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Another outburst...doctor suggests new drug...MC
I am just sharing because it helps me to get this off my chest. My DH had another outburst on Thursday night which was truly frightening. My one interest that takes me out of the house is rehearsal for a musical group I belong to, which happens each Thursday evening. Since myself, my DDIL and DS are all a bit afraid of…
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Venting/Help
Hello all, I just joined this group and have been reading posts to try to figure out what is happening with my dad and how to handle it. His situation does not fit neatly into any diagnostic criteria from what I can tell. Sorry, this will be long. He is 85, my mom died about 10 years ago. I live a few miles away, my…
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When you take care of family members with AD,what can cheer you up or bring back old happy memories?
Sometimes I feel frustrated when taking care of my grandpa with AD.I don't feel like he's the same him anymore, and we seem to be the most familiar strangers.I wonder what will bring you guys the old happy memory that cheer you up to continuously look after your family members. Hoping to receive some kind answers to help…
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Memory care fears
I have had my stage 6 DH on waiting lists for two small residential memory care homes. I just got word that one of them is likely to have an opening in two months or so. Immediately my fears skyrocketed about whether my husband will think I have betrayed him when I have him move. He is cognizant in the moment but doesn't…
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MC failed us
I reported a month ago DW had difficulty going from home to MC, explosive agitation, being combative with staff and other residents - went to ER and then psych hospital. MC gave assurances she could return when stabilized. Psych hospital stay ended up being 25 (!) days with multiple adjustments to meds. She was already on…
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"lost in current time"?
Tam Cummings lists this as a late stage 5 characteristic. But I’m not quite sure what it means? Also, recently I’ve noticed that when MIL refers to “my family”, she always means her nuclear family as a child. Is this just an indication of her older memories being stronger than more recent memories? We had a recent…
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Changing Assisted Living Communities - VENT
Hi everyone. I'm new here and I am in the process of exploring the different discussions posted. I appreciate all of the information everyone has shared. It helps me to feel like we are in this together. I wanted to get some things off my chest and I didn't know where else to go. I am an only daughter and I care for my…
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New paranoia- Passenger Seat
It was around a year ago when I first saw my mother have a severe panic attack riding in the passenger seat. I had no idea why she was so upset, she couldn't look at the road, and eventually started crying. I try to comfort her from the back seat. The person driving wasn't speeding and it was not heavy traffic yet she kept…
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Catastrophic Reaction to pain
My mother, 83 , Mixed Dementia (Vascular & Alzheimers) mid to late stage, lives with me and has been Physically able to transfer and walk with a walker us to this point. However, she had a fall last week, and even though she didn't fracture her hip or pelvic area, she is reacting to the pain in such a severe and dramatic…
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A life sentence
I feel so god-forsaken. My DH is in stage 6 (I think) and his constant combativeness and total confusion ruin every single waking day. Truth is I don't even like him anymore and we've been married for 50 years. When he was diagnosed the neurologist said "this isn't a death sentence" and I remember thinking "no, it is a…
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Fed up from the life.
Previously i posted about me feeling that i am forgetting things and losing my memory. I don't remember any happy memories seems they are somewhere in the dark and as much as i know I had many happy memories with kids, family and with the person I love. I am in love with a person, i am going through many things, having…
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How to do long-distance move into memory care
My uncle has dementia and has recently progressed to the point where he can no longer live alone. He has no close family or friends nearby and my father (his brother) has found memory care near his home, but it is many states away from where my uncle currently lives (18 hour drive or 3-4 hour flight) My uncle is confused…
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Hallucinations
Hello everyone, I'm new to the group. My mom was diagnosed with dementia in October of 2023 & she's been having bad hallucinations the last few months. She believes the neighbors are trying to move the property line, have dug tunnels under our home and that someone is coming into the house and moving/stealing her clothes,…
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Wife refuses medical help
After 3-4 years of increasing memory loss, Finlay was able to get DW to her PCP (prescribed sertraline for anxiety) and neurophysiological testing. Diagnosed with presumptive AD but she is in denial and refuses further follow up. Related: about 12 months ago she began to not recognize me. Not sure what to do
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Suggestions please
Hey everybody, 1st time posting. I noticed hubby having memory loss and confusion over a year ago, he is 52. Last July, he ended up in the hospital for a week, and scans confirmed something was going on in the area of his memory and emotions. Bad short-term memory loss, can't remember places he went the same day, says he…
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Trust is gone..
