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Grieving my dad
Hello everyone, I'm new here and I hope it's ok for me to post here even though I'm not a caregiver. I'm 24. My dad was diagnosed with frontotemporal dementia almost 6 years ago, during the summer between my freshman and sophomore years of college. My parents are both in their early 60s and my mom is my dad's primary…
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Competely overwhelmed and in tears or on the verge of tears ALWAYS
Hi all! I'm new here. My 59 yo DH was diagnosed with early onset alzheimer's and primary progressive aphasia in Sept 2020. He was able to continue working until Dec of 22. He's been home and frustrated and bored and angry since then. He gets so confused and believes things that haven't happened. Sees things and people do…
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Hey Everyone
My name is Chris. My dad was just diagnosed with Alzheimer’s this week at the Mayo Clinic. I will be, along with my brothers, assisting my stepmother in caring for him. This is all new and overwhelming at this point. I hope to learn more and find some support here. Thanks!
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Father caring for mother
Is anyone like me in a situation in which their father is caring for their mother with Alzheimer's? I am the only daughter (one sibling is deceased, the other is not physically well and not emotionally suited to helping the way that I do). My father, in his 80s, is amazing in many ways as a caregiver (especially in his…
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It's so lonely
hi I am Amy (61) and my husband (64) was diagnosed with early onset Alzheimer's in June 2023. Since I am also disabled I knew we had to get out of our house and into a care environment before disaster struck. We are in a really nice Assisted Living place now. Currently Ive been feeling lonely even though we're together all…
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To correct or not....?
I am new to the support community. My mother was diagnosed with Alzheimer's in 2022. She is now in an Assisted Living near me. She is always wanting to have these deep conversations with me about her living situation but never really comprehends what I tell her. She keeps referring to the Assisted living as "school" and…
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Praying for this to end
My DH is stage 7, still ambulatory, good appetite, vitals all okay...counting my blessings....is it wrong to wish he will pass before "it gets worse" I am so done with these stages, wondering what I will wake up to each day, crossing off each day on the calendar only to look at a new month with no end in sight...I'm so…
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How did you get through the diagnosis?
My partner has been diagnosed with Alzheimer’s disease, he is 72 and I’m 64. Three years ago last August I lost my 91 year old mother to Alzheimer’s after a 6 year battle and I have no illusions about where this disease is going. I don’t have any friends or family that has lost their beloved this way, apart from my father,…
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Fearing the future
My 83 yo Dad was diagnosed in November 2023. I’m guessing he’s in late 2 or early 3 stage. Still lives alone and drives. We visited 3 IL places. He doesn’t want to move from his 3K sq. ft. house into 900 sf. What have been your experiences moving your parent to AL or MC at later stages? I’m also his caregiver paying bills,…
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Feeling Conflicted and Guilty about moving on…
My wife is in the mid to later stages of AZ and is struggling to communicate, she sits quietly most of the time. In addition to AZ she has a genetic eye defect that is incurable, she is legally blind and needs help with everything. I am her caregiver and have given up most of my exercise and outdoor activities to support…
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Are my dad’s visits making my mom more anxious
Hello- my mom currently lives in memory care which I am so, incredibly grateful for every day as neither myself or my dad could support her needs at home anymore. We had to move out with our young children when my mom had delusions and hallucinations because she thought my husband was abusing our kids, abusing me, it was a…
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New Here & Need to vent - Mom has Alzheimer's and Dad is stubborn...
Hi Everyone - I am so happy to find this community as I am definitely struggling with many things! I mostly just need to share and vent and I appreciate the space to do so. Here goes. My parents (married 60 years) live together in a 55+ community (independent - no outside help except family) about 30 minutes from me. My…
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Care Taker Under 30
Hello to all! I'm making my first post here to try and gain some insight from people who are in a similar position as I. My mom is not even 60 yet, but she was diagnosed with Alzheimer's (early stage thankfully) back in 2022, so this is all still fairly new as we both adjust to our new realities. It's been quite difficult…
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How do I move forward?
