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New paranoia- Passenger Seat
It was around a year ago when I first saw my mother have a severe panic attack riding in the passenger seat. I had no idea why she was so upset, she couldn't look at the road, and eventually started crying. I try to comfort her from the back seat. The person driving wasn't speeding and it was not heavy traffic yet she kept…
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Catastrophic Reaction to pain
My mother, 83 , Mixed Dementia (Vascular & Alzheimers) mid to late stage, lives with me and has been Physically able to transfer and walk with a walker us to this point. However, she had a fall last week, and even though she didn't fracture her hip or pelvic area, she is reacting to the pain in such a severe and dramatic…
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A life sentence
I feel so god-forsaken. My DH is in stage 6 (I think) and his constant combativeness and total confusion ruin every single waking day. Truth is I don't even like him anymore and we've been married for 50 years. When he was diagnosed the neurologist said "this isn't a death sentence" and I remember thinking "no, it is a…
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Fed up from the life.
Previously i posted about me feeling that i am forgetting things and losing my memory. I don't remember any happy memories seems they are somewhere in the dark and as much as i know I had many happy memories with kids, family and with the person I love. I am in love with a person, i am going through many things, having…
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How to do long-distance move into memory care
My uncle has dementia and has recently progressed to the point where he can no longer live alone. He has no close family or friends nearby and my father (his brother) has found memory care near his home, but it is many states away from where my uncle currently lives (18 hour drive or 3-4 hour flight) My uncle is confused…
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Hallucinations
Hello everyone, I'm new to the group. My mom was diagnosed with dementia in October of 2023 & she's been having bad hallucinations the last few months. She believes the neighbors are trying to move the property line, have dug tunnels under our home and that someone is coming into the house and moving/stealing her clothes,…
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Wife refuses medical help
After 3-4 years of increasing memory loss, Finlay was able to get DW to her PCP (prescribed sertraline for anxiety) and neurophysiological testing. Diagnosed with presumptive AD but she is in denial and refuses further follow up. Related: about 12 months ago she began to not recognize me. Not sure what to do
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Suggestions please
Hey everybody, 1st time posting. I noticed hubby having memory loss and confusion over a year ago, he is 52. Last July, he ended up in the hospital for a week, and scans confirmed something was going on in the area of his memory and emotions. Bad short-term memory loss, can't remember places he went the same day, says he…
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Trust is gone..
I'm just kind of thinking about our relationship because it's Valentine's Day. After his outbursts of screaming and throwing objects last week, as well as telling me he's going to "leave me" I'm not sure what to believe. This week is a whole different ball game with multiple requests that I forgive him. I do forgive him…
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Just starting journey…
My MIL has not been formally diagnosed with Alzheimer’s, but her mother had it and we have no doubt. She lives with my FIL, and we just went to visit after about 3 months absence. I had my doubts that she knew who we were before, but now she absolutely doesn’t know us. She calls us “hon” as a general catch all. She does…
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Mom thinks I’m wearing a mask
Hi all! For the past few months my mom has made comments about how I am not her daughter although I look like her. She has made comments about me wearing such a good mask because I look so much like her daughter. She also says that her daughter hates her and does not want to be around her so I cannot be her daughter when I…
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Tips for dealing with some issues I am having with my FIL (85)
Hello, I am primary caregiver during the day for my father-in-law who has been dealing with memory issues 10 years, diagnosed with Alzheimers 2 years ago. And Jennifer previous post about this being hard is on point. I am getting frustrated bc he can't control his bladder at night and I am washing sheets every day. He is…
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Finding balance while managing guilt.
My mom is heavily dependent on me. Even though my mother is living in a AL, she expects and asks to see me everyday. I try to see her as much as I can as I know seeing me comforts her but I am having trouble balancing everything. In addition to caring for her, I also am trying to maintain my own household, care for my…
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Mother gave my brother and sister-in-law POA and all legal powers but they don’t want to do anything
Hello all- I am new to this community. My mother is in the process of her diagnosis and it has been hell. She has been diagnosed with “Mild Cognitive Impairment” but the MRI shows severe damages from silent strokes. She failed her driver license exam because of 4 critical driving errors (1 CDE disqualifies you). She has…
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Grandpa’s phone calls
Hi everyone, I’m new here and seeking some advice. I have just recently learned that my grandpa has dementia. He still lives independently and I was unaware of his condition until now because my uncle didn’t tell me — all of my conversations with him had seemed normal until this weekend. For the past few days, he has been…
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What progress are you aware of in your day to day life?