I'm just kind of thinking about our relationship because it's Valentine's Day. After his outbursts of screaming and throwing objects last week, as well as telling me he's going to "leave me" I'm not sure what to believe. This week is a whole different ball game with multiple requests that I forgive him. I do forgive him…
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Just starting journey…
My MIL has not been formally diagnosed with Alzheimer’s, but her mother had it and we have no doubt. She lives with my FIL, and we just went to visit after about 3 months absence. I had my doubts that she knew who we were before, but now she absolutely doesn’t know us. She calls us “hon” as a general catch all. She does…
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Mom thinks I’m wearing a mask
Hi all! For the past few months my mom has made comments about how I am not her daughter although I look like her. She has made comments about me wearing such a good mask because I look so much like her daughter. She also says that her daughter hates her and does not want to be around her so I cannot be her daughter when I…
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Tips for dealing with some issues I am having with my FIL (85)
Hello, I am primary caregiver during the day for my father-in-law who has been dealing with memory issues 10 years, diagnosed with Alzheimers 2 years ago. And Jennifer previous post about this being hard is on point. I am getting frustrated bc he can't control his bladder at night and I am washing sheets every day. He is…
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Finding balance while managing guilt.
My mom is heavily dependent on me. Even though my mother is living in a AL, she expects and asks to see me everyday. I try to see her as much as I can as I know seeing me comforts her but I am having trouble balancing everything. In addition to caring for her, I also am trying to maintain my own household, care for my…
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Mother gave my brother and sister-in-law POA and all legal powers but they don’t want to do anything
Hello all- I am new to this community. My mother is in the process of her diagnosis and it has been hell. She has been diagnosed with “Mild Cognitive Impairment” but the MRI shows severe damages from silent strokes. She failed her driver license exam because of 4 critical driving errors (1 CDE disqualifies you). She has…
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Grandpa’s phone calls
Hi everyone, I’m new here and seeking some advice. I have just recently learned that my grandpa has dementia. He still lives independently and I was unaware of his condition until now because my uncle didn’t tell me — all of my conversations with him had seemed normal until this weekend. For the past few days, he has been…
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What progress are you aware of in your day to day life?
I'm 3 years in from being told I have PPA FTD. Four maybe five since I noticed something was wrong. I am still awaresof most things, or at least I think I am. I lose things everyday. I drop things I've forgotten. i am holding in my hands. Time is nothing to me anymore I read my clocks backwards soiI hate the big and little…
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Valentine’s Day Lunch
I guess lunch went as well as expected. We went later so that there would be fewer people. A local highly regarded Italian restaurant. No waiting (praise God) but MIL did not like the table we were shown and wanted to move to a window table. I went to ask the hostess (who said no). When I told MIL, she said she’d already…
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Has Your Loved One Ever Had Behavioral/Cognitive Changes from Both UTI & Medicine?
Hello, Recently, my sister, who has Alzheimer's, was started on an anti-seizure medication. Shortly thereafter, she started exhibiting extreme behaviors and the staff at her memory care unit were concerned she had a UTI. I took her to her neurologist who said it was the anti-seizure medication that caused her symptoms and…
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Patient will not shower
My LO is in memory care. He will not shower. It's been 3 months, and no shower. He won't leave his room. If he gets rattled, he mutters over and over, "God, please let me die."
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LO Refuses Care
Hi Everyone, My parent is in late stage dementia and we cannot find proper care for him. He can still physically speak, but nothing he says makes sense and he cannot respond in a logical way to even the simplest questions. We recently made the hard decision to move him to a memory care facility, but he was promptly removed…
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Mom thinks she still works - she doesn't.
First- THANK YOU for any response. I am the eldest daughter, and my father is the primary caregiver of my Mom who has been officially diagnosed with Amnestic MCI (doc suspects we are heading into early stage AD.) Mom is starting a new trend of getting ready for work each morning and telling my Dad that she is going into…
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Question about Ongoing Issue with LO
Hello all. My husband and I are caring for his mother who has Dementia. She is having an ongoing issue that we have taken her to multiple doctors for with no real answers. We are wondering if anyone may have experienced similar issues. Our LO says she feels like she has tons of phlegm or saliva in her throat all the time.…