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It was a long and scary week
Last Thursday, January 9th, MC called and said my DH was very ill and an x-ray showed he had bronchitis and pneumonia and needed immediate medical attention. They sent him by ambulance to the ER. We were digging out from a blizzard that had dumped over a foot of snow on our area and I was still not able to get out. A…
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Oh no. New low
My DH as certainly been declining lately. Just now he asked me where our kids are. He says they aren’t here. Of course they are not. They are 47, 44, and 43 and all have their own homes. It reminds me of his mother who had Alzheimer’s and who called 911 saying the kids were playing in the yard and were now missing. I think…
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New issue
My DH had a physical spell early this morning. He wanted up to go to bathroom about 5 a.m. this morning. I made sure he made it to the toilet and let him have some privacy. He was in there a little longer than usual, so asked if he needed some help. Found him weak and very pale and clammy. I helped get him back to bed and…
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When to move?
My husband was diagnosed with MCI a year ago and is declining. We had planned to downsize, but now I'm wondering if that would be too disorienting for him. He already carries a lot of anxiety before this diagnosis, and I worry that a move will accelerate his condition. On the other hand, it really is time to get out of…
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obsessions
New to this support area. My DW seems to be declining slowly but in bursts. Latest is waking at 2-4 AM very agitated, obsessing about eggs and chicken, angry, saying she is leaving, spitting and hitting if I try to calm her. Some nights doesn't happen? Can occur during day too--no idea where this came from. No matter how…
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Lequimbe
Hello. I'm new to the group and I'm hoping for advice and information as I navigate this new life with my LO. A year ago at 59, he was diagnosed with MCI. This has been going on for four years now, and in the last six months it seems to be progressing quickly. The dr wants to start him on Lequinbe but he hasn't had a…
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ALZ and type 1 diabetes
my DH is both. Memory worsening and has shut off his insulin pump several times and forgot. I'm afraid he needs help managing diabetes. He is also becoming difficult to live with because of anger and just forgetting what we are discussing during a conversation. He refuses assisted living. They say I can't force him. I am…
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Safeguard your sanctuary
Because he snores, jerks, and rolls over on to me, I sleep in a windowless room in the basement. In trying to engage my husband in a task I asked him to help me clean the light fixtures in the basement (holding the screws, wiping the inside of the fixtures, etc.) Now he states that he never knew about this room and insists…
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Aphasia
My poor DW. Her aphasia is now to the point where she really, really struggles to get a full sentence out. Many of her "sentences" are just a mix of random words, but she really thinks she's telling me things. Her frustration is growing and now she thinks I'm not understanding on purpose or not listening to her. I had done…
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visiting assisted living facilities
Hopefully DH will be able to stay home through most of this journey, he is fully stage 5 and moving towards stage 6. I visited one memory care and want to see a few more, for "just in case." The first one, I made an appointment, DH is not aware of this and I don't plan to take him to any. But I'm wondering how a visit goes…
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California Fires
I pray to God that none of our dear Members are affected by these horrific fires. We have enough on our plates without having to contend with this. What a way to start 2025
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How to handle leaving DH at MC
My DH has severe Alzheimer's and LBD and I anticipate moving him to MC in the near future. My question is—specifically—what to say to him, how to handle the day of the move. A few day ago, I saw a discussion on this site where the author attached a written description of how he handled it but of course I can't find the…
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I’m impossible
This morning DH wanted to go back to bed after breakfast. I reminded him to brush his teeth first. He said he would do it when he got up. I said no, do it now or you will forget and I will too. He said you are impossible and I agreed with him. He said you are getting more impossible all the time and I agreed saying I…
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Guardianship case
I just want to ask if anyone had any experiences with winning a guardianship case. My DH with mild vascular dementia got served on Friday with a petition case of guardianship from daughter. I have durable POA for financial/property and POA for health care. Our court appearance is scheduled on February 4th. Any advice will…
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Excessive Talking/ Social Cues
I am still waiting for the doctors appt. to try and get a diagnosis. My question my DH is totally clueless when it comes to social cues. He doesn’t know when people are wanting to speak, or wanting him to stop speaking. Another behavior I notice is excessive talking. I mean excessive, he will call someone and talk…
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Feel like I’m becoming reclusive
Out of necessity, DH is stage 6. It’s just too hard to do things with him. He won’t tolerate caregivers so it’s mostly all on me except for family helping at times. Won’t go to day care. Just going to the grocery store alone is rare. Taking him out in public is hard because his speech is garbled and he tries to talk to…
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If you can’t beat ‘em, join ‘em
I was so frustrated and angry today trying to do chores but having to follow DH around and “babysit” etc. I broke all the rules this morning—argued, corrected, over explained, got mad. Got some stuff done then decided that I’d rather give in and relax than ruminate or come on here to complain. About to take a little nap on…
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Communication is gone
By reading the posts I can tell my situation is maybe unusual-? My DH is stage 6, I’m sole caregiver. His speech for over a year has been jumbled, made up words. (Aphasia?) He’ll talk quite a bit but there is no way to understand him. And when I ask him questions (Do you have to go to the bathroom?) his response is not yes…
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The Need to Talk
Life sometimes is just plain exhausting. It seemed a simple task. With a contractor finally prepared to do my little laundry renovation, my sole task was to go to the hardware store and purchase a laundry tub plus a broom cupboard, off we went. Of course the exact products weren’t there, so more decisions with my DH…
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early onset dementia and memory care
My wife is 69 years old and has early onset (56 years old) vascular dementia. I placed her in memory care early last month. Her biggest complaint is that all the residents are older and more impaired than she is. Most of the other residents are late 70s and early 80s. Some are in the very late stages but many are not. My…
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Alzheimer’s and radiation
so my 63 yo husband who was diagnosed with early onset 1 year ago also had radiