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Guns
Hi my father is in the early stages of Alzheimer’s. We live in rural Alaska and he has always had an arsenal of guns in our home. He always carries one with him everywhere we go. He hasn’t given me any reason or worries about his guns. He also hasn’t shot them in almost year or so. But I know there is going to be a day…
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New to the group
Hi to all of you. I just stumbled onto this site. I don't know if it's normal to have a dramatic turn in abilities or memory or if it comes and goes quickly? My FIL started down this road last December. He has bouts of not knowing how old he is. He's 77 and he thinks he is 20 then 30 then 50. He has always worked right up…
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Hypnagogic hallucinations
My wife told me she's been having trouble when trying to fall asleep because she's seeing things like vivid scenes of people and something like static on an old TV. We did a Google search and it sounds like hypnagogic hallucinations. We haven't been able to find any connection with MCI or dementia. But this is something…
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Building diet resources after my father's early-onset diagnosis - seeking your experiences
Hello everyone, My father was diagnosed with early-onset Alzheimer's earlier this year, and through our journey, we've found it challenging to find good dietary resources and support. I'm working on building an online resource to help others facing similar challenges. Before building it, I'd really value hearing about your…
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From Maybe to Reality
DH in ES thought. Then, several episodes of mis-rememering, including asking our adult son if he remembered a certain episode from his (DH's) youth. For the past 3 weeks he has been just fine, more or less, just the occasional lost word. In my mind I knew he still had Alz, but it just seemed like , well, maybe it will be a…
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Arguments that seem impossible to stop
Hi, alright I am new on this and taking care of my 72 year old mother. Are there any simple ways to get a person with dementia to stop arguing? Once my mother gets mad it seems impossible to get her to even attempt to think of something different. She likes to just make it seem like I have ruined her entire life and no…
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Medicare and Leqembi
Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…
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Moving LO to a condo
Both my parents have dementia/AD. They both are in the moderate stage and they can no longer live in their house far from any family. My siblings want to buy a condo with my parent’s funds, move them to it and get them 24/7 care. They think my parents will easily adjust. I’m not convinced this is the right solution. I’m…
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Living with a parent with early onset dementia
Hello 👋🏽 I am new to taking care of a parent with dementia. It has been a complete struggle for me. I am a single mother to a beautiful son who is diagnosed with autism. My mother was told by her doctor that he is taking away her drivers license and has asked me to “hide” her car. She is now questioning me about her car…
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Should I share my own surgery recovery with my LO that is in assisted living?
I have been caregiving for my mom for 4 years, moved her to assisted-living two months ago. I was consistently visiting her 4 to 5 times a week to assure her she is still loved and we are not abandoning her. She has vascular dementia and is resistant to much care so she doesn’t let the assisted-living staff do hardly…
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For Older Unmarried Couples, Caregiving Obligations Can Be Murky
Gifted link from the NYT. An article about caregiving issues specific to older unmarried couples. https://www.nytimes.com/2024/11/10/health/elderly-unmarried-couples-caregiving.html?unlocked_article_code=1.ZE4.JvyT.QUUSabGS4hNM&smid=url-share
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Donepezil and Memantine-Extreme Side Effects
Hello Everyone! This is time on the site. My DH was officially diagnosed with VD about eight months ago. But because my mom also had dementia, I knew three years ago that something was wrong. His doctor didn't listen to me, and not until he had three mini strokes, and carotid artery operated on did anyone start listening…
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My situation is getting confusing
Hi, My mom is 80 yrs old now and her dementia would be stage 5 progressing towards stage 6. I had brought her back to her house from my brother's place in June and my journey since then has been horrible. I have kept a caregiver too to take care of her needs. She was initially non cooperative and then later on in an…
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Today is our anniversary
DH doesn't remember that it is. I have not mentioned it. He was always the one to remember the dates of everything. Just makes me sad.
