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Communication is gone
By reading the posts I can tell my situation is maybe unusual-? My DH is stage 6, I’m sole caregiver. His speech for over a year has been jumbled, made up words. (Aphasia?) He’ll talk quite a bit but there is no way to understand him. And when I ask him questions (Do you have to go to the bathroom?) his response is not yes…
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The Need to Talk
Life sometimes is just plain exhausting. It seemed a simple task. With a contractor finally prepared to do my little laundry renovation, my sole task was to go to the hardware store and purchase a laundry tub plus a broom cupboard, off we went. Of course the exact products weren’t there, so more decisions with my DH…
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early onset dementia and memory care
My wife is 69 years old and has early onset (56 years old) vascular dementia. I placed her in memory care early last month. Her biggest complaint is that all the residents are older and more impaired than she is. Most of the other residents are late 70s and early 80s. Some are in the very late stages but many are not. My…
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Alzheimer’s and radiation
so my 63 yo husband who was diagnosed with early onset 1 year ago also had radiation and chemotherapy 4 years ago for tonsil cancer. I’ve been reading that the radiation could have something to do with his Alzheimer’s….anyone else know about this?
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Spending regularly
Hello all, My husband was diagnosed two years ago with cognitive impairment, most likely Alzheimers. We have had some rough periods of time involving obsessions which have passed mostly. We moved to a very small house to help us afford to live as we don't have much at all financially. I have made budgets for us but DH…
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When is it time…
How do you decide when to seriously consider MC? My DH is okay as long as you don’t say no. Trying to distract or re-direct works sometimes, if not he gets mad…not physically aggressive, but looks angry and says things like ‘you always think your right, this is my house I can do what I want, I’m leaving tomorrow”. I think…
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Confabulation of cheating
My boyfriend has confabulated a story that is getting more elaborate every time he brings it up. He truly believes that I cheated on him with one of my roommates, while he was living in the same house. He now brought up that I said his name in my sleep the other night. I am at a loss as he hasn't been diagnosed with…
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New Year
For those of us who placed our loved ones in MC in 2024, the New Year represents the first year we are no longer providing care 24/7. Nonetheless, we experience sadness, worry, and exhaustion as we struggle to reinvent our lives. We cared for our loved ones for so long until we truly couldn't anymore. We don't miss their…
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Stages of Alzheimer's
I'm new here and new to caring for someone (my 82 year old husband) who just got diagnised with Alzheimer's. Early stages so I know we have a long road ahead of us. As I read some of the message boards here, I see everyone talking about the stages of the disease and mention stage 8. When I Google the stages, I only find…
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Options
What are my options for care for my husband if I make too much money for Medicaid and not enough money for long term memory care? My husband is in mid stage Alzheimer’s and very difficult.
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Casava Trial
Beset by fraud allegations and government probes, Cassava pulls plug on all ongoing studies of simufilam. My DH and I went through a horrible experience with this trial. They waited until the day he was supposed to transition into the open label live drug and then told us they would not continue. 18 months of hope and…
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Struggles with hygiene - how hard to push
I know this is such a common problem with PWD. My DH will not shower so after trying all the normal suggestions about warming the water first, warming the towels, etc, I started using rinse free soap on a soft washcloth. Tried to do a few body parts every day or so or hand him the cloth. But lately he even refuses that -…
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Ouch
The holidays sure have a way. I know I’m lucky to still have my DW, but … She asked me to take her to go Christmas shopping the last month, so I did. She got presents for everyone in her family…except for me. Put that there in the things that hurt category.
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Diaper Disposal Pail
Has anybody found a diaper disposal pail that works with adult diapers and prevents odors? I have seen several on line, but most seem to be for baby diapers, so looking for suggestions. Thank you!
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The coming new year....
In my therapy session this past week, I told my therapist that I have nothing to look forward to this year. She said I needed to find something to look forward to. I have no ideas… DH's progression? Placement? A health crisis? But seriously, do you all have any ideas? Thank you in advance!
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Just venting
From ohio. We received 10in of snow. Can't get out of driveway. Dh has 2 sons that live no more than 10mins away. They have not called to check on us. My sons live 30mins away and are coming tonight after work to dig us out. Just peves me off! They never check on him or see if he needs anything. Just peeves me off. Ok I'm…
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Clinical Trial?
Just received a phone call about two clinical trials. Apparently (will call neurologist tomorrow- office closed now) his neurologist gave his name as a candidate for the trial. He had done a previous clinical trial that only involved him giving blood so I guess that indicated a willingness to be part of a trial. First— a…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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Police called update
I previously posted about my guy hearing music and calling the police. Many of you advised I needed to end the relationship. Updates on the current situation. He continues to hear music and has called police at least fifteen times. Police have called me 4 times. They are considering have paramedics check him out and take…
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New Years Eve
How excited was I when we received an invitation to a NYE party from our Sailability Coordinator. I thought this will be great, they understand, we haven’t been out to a party for the last 4 years. When we arrived I noticed the table set for 6 that meant us, the hosts and another couple. We had perfectly cooked medium rare…
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Poem for my friends written by me
I can’t help you to remember. I can’t help you to remember, I truly wish I could. You think I’m someone else, not a creature in my nature. With sweet magic I wish I would. You wander from room to room looking for treasures along the way. Putting them in safe places and forgetting where they lay. I can’t help you to…
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Sexual Behavior in Husbands
Super sexed DH II feel like I am the only 75+ caregivers whose husband is constantly wanting to make love or touch, lay with, hug or kiss me. Do others deal with this and shadowing? Does anyone have help or suggestions? I'm over loved😗
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Just need to talk to my friends(201)
Sorry this took so long, tablets are acting up. Will post more later
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Update: Possibly FTD?
There hasn't been much to report since my DH was released from the hospital last Fall after needing surgery for a severe cellulitis infection due to being immune compromised and refusing to shower. In November he had his fourth round of multi-hour neuropsychic testing (we are on year 8 of trying to figure out what is wrong…
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Caring for spouse
Wishing all a Happy New Year…..I am new to the group & desperately in need of a support group! My DH is 83 & up until 4 to 5 years ago doctors would tell me his behavior was just “normal aging” until finally he was diagnosed with “moderate dementia.” Initially, some of the family questioned how he got to moderate & not…
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The bizarre way the dementia mind works!
This would have almost been funny if it hadn't been my DH talking to me! My DH has accused me of infidelity with a particular individual on more than one occasion. I have learned not to over-react after I got really angry the first time and then realized it made no difference. Last night he accused me again, but this time…
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I can’t !!!!
Warning … rant coming! I am literally going to scream and there is nothing I can do to make this situation better! I have no privacy no space to call my own. DH is always sitting in our small kitchen almost in the middle of it all the time! I have to walk around him constantly to do anything in there. And he watches me go…
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It's my Birthday today and I have never been more miserable
Today is my birthday (76) and so far the day has been absolutely horrible…like most days. Of course DH doesn't remember and has done nothing but complain since he woke up. He lectured for almost 3 hrs about the collapse of the US dollar and then went on with his favorite one about how selfish I am because I sequester…
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Stage 8, Hospice & End of Life...
Sadly, I'm in Stage 8. My husband & soulmate Lonny passed August 12th after a rapid decline. One of the many questions asked on this forum is when to know it's time to call hospice & how do you know when someone in Stage 7 is moving to Stage 8. I recently saw a video on Facebook that I wish I had seen 2 years ago. It's by…
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Rexulti
My DH 78 yrs old stage 6 some toes in 7 has been on Seraquel worked for awhile no longer. Next week will try Rexulti anyone have used that med and better results? Also very expensive.