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First Post (Mom's Caregiver) - It's a long one but please read if you can
This is my first post so it's going to be lengthy and I apologize in advance. I don't know why tonight I got to the point that I felt the need to reach out but here we are. I am my mom's caregiver and it's just hard. I'm a 45 year old female, married to my husband of 21 years and we do no have children. I'm one of those…
I would give anything to have my mom comfort me for 2 minutes...
My mom is still in the early to mid stages of ALZ, and one of the most noticeable changes in her personality, is that she no longer shows concern for other people's feelings. That's why it's so hard to spend time with her since my dad passed away in May - because she only talks about her own grief. I listen to her and hug…
Conflicted In Feelings
I love my mom dearly. I find it an honor to take care of her as she moves into the mid-stages of Vascular Dementia. But lately, when her mood shifts, and she is very much out of character I find myself screaming inside "Who are you!" In those moments I try to shift the mood and put on light music - she was a classical…
Depression as my Moms Alzheimers progresses
Hey everyone, I am new here and was looking for advice on how to deal with what feels like constant grieving. Shortly after covid hit, my mom was diagnosed with PCA, a type of dementia that affects vision. After her diagnoses, things have progressed really fast and I have been going through feelings of depression, anxiety…
Mama
On June 29, 2023 my mama passed away at 8:22 pm. I had been her full-time caregiver for almost 7 years. During that time I was also a college student. I saw my mama everyday during her illness. I didn’t want her to go on the journey alone. She was on in-home hospice for almost 2 years. The hospice my mama was with I feel…
Sadness when self-aware of decline, but perhaps bliss when not aware?
It was sad when my mother became aware of her decline in memory, and she cried on my shoulder. She forgot where she left her house keys, and after looking everywhere, it was in a kitchen drawer. Not long afterwards, she lost her checkbook, which was right on the dresser. After these episodes she became very sad about her…
My mama passed
On June 29, 2023 my mama passed away at 8:22 pm. I had been her full-time caregiver for almost 7 years. During that time I was also a college student. I saw my mama everyday during her illness. I didn’t want her to go on the journey alone. She was on in-home hospice for almost 2 years. The hospice my mama was with I feel…
How to cope with loss of grandmother.
My 93 yr old grandmother passed away on 6/10/23. She lived with us for around 7yrs and was in hospice care for 6 months before she was moved into a facility right after Easter. Her dementia had gotten worse and she needed 24hr care, which we couldnt provide any longer. I know what we had to do what was in her best interest…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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