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Just need to talk to my friends (197)
It's been a hot, humid day in Oklahoma. We reached about 97 with heat index of 100 with more hot days to fo!low. Summer in Oklahoma is not always pleasant because of the humifity. I know the temperatures were higher when I was growing up but humidity was lower. They built Lake Eufaula which raised it and now this area is…
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Rough Night
Thursday night turned from a peaceful evening into a crisis when the MC called and said DH was banging on the doors with his fists, yelling, and hitting the doors with his walker trying to exit the unit. They said he was going to hurt someone so they were sending him to the ER. That was a little after 6:00 PM. I had just…
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Tough times
So, to add to all that is going on in our lives, our 12 year old dog has been diagnosed with terminal cancer. He has just a couple of days to live. DH, who has already had such a hard time is asking such weird questions. Where are the other adults at dinner (it's only the two of us)? Where are the other dogs (we only have…
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Straw that broke this camel’s back!
I came home today and found my BF (with MCI) had done some laundry. 7 items on a medium load. He does this frequently. A trivial thing in the world of dementia. Many caregivers would envy a situation like that. I’m ashamed to say I lost it. I told him he has to move back to his condo. He is able to do all of his daily…
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Rapid onset Alzheimer’s
I’ve only heard of Rapid Onset Alzheimer’s once. Can anyone tell me if there are guidelines or timelines it follows. My DH was diagnosed two years ago and seems to constantly be on a downward slope. I keep thinking there will be a plateau but he hasn’t found one yet.
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New and dealing with early onset
I have been noticing small struggles over the past few years and definitely increase in anxiety as well. Early Onset is genetic in his family so we both knew he had a 50/50 chance. We talked about it and decided since we weren’t having children (married in our 40’s), we decided not to have him tested because what would we…
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Incontinence issues
My DH has had incontinence issues in the last couple of months. He soiled his pants twice. Today he was outside working in the yard and suddenly said, “I pooped”. I was shocked. Both of the other times we were walking out in the woods and he couldn’t make it home but he told me he had to go. This time he didn’t even…
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Geriatric appointment concern
My DH PCP sent a referral for a geriatric appointment after I discussed my concerns about my DH mild cognitive impairment and the care we are not getting from the neurologist. My DH is not having any specific issues now except short term memory. His neurologist previously said he will not be able to help with any psychotic…
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Should he know he has Alzheimers?
My husband was in the doctor's office when we received the diagnosis over a year ago. Now he doesn't seem to remember that he has it. He's gone through several tests and it was confirmed. Last week he mentioned that Alzheimers must have skipped him (his mother, brother, aunt, and cousin had it). Should he be told again…
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Is it Anosognosia, Denial or just being a big Ole B?
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How do you do this?
For those if you that are more successful at this than me, please fill me in on your secret. I feel like I’m suffocating. He follows me everywhere, keeps asking if I still love him, asks a thousand questions that don’t make sense. Argues with me about how to care for dogs, horses. I know it’s the disease but that doesn’t…
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Dental problems
My DH who is in stage 6/7 has been having problems with his teeth for at least a year. He has several front teeth that have decay and lost a crown several months ago that the dentist was not able to replace because of decay underneath it. He said he would likely need about 7 teeth pulled. The dentist said he was unlikely…
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pity party day, week, month...
DH was diagnosed with EOAD (age 61) November 2021 after a lumbar puncture. He was MCI at the time. Currently he his solid stage 5 with stage six leanings. He does not shadow, he is velcro. Can't follow simple commands or remember anything for longer than a couple of minutes. Still continent, but the hygiene is out the…
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Tasty shake
Hi! I am new to this group. Name is Pam (obviously). So my mom is not eating or drinking enough.... am looking g for calorie-dense protein shake that tastes good. Any ideas? Thank you in advance
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Need help
My husband has Alzheimer’s, he has stopped eating, I’ve offered every thing still doesn’t want to eat, any suggestions would be greatly appreciated
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Everything’s falling apart
Today I went to a party at DH’s daycare with him. The occasion was his last day there. Earlier this week, after the last two outings there ended in multiple attempts to leave and general other disruption, everyone agreed that the usefulness of this had run its course. Even after 18 months, DH still has tremendous…
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Excessive sleeping
some days my wife will sleep almost 20 hours. Is this common among those with Alzheimer’s?
