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caring for an estranged grandmother with rapidly progressing alzheimers, no POA and....
Caring for an estranged grandmother with rapidly progressing Alzheimer’s, no POA, and an immediate need for 24/7 supervision I’m reaching out because my family has been thrown into a rapidly escalating situation, and we need advice from people familiar with the gap between realizing someone needs 24/7 care and actually…
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Mom's REPETITIVE Calling on Cell Phone - HELP & SUGGESTIONS needed
Mom is calling siblings, extended family and friends a huge amount of times a day asking for assistance in moving her back to her home from care center. An example...my sister received 30 calls on Tuesday and by early afternoon yesterday had 15. My brother received 15 calls yesterday and his wife as well. Care staff…
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Moving things out of my sister's apt.
My sister with Alzheimer's has been in assisted living now for 3 months. It was rough going getting her in. For weeks she wanted to return to her apartment where she lived alone. She now seems happy and settled and is willing to give up her apartment. We plan to move her things out next month. My question, should I let her…
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Compassion Fatigue
Compassion fatigue TED Talk [https://youtu.be/ZsaorjIo1Yc?si=L07hszirRcCX-mXP]
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What happens between dementia appointments?
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Trying to help primary caregiver
Personal status: secondary caregiver; grandson (Edited for accuracy: Grandpa in hospital on ventilator and ng tube, Grandma watching over him; I visit sometimes) What's something primary caregivers wish a family member/other caregiver had done for you and/or the patient? I visit occasionally and sometimes bring stuff from…
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Another Surgery?!?
Today dad goes in for surgery. He has severely unmanaged type 2 diabetes and his last surgery advanced his dementia so much that he has gone from stage 3 to stage 5 quickly. He is having yet another digit removed from his foot and the hospital is acting like it is no big deal… I feel it is a bigger deal than they are…
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Friend recently diagnosed - I'm seeking tips for interacting
Friend has consistent memory lapses. They often can't remember what day of the week it is. I meet them at the gym on Tuesdays and Thursdays. I send them a reminder text the night before and send one again the next morning about 45 minutes before we meet. They are unable to operate the locker combination at the gym without…
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Tips for Caring From a Distance
I live in Oklahoma and my mother and stepdad live in Maryland. My stepdad is currently in a memory care facility with advanced Alzheimer's. My mother has a severe physical disability and has also recently been diagnosed with early stages of Alzheimer's. My sister and her husband moved into my mother's home to care for her,…
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Worried About My Mom
The symptoms are certainly not new but especially over the past year they seem to be getting worse and worse. I'm getting to the point where I feel confident that I know what is happening to Mom and I don't really know what I can do. My mom and I have always had a really difficult relationship and I live across the country…
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How to inform your parent of major home maintenance plans
Does anyone have advice on how to inform a parent about major necessary home repairs? My siblings and I live out-of-state from my mom. While she still lives independently, she has trouble with executive function, particularly finding and hiring people to do home maintenance. Her roof is old and is in a state of total…
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Has anyone used out-of-pocket AD biomarker blood tests (p-tau217, amyloid blood test)
Posting on behalf of a family in Virginia dealing with a frustrating situation. My friend's father is showing clear functional decline in daily life — the family has noticed definite changes — but his screaning test(maybe MoCA?) came back normal. Because of that result, his doctor is refusing to order further workup like…
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Are digital memory boards helpful?
We have been considering purchasing a digital memory board for my parents. Mom is in LTC and Dad in AL. Mom’s memory is starting to fade. Dad has diagnosed ALZ. Thinking it would help with reminders of hair appointments, activities, share photos, etc. But it’s a good investment so wanted to see if anyone has found them to…
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Feeling helpless
My Mom has entered the later stages of early onset, 68 years old. Since the time change for daylight savings things have gotten worse quickly. Recently, she has had the police called on her for wondering the neighborhood and trying to enter strangers cars. This has all culminated in a fall and a broken foot landing her in…
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Mom Diagnosed with Early Onset at 60
Hello, I am new here and looking for advice. My mom had been experiencing some forgetfulness the past couple years. She lost her job about a year ago because she couldn't handle the tasks required of her. My brother and I tried to get her to go to the doctor multiple times for diagnosis but she refused until… she was a…
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Unsure of how to proceed
i am my 76 year old grandmother’s only family and caregiver. She lost her husband (my pop) 5 years and and her son (my dad) 30 years ago. She has always been hyper independent and very successful. Last year she noticed some changes in her memory and sought treatment from a neurologist. In September she scored a 21/30 on…
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My Grandma has been diagnose but family won't accept it!
Hey there... long story short, my Grandma was diagnosed with dementia back in 2023 and my mom and aunts and uncles didn't share this information with anyone! Fast forward to today, my Grandma was in the hospital due to an UTI infection, and while I was there, the doctor mentioned her vascular dementia diagnosis and said he…
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Travel documents for parent with dementia?
(Apologies, but I feel like I have to redact this post and the follow-ups at this point to keep some details private. Thank you all, especially H1235 and Victoriaredux.)
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A discreet wandering safety idea: AirTag insoles (easy to check location if someone gets lost)
Hi everyone, I’m in this community as a fellow caregiver / supporter, and I wanted to share something I recently came across that could help with wandering risk. The Alzheimer’s Association notes that 6 in 10 people living with dementia will wander at least once (often more than once). I have attached the link to the…
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New here. Need help understanding.
I’m at the beginning stages of learning about dementia and how to help my mom navigate dementia. She recently became aggressive toward me and accused me of stealing some dolls from her. She told me I was the devil and she was going to shoot me with a gun. Although I wasn’t in any real danger, it was still scary and it…
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New to Alzheimer's
Hello all thank you for providing a network of caregivers to help guide others through this horrible disease. My grandfather was officially diagnosed over a year ago with Alzheimer's. I am his MPOA and am new to all of this. I am just wondering if anyone has any advice on the following. He has UHC Medicare Advantage and I…
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Guardian-family angry at my decisions
I have been a guardian for 5 years. We make very difficult decisions daily. Family members always think it is their right to tell me my decisions are wrong. I always ask prior for professional advice. My person has not asked for their wedding ring. I have been told to not give valuables to your loved one. Yet family…
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After Years of Caregiving, Uncle w/Dementia Needs Remote Support - Affordable Tech/Dev Suggestions
I'm at a major crossroads and feeling a huge mix of relief, guilt, and stress. I'm hoping for some practical advice, especially from those who've managed long-distance care for someone with dementia. For the past few years, my life has been completely dedicated to caring for my uncle. He got divorced about 10 years ago and…
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
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I want to offer help to my partner but I don't know what to do.
Hello, my partner's uncle has started to show the signs of early stage Alzheimer's and while I have had family members experience this in the past never someone as close as they are with their uncle. He lives in a different city and while they are trying to spend as much time there as they can I want to help however I can…
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Advice for getting help for cousin
My cousin, with no immediate family, has been showing signs of dementia for over a year. I live in another state and cannot travel due to husband's health issue. I've talked to her friends and asked for their help,but no one wants to be the one to tell my cousin, or take her to doctor. Is there a good way for me to tell…
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Looking for someone to help me launch Support Grouo.
I am the Pastor/Chaplain for Holbrook Acworth. I am looking for someone to help me facilitate a monthly support group at our location.
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Not Sure What Is Happening to Mom
Hi everyone - I’m new here and I’m kind of just looking for info and maybe some small emotional support. My mom is 73 and for the last 3-4 years she has been having random mood swings and changes in personality. Most of the time when I speak to her, she has a circular conversation and repeats the same story over and over.…
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Taking Away The Credit Card
My father was recently diagnosed with Alz. He understands the situation. Always had a very argumentative relationship with my mother and there are some trust issues. Now I received this from my mom: "A few days ago, your father was listening to a medical sales pitch on the internet, he was convinced that it was a product…
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Hello!
My dad was diagnosed with late on-set Alzheimer's dementia type with depression in October of 2024. Although I have suspected for 4 years before his diagnosis. I have been living with him for 15 years, so I noticed the changes in his memory and how his brain worked as it was happening. I also have a daughter with her own…