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New to this group and to ALZ
I'm new to this group, and DH was recently diagnosed with Alzheimer's. He is 61, and his father was diagnosed with dementia, as well. I can see, now, that he has actually been struggling with symptoms for about 2 years, but I had hoped that they were simply post-surgical cognitive issues. Today, he was told by the…
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Caring for LO when they're sick
Hi everyone, I've been absent for a bit -- we hit a semi-stable routine while we wait for our appointments with the new physician's group that was recommended to us. This post is one-part me venting/unloading about the Great Excitement of the past few days and one-part seeking wisdom. For those who don't want to read the…
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Safe Decongestants/pain relievers
New guy here. My dad and I have been taking care of my mom for about six years now. She has dementia, not Alzheimers specifically. I'm looking for recommendations for over the counter meds that are safe for her to take for runny noses and aches and pains. Google has given me unhelpful and contradictory info. Any help…
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Moving my folks into my house
My dear mom (DM) has Alzheimer's. My dear dad (DD) is her primary caregiver. They are both in their mid-eighties. We live in the same town, as does my sister and my brother. I assist my DD care for DM, plus a caregiver comes in 3 days a week. Additionally, DM attends a day program 2 days a week. Three years ago, I had my…
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How to communicate with a parent in denial
Hello! Rather abruptly it has become clear my mom will need to be in MC for at least the immediate short term, or even longer. She had an episode of delirium after attempting to travel solo to a family member, and while she has largely recovered, her baseline is way worse than before this episode. She was released from the…
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Institute of Aging's Companioa program
Has anyone used Companioa, a program where the goal is to stay at home (as opposed to AL or MC), by using a combination of "care coaching" for caregivers, some home care, adult day care, and care management (medication, medical appointments, etc.). It seems to be a middle ground between 1) doing caregiving totally on your…
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Trouble helping my mother
My mom has been diagnosed with dementia for quite some time. She can't communicate with us properly, she can't do anything by herself yet we can't help her with everything since she isn't communicating back to us when we ask her. It's even the basic things like food, she can't give me or any of us an answer that we can…
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Care Taker Under 30
Hello to all! I'm making my first post here to try and gain some insight from people who are in a similar position as I. My mom is not even 60 yet, but she was diagnosed with Alzheimer's (early stage thankfully) back in 2022, so this is all still fairly new as we both adjust to our new realities. It's been quite difficult…
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My 83 years old Mother thinks the Male Neighbor is stalking her & she now thinks he is in my room
My Mother was diagnosed with Dementia in June 2023, she is a retired teacher (55 years) & hold 3 master's Degrees, she was extremely attractive, but she was always unkind, selfish, and focused on men. My father was not good to her, they divorced when I was a baby (he was also a very Dark Black man, and for light-skinned…
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DW with EO
Forgive me for starting a new discussion. I am so thankful that there is a community of supporters helping us all through these life challenges. In short my DW was genetically tested for EOAD because her sweet mother carried the gene, and passed away in June of 2008 at age 52. We are currently going through the same thing…
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Broken arm
one of the residents in moms memory care has broken their arm. The swelling is really intense. They can’t cast it till the swelling goes down. She keeps forgetting her arm is broken and takes the brace off and it keeps swelling more. Her sweet family has tried all they know to keep the brace on. Cut sleeve over her arm, a…
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Just exhausted
I need to vent a little and this is a good place to do so. I am mentally, and physically exhausted. It seems like I have rarely had a moment to myself in years. I just want time to focus on my own health because my back is killing me and might need surgery. I'm overweight and want to start exercise and diet to lose weight…
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Recos for Certified Elder Care Attorney (CELA) in New York State?
We'd like to find a good CELA in New York State. Some questions: Do you know one you can recommend, or a good resource for finding one? What should we do to prep for our appointment once we find someone? Thanks in advance for any advice you can offer.