I lost my husband on September 30th. He fought long and hard, but he couldn't anymore. For 21 years I have shared my life with him and over the last 10 years I was his caretaker helping him face so many medical issues. The last 3 years I was with him 24 hours a day (3 times I had to leave for a few) which is the care he…
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Just exhausted
I need to vent a little and this is a good place to do so. I am mentally, and physically exhausted. It seems like I have rarely had a moment to myself in years. I just want time to focus on my own health because my back is killing me and might need surgery. I'm overweight and want to start exercise and diet to lose weight…
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New and Grieving with Questions
Thanks for adding me to the group. I am new to this beast. My DH was diagnosed July 17 (Monday) with Alzheimer’s and I am grieving. I don’t even know what to do and it’s hard to even breathe. I just cry. I’ve being seeing his decline for a couple years and when we had a defining moment, it took six months to get the…
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Mom forgets that Dad has passed
We helped my mom move from her home of over 45 years into a retirement community last December. I'd say she's in Stage 5 of Alzheimer's, but still in independent living. She doesn't love it and hasn't embraced being around other people, mostly because she knows her memory is not good. She recently started forgetting…
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I used to pity my DW, but anymore I envy her.
Honestly, as my beloved enters the near end of her AD, I sometimes envy her her mental loss. Mentation is that of a 2 year old, but as those of us here know, that is never a crisp analogy. She seems happy most of the time-laughs, talks to her dolls and anamatronic cats. I don't even remember what "happy" felt like. She has…
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First Post (Mom's Caregiver) - It's a long one but please read if you can
This is my first post so it's going to be lengthy and I apologize in advance. I don't know why tonight I got to the point that I felt the need to reach out but here we are. I am my mom's caregiver and it's just hard. I'm a 45 year old female, married to my husband of 21 years and we do no have children. I'm one of those…
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I would give anything to have my mom comfort me for 2 minutes...
My mom is still in the early to mid stages of ALZ, and one of the most noticeable changes in her personality, is that she no longer shows concern for other people's feelings. That's why it's so hard to spend time with her since my dad passed away in May - because she only talks about her own grief. I listen to her and hug…
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Conflicted In Feelings
I love my mom dearly. I find it an honor to take care of her as she moves into the mid-stages of Vascular Dementia. But lately, when her mood shifts, and she is very much out of character I find myself screaming inside "Who are you!" In those moments I try to shift the mood and put on light music - she was a classical…
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Depression as my Moms Alzheimers progresses
Hey everyone, I am new here and was looking for advice on how to deal with what feels like constant grieving. Shortly after covid hit, my mom was diagnosed with PCA, a type of dementia that affects vision. After her diagnoses, things have progressed really fast and I have been going through feelings of depression, anxiety…
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Mama
On June 29, 2023 my mama passed away at 8:22 pm. I had been her full-time caregiver for almost 7 years. During that time I was also a college student. I saw my mama everyday during her illness. I didn’t want her to go on the journey alone. She was on in-home hospice for almost 2 years. The hospice my mama was with I feel…
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Sadness when self-aware of decline, but perhaps bliss when not aware?
It was sad when my mother became aware of her decline in memory, and she cried on my shoulder. She forgot where she left her house keys, and after looking everywhere, it was in a kitchen drawer. Not long afterwards, she lost her checkbook, which was right on the dresser. After these episodes she became very sad about her…
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My mama passed
On June 29, 2023 my mama passed away at 8:22 pm. I had been her full-time caregiver for almost 7 years. During that time I was also a college student. I saw my mama everyday during her illness. I didn’t want her to go on the journey alone. She was on in-home hospice for almost 2 years. The hospice my mama was with I feel…
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How to cope with loss of grandmother.
My 93 yr old grandmother passed away on 6/10/23. She lived with us for around 7yrs and was in hospice care for 6 months before she was moved into a facility right after Easter. Her dementia had gotten worse and she needed 24hr care, which we couldnt provide any longer. I know what we had to do what was in her best interest…