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Intelgenx montelukast clinical trial
I posted a few weeks earlier that Intelgenx Technologies in Canada has completed its clinical trial using its film version of montelukast to treat early Alzheimer's and MCI. A brief preliminary report indicated that participants taking the highest dosage of 30 mg twice a day have shown cognitive improvement. A final report…
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Side effects - Rivastigmine or Leqembi
Mornin, first post here. Wife,53, diagnosed with AD not long ago. On rivastigmine after terrible time on Donepezil and has had one infusion of Leqembi week before last. She’s had a couple days of “ just feeling like s**t” , but not too bad. Question is, has anyone witnessed a tightening of calf and lower calf muscles.?…
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Help! I am exhausted and depressed
I just feel I can't do it anymore. I cook, clean, pay bills, manage rental property that my HWA refuses to sell. He believes I conspire with the renters against him. I am just so beaten down. My HWA wanted me to pick up apples that fell from the apple tree in the backyard. I said I was too tired. I have been working all…
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I'm feeling whiny
My husband's aide has been out since Wednesday and the agency hasn't found a sub. Wednesday was awful - he had been up most of Tuesday night (meaning I had been up most of Tuesday night) so I struggled. We got through it. Yesterday was rough. We got through it. This morning I'm mainlining coffee and he's removing the…
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New to forum and newly diagnosed spouse at 56
Hi all. I'm not good at sharing, but finding this new life journey difficult. Not sure I should have pushed for this test as I wasn't really ready for the truth and outcome. My kids and I noticed the changes in my spouse over 7 years ago. I tried back then for doctors to figure out what was happening. Hit road block after…
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And the Packing Up Continues...
Again, my DH got up 3 times on Wednesday night, pulling out all of his clothes and putting them on the bed. I got him back to bed each time and put back the clothes. Then he proceeded to do this two more times during the day. I have decided that this is like shoveling feathers in the wind. I left the clothing where it was.…
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DH is currently independent in self care
My DH was officially diagnosed with early stage Alzheimer’s. I find it’s easier to talk less and less since most things I say are doubted, challenged, questioned and I have to explain and repeat.His talking about what will probably go wrong, like when our daughter plans to meet us, saps my energy and spirit. Also wearing…
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Geri-psych saga continues with hopeful news
For those if you following our story, after two weeks in a medical bed, my DH with aggression problems was transferred to the hospital’s Geri-psych unit on Monday. I was very pleased because this unit has a good reputation for not discharging patients until they are really ready. I am finding out that my husband’s issue…
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New Group for Middle Aged Caregivers
Please join! Go to the GROUPS tab on the home page or copy & paste this link (sorry that I can’t get the hyperlink to stick!) https://alzconnected.org/group/43-middle-aged-caregivers-support-group
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Frustrated with finding Geriatric care
Three days ago, I called the memory clinic to inquire about practitioner that was scheduled with DH today. The receptionist said there was only 1 geriatric doctor and she only works one day a week. She said the practitioner was very good and could prescribed medications. She would give my DH a short test…. So I decided to…
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New Here - Looking for help for brother
Hello, I've been lurking and reading discussions for a few months now. Our family became concerned last fall. The ball got rolling after I scheduled the PCP appointment my brother had been procrastinating. That was in Feb. A few weeks later we got in to see the neurologist. He scored 22 out of 30 on the assessment that was…
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memory care
What is exactly memory care? How do you know when it is time? When they don't recognize you anymore? hard to handle?
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Picking up the pieces
where do you start when you don’t know how or where to start? My husband has been my life for 30 years. I just don’t know what to do with myself. I had to place in a MC facility & I just can’t believe it’s been 3 months and I still haven’t left my house except to go visit him everyday.
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Hygiene issues because he hates being wet
For a while, I could get my DH to shower every few days and he had no trouble doing so on his own. I just needed to remind him to use soap and shampoo. A few months ago, he just absolutely refused to go into the shower. He said he didn't need that anymore, it was too small, stuff like that. So I bought some microfiber…
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Anniversary #47
It's our wedding anniversary today. I'm just really sad because nothing about our marriage turned out the way I thought it would. As background, we found out after we placed my DH in MC that he had (seemingly) been unfaithful, was deeply into porn, and even had pictures that may have been illegal (or borderline). Even…
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Feeling like a terrible person!