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Delusions
I am struggling with my mom. She has had mental health issues since her 20’s- diagnosed with schizophrenia in the 60’s. Who knows if that’s accurate, she refused to get any updated diagnosing since. Now she has AD mild stage diagnosed in 2019. She is taking Seroquel for the paranoid delusions and I thought they were…
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PWD & physical/occupational therapy
Hi everyone :-) How do you know when to stop PT/OT? Brief context: Dad fell, broke his hip, had hip surgery, was diagnosed with dementia while in ER, was transferred to subacute rehab for PT/OT. We made the decision to bring him home because his mental health and cognition were heavily declining in SAR and he was not…
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Can I receive phone support for assistance to the aid or caregiver about parent
Can I receive phone support for assistance to the aid or caregiver about parent
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My frustrations are getting the best of me
My mom has lived with me for 13 years . In 2014 she had several hospital stays with everything you can imagine . She was finally diagnosed in 2019 with LBD. She was on hospice for 8 months & somehow , again bounced back . Her health honestly has improved but her memory & cognitive senses have worsened. I never thought that…
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airflow mattresses and pressure sore prevention
Hello everyone :-) Things with Dad are going reasonably well - all things considered. Mom and I are working to be preventative and have plans and ideas in place in case we need them: so, looking for a low pressure air loss prevention mattress. My dad did have a pressure sore before/when he fell, but that healed while in…
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My first time to reach out for support
Sometimes I feel like I’m a wits end. My mother just dies from Alzheimer’s after 3 years of not recognizing us & my husband has memory loss that is progressively getting worse by the day. I just needed to reach out to someone who may know what’s happening to me
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Trying to help from out of state and feel like I'm drowning.
First of all, I'm very relieved to have found this resource. I have so many questions and worries, and many sleepless nights over the last couple weeks. I have a stepmother who was diagnosed with early stage Alzheimer's awhile back, so I think it's likely progressed since then (probably stage 4 now if I had to guess). I…
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tamper-proofing machinery
My Dad has Alzheimer's and frequently checks the oil on his car, lawn mower, etc even when it doesn't need it. He often forgets to put the filler cap back and has ruined some equipment this way. Does anyone have suggestions on how to tamper-proof machinery so he can't damage it? We don't let him drive the car, but he likes…
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Father continually tells me how beautiful/gorgeous/wonderful I look.
:s We just moved my father in to our house this weekend. Part of me thinks he is mistaking me for someone else since he seems to be so obsessed with telling my how beautiful I am. This is not new behavior--he actually got kicked out of the residential living he was in because he was inappropriate to other residents on many…
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Caregiving & College?
Hi everyone! I’m a new poster but long time lurker. I haven’t seen any threads on this topic so I thought I’d ask. I’ve been caregiving for more than a year for my grandma with dementia (taking shifts almost with another relative). I started caregiving when I was around 18 or 19 and I had to drop out of college, there was…
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87 father is caretaker for 81 mom with severe Alzheimer's
Hi all, Have a situation where our mother is losing her ability to speak, extremely confused, has difficulty walking, is not showering or brushing her teeth and is incontinent at times. Our father is being difficult in that we had an aide for the summer who had to go back to her school job and now he is refusing another…
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My mom hates her RCF and wants her cat back.
:'( about five months ago. We had to move my mom from an AFH to and RCF. She hates it. There are six other residents with varying degrees of disabilities and some with dementia. My mom has vascular dementia, and Alzheimer’s. She was diagnosed at 69 years old and will be 71 this year. since moving to the RCF, I have noticed…
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Dementia, Broken Hip, and next steps
Hello, First time posting. My mother is 95 and was lving independently with caregiver assistance until she broke her hip a few weeks ago. She has been through a lot since 2018 - kidney timor ablation; treatment for APL (acute promyelocytic leukemia), a small stroke, and now this. She is in rehab connected to the retirement…
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First Post (Mom's Caregiver) - It's a long one but please read if you can
This is my first post so it's going to be lengthy and I apologize in advance. I don't know why tonight I got to the point that I felt the need to reach out but here we are. I am my mom's caregiver and it's just hard. I'm a 45 year old female, married to my husband of 21 years and we do no have children. I'm one of those…