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toilet mishaps
My DH has beenjust been diagnosed with early Alz but now occasionally misses the toilet at night, which he has never done before. I am less concerned about the clean up aspect of this than I am of the fear that this is a sign of progression. I welcome any and all thoughts about this.
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Feeling Sad. Missed you quietly today...
Visited my husband Lonny this week in Memory Care. He's been there 6 months while I have been going through cancer treatment. He slept through lunch and didn't wake up to eat. I just held his hand and talked to him and told him I love him. They have him medicated due to agitation & because he fell the week before and had…
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Can't go on like this
So today my husband said "f you" to me while we were in the check out line at the grocery. Everyone in earshot heard. How humiliating. I can add grocery shopping to the list of activities we can no longer do together. And he can't be left alone, so. . .
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"Why did we come in here?"
Today we went for a walk in the morning, as we usually do. When we returned home, the title of this post is what DH said to me. "Because it's our home," I said. "We live here. See, here are our two cats. They live here, too." I get asked a lot of questions, but this one kind of gobsmacked me. DH has been lost in time for…
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Finding local support group
Hi, I’m reaching out because I don’t know how to handle my husband‘s denial any longer. He’s 64 years old and will not see a doctor but has had for the past 10 years memory loss to the point of the past year of not knowing where things are or what he spoke of, every single day. I tried to address it with him. He gets angry…
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Where do I Start?
I need to figure out where to start. I’ve got to have some extended “me” time. He drives me crazy with repeated questions, IPhone issues, wet pants, confusion, deliriums, pacing, rubbing his hands, running interference with his truck (I don’t let him drive) and scammers. My life is exhausting. I’m falling into the abyss…
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Fun Night
So I woke up at 12 midnight to hearing my DH walking around in his bedroom. I was having trouble getting to sleep so I decided to ignore it (maybe it will stop lol) - big mistake. Finally, I got up and went into his bedroom to find his bed totally full of all of his clothing, along with his jewelry box, shaving kit, shaver…
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Korsakoff Dementia
Is anyone in here caring for a spouse that has Korsakoff dementia? I have so many questions
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Weight loss
My wife Jenny has been losing weight. 6 months ago she weighed 183 lbs today she weighs 151. She had started eating less and less but the last month or so seems the weight loss has sped up. She gets unstabled if she walks very far but can walk. She was diagnosed with Alzheimer's almost 4 years ago. My question; what should…
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Snipe Hunt
back when, the s outs always had snipe hunts on camp outs. Seems I’m at it again. So far i have been hunting for 5 kids that were left at day camp and should be walking along the highway in the rain,(try explaining to the police wheyyouare doing 15mph in the breakdown lane) later it was two college girls (since we were in…
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Locks: what brand
I want to add a lock in our bathroom so I can put jewelry, wallet in a cabinet. I'm thinking this would be more protection against theft than keeping DH out…..he does not rummage through things, and doesn't see well enough to get into anything with a lock anyway. The problem is, the width of the door that overlaps the…
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FTD - Idea to help with lack of impulse control with eating for your loved one
Hello all. My friend I've been giving care to I believe has FTD. He has a short term memory issue and a lack of control with eating, especially sweets. I found out that he likes my cooking and will eat nearly anything I cook. Instead of buying him his usual sweets he wants, I make it something that has some kind of health…
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Help with how to have the driving discussion . . .
I am new to the community so if someone can point me toward prior posts on the topic, that would be great. My DH is only 65 and moving toward the far end of moderate in his journey, of course he won't admit there are any issues. He has been really good about letting me do the driving (he has only driven a couple of times…