Yikes do I feel like an idiot! DH 4 years into VD and his short term memory going downhill quickly! I should know I should be aware but duh! I started a new BP med and apparently by mid after my pressure falls. Today it was 70/50 I was feeling drained and told DH I wasn’t feeling well and going to lay down . He came up to…
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When to start considering meds
I know this is a question for the professionals but wanted to get some insight from caregivers on this. At what point should meds be considered? What kind of behaviors are most helped by them? I’m having a more difficult time with DH lately as he progresses but I think it’s more my behavior or reaction that causes the…
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Medication Difficulties
Hello everyone. I can’t say I’m very new here, but this is my first post. I’ve been (what my husband would say is “lurking”) in the background - reading and learning from all of you who have travelled this path before me. Thank you so much for your comments and candor, it’s already made my life better by knowing you’re…
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Just had to share … LOL
My DH just said … something just ran past the chair into the other room. (He has hallucinations quite often, but the Seroquel keeps him calm during the episodes.) Anyway, I responded as usual … maybe it was just my shadow you saw when I walked in the kitchen. He said, “No, something ran in there.” (I got up and…
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Tips for the dreaded move to memory care
I’ve finally made the decision to move my beloved husband to a memory care center. I’m so overwhelmed with grief and just getting through the actual process. Can anyone offer me advice for how you actually get your spouse to the facility and what to tell them. My husband still loves me dearly even though most of the time…
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Blame!
I don’t know if other caregivers have this issue but I am having a tough time handling it. DH with ALZ has mild cognitive impairment with very short memory. Every single time he makes a mistake, he blames me. He recognizes the mistake but seems compelled to make it my fault. I don’t chastise him for his mistakes so, I…
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Impatience
Feeling like a monster, I have no patience today. It’s a rare day with no appointments for DH or crucial business to take care of and I want to do literally nothing for at least a few hours. Feeling guilty and being snippy with DH’s forgetfulness. I want him to just go do his own thing but I know he sees my impatience and…
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Cat Naps
My BF (EOA 45YO) has been taking small naps during the day. When we r watching tv. If he watches it. He will stare out the back window looking at the birds and squirrels. I guess you can say I'm in denial. I don't wanna loose him. I want him to stick with me till we are old and gray. I want plus to have at least one child…
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Love
I've never seen anyone share pictures on here but I really want to share this! My DH had a terrible dream. So our sweet dog, Betsy, cuddled up with him. Made him feel lots better. He is back to sleep 🧡 Life is peaceful at this moment and I am grateful.
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Help! Cannot get my 190lb husbsnd into his hospital bef
any ideas? He is stage 6 snd can barely walk. Tonight he is sitting in his wheelchair snd will not let me assist him into his hospitsl bed at home. What do I do? Any ideas? He is double incontinent and is sitting soiled clothes. Do I call Parsmefics for lift assist?
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different MC for different stages
I am exploring MC facilities and right now looking at the more elaborate ones that say they have various activities (and many do). My question is this: if you place your person in one facility and then a year later they have deteriorated to the point where they basically sit and do nothing, or worse, are bed ridden, can…
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First Post- Introducing Myself
Hi Everyone- I'm posting for the first time. Thanks all for being here! My wife has had a long and slow onset of AD symptoms over the past 8 to 10 years or so. It's hard to know if some of the odd behaviours 10 years ago were due to the AD, but I sort of think so. Over these years I've discussed my concern over her memory…
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Looking for a good elder care attorney in Long Beach
Hello, I am looking for a good, reasonably priced Elder Care Attorney so that I can be the POA and MPOA for my LO. We were trying to get his POA and MPOA notarized but, he got confused and forgot why he was there, so, the APS were called on us. We were called by them to let us know that that is what has happened. The…
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If I had only known
If I had only known when we went to bed on January 18th that that was the last night we would ever sleep in the same bed, I would have cuddled up as close to him as I could and held him close. Instead, I slept on my side of the bed and he slept on his. Oh we said , "I love you" like always but if I had known, I would have…