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Ok - Need advice and suggestions multiple languages
I’ve become my mom’s full time care taker a few months ago. I sold my house, remodeled their basement and moved in to stay with her. My mom was my best friend we had fun together and did mostly everything together. She is 78 and we’ve been fighting this crappy disease for 4 years; unfortunately she is getting worse.…
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Falling Apart Caring for my Mom
Hello. I am not doing well. My dad had Alzheimers in the last 7 years of his life, and I cared for him. I thought that was all over when he died in 2017. Then in 2020, it started all over again with my mom. It's been 5 years now, and I'm going absolutely bonkers. My life is falling apart caring for her. Almost everything…
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How do I get my sister to the doctor?
Hi, I am new to the forum. I am sure this question has been asked by many people that are starting this journey. My sister thinks she is fine and ignores our requests to have her make an appointment to see a doctor. We know that she is not managing her finances properly and is making very poor decisions and possibly making…
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Everything is perfectly normal...maybe not
Just feel the need to "talk". DH in ES to MS Alz. He has seemed perfectly normal now for about two weeks. You'd have to live with him and pay attention to know anything was off. Well, there is the thing about needing to explain to him who is who and what that all means when we are watching TV and the thing about misnaming…
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Fair Hearing
Hello everybody! I have a fair hearing coming up on November 7th for myself to be enrolled in the CDPAP program, and I am quite anxious about it. I applied for the CDPAP program last year as I can't work due to being a full time care giver for my mother, and while the state declared that we were eligible for it, my…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Trying to Do What is Best
We are about to hit the wall with rehab discharge and getting my mom into AL instead of letting her return to her IL apartment. This is going to be very hard since her perception of her abilities and safety issues does not align with reality and she is itching to get back to her bridge games and friends. She has a left arm…
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Advice on in home behaviors
Does anyone have any suggestions on how to explain to my Dad that he needs to throw his depends away when they are wet vs just leaving them on the floor? Any advice on how my Mom or I can explain this to him and him not get furious at my Mom like he has been any time she asks him something? For example, he has on a depend,…
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Special needs trust
We’re meeting with a lawyer to go over our wills. There’s going to be a discussion about “self settled special needs trust” vs “third party trust”. My wife is turning 65 on October 12. She was just diagnosed this year. I’m thinking a third party trust would be fine. Does that make sense?
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alz...the disease that is full of surprises
DH, diagnosed in June with ES. I've done enough reading that I really shouldn't be surprised by anything but…He has had short term memory loss for a number of years but when I finally woke to the fact of his misuse of words was beyond normal, we got him checked. ES is supposed to have short term memory loss. I get it. But,…
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Tips on Water Intake
Hi everyone! Happy (almost) fall :) I'm writing to ask if anyone has had any experience with their loved one not remembering to drink water. My mom has recently started on Lexapro to deal with her anxiety and depression, and I know from my own experience with Lexapro how dehydrating it is and therefore causes awful…
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Information in case of emergency
DH has ALZ. I read somewhere about posting info on 'fridge in case of emergency for emergency personnel to find. How much info is enough and how much is too much? Emergency contacts, doctors, diagnosises, allergies, insurance, doctors… is this too much? Not enough?.
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Dementia and Muscle Weakness
My mom has been diagnosed with Dementia / Alzheimer's for about 2 years now. This past year i have been staying at my parents house as the adls for my mom are getting more difficult for my dad to care for her alone. We would like to keep her in her home as long as we are able to still care for her.💓 My mom's left side of…
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Mother causing herself ulcers yelling at my dad every day
My mom is at the stage where she is having delusions of my father cheating on her. The only new memories she seems to hold onto these days are the ones she's made up or if something happened that made her angry. He is her primary caregiver and all she does is screen at him all day that he's a horrible husband and doesn't…
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Meal Ideas
Hi everyone! My mom previously was an adventurous eater. Lately, she has trouble with finding foods she likes to eat. Her tastes have changed and she tends to just eat "junk" (chocolate, pretzels, peanut butter crackers, ice cream). Even things she liked a week ago, she says she does not like them anymore. We're trying to…