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Trying to help primary caregiver
Personal status: secondary caregiver; grandson (Edited for accuracy: Grandpa in hospital on ventilator and ng tube, Grandma watching over him; I visit sometimes) What's something primary caregivers wish a family member/other caregiver had done for you and/or the patient? I visit occasionally and sometimes bring stuff from…
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NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…
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Simple technology for ederly
I'm starting this discussion because I've finally found some peace as a caregiver. I am a caregiver for my dad, who has Alzheimer's. At one point, everything became too much for me. He started to be more needy, and his memory is getting worse. I have to leave the house to go to work, and he would call me for every single…
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Oregon Caregiver Conference
This discussion was created to help Oregon and Southwest Washington caregivers stay connected.
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Loved one is too restless, won't sleep or rest
Hello, my wife will only sleep a few hours a night, and when she's awake she cannot sit still or lie down to rest for more than a few minutes. Then she wants to walk around the house, again and again and again. She needs assistance walking, so this need for constant attention puts a strain on myself and even our 24/7…