I'm 3 years in from being told I have PPA FTD. Four maybe five since I noticed something was wrong. I am still awaresof most things, or at least I think I am. I lose things everyday. I drop things I've forgotten. i am holding in my hands. Time is nothing to me anymore I read my clocks backwards soiI hate the big and little…
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Valentine’s Day Lunch
I guess lunch went as well as expected. We went later so that there would be fewer people. A local highly regarded Italian restaurant. No waiting (praise God) but MIL did not like the table we were shown and wanted to move to a window table. I went to ask the hostess (who said no). When I told MIL, she said she’d already…
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Has Your Loved One Ever Had Behavioral/Cognitive Changes from Both UTI & Medicine?
Hello, Recently, my sister, who has Alzheimer's, was started on an anti-seizure medication. Shortly thereafter, she started exhibiting extreme behaviors and the staff at her memory care unit were concerned she had a UTI. I took her to her neurologist who said it was the anti-seizure medication that caused her symptoms and…
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Patient will not shower
My LO is in memory care. He will not shower. It's been 3 months, and no shower. He won't leave his room. If he gets rattled, he mutters over and over, "God, please let me die."
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LO Refuses Care
Hi Everyone, My parent is in late stage dementia and we cannot find proper care for him. He can still physically speak, but nothing he says makes sense and he cannot respond in a logical way to even the simplest questions. We recently made the hard decision to move him to a memory care facility, but he was promptly removed…
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Mom thinks she still works - she doesn't.
First- THANK YOU for any response. I am the eldest daughter, and my father is the primary caregiver of my Mom who has been officially diagnosed with Amnestic MCI (doc suspects we are heading into early stage AD.) Mom is starting a new trend of getting ready for work each morning and telling my Dad that she is going into…
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Question about Ongoing Issue with LO
Hello all. My husband and I are caring for his mother who has Dementia. She is having an ongoing issue that we have taken her to multiple doctors for with no real answers. We are wondering if anyone may have experienced similar issues. Our LO says she feels like she has tons of phlegm or saliva in her throat all the time.…
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Early Onset Symptoms... What was your story? How did you tell your loved one that you were worried?
Hello everyone! I'm new here. My aunt reached out to me to let me know she was starting to become concerned about my great-uncle (who is in his early 50's.) He's been having some memory lapses and increased anxiety/frustration. His father had early-onset dementia, and this has us especially worried. We're trying to work…
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Mom seeing ghosts
Hi everyone! I am new and this is my first post. My mom was diagnosed about a month ago with Alzheimer’s. She lives alone and is on Medicare which does not cover Alzheimer’s care. She is seeing ghosts and wants them to leave and to not argue I’ve asked the ghosts to leave, etc. but she says she still sees them and that…
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Repeating the same story
My brother is in an assisted living facility and I provide in-person care 2 or 3 times a week for about 3 hours each visit, and talk on the phone daily. He repeats the same stories every time we talk (nearly word for word). For example, he will say "did you know they found salt on Mercury (slight pause) who cares!!!" Other…
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Recent Alzheimer's Diagnosis for Dad - Learning on the job
Hi guys, We have recently had a diagnosis of Alzheimer's given to Dad, compounding his battle with Prostate Cancer. In addition to the mental anguish of the situation, the practical issue we are having to cope with is daily (sometimes twice daily) faecal incontinence. I wondered if anybody had any practical tips, however…
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2 possible symptoms: Social withdrawal and hoarding, question about?
Hi-- My first question is about a social withdrawal symptom: I can count 22 people - family and friends - who my person has intentionally offended over the last few years. In some instances to try to keep them from staying in our house as vacation guests. We have typically stayed in other family members' homes, sleeping in…
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Am I going crazy...
For the past 3 weeks my DH has been sleeping all day long. He hasn't been eating and has lost a lot of weight. He was diagnosed with Dementia about 6 years ago. If he gets up, it is usually about 5 pm and he rarely gets dressed. BUT now, for the last two days, he has gotten up around 3 pm and gets dressed? He has actually…
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I'm asking a question but she thinks I'm giving orders..
That's what I think is happening. I ask..."are you ready to go to bed?" She says, "I guess." She doesn't sound thrilled but she goes upstairs. I get that a lot and I sometimes think she does the "I guess" or shrugs her shoulders because she thinks she's being ordered to do something. I'm asking, not ordering & I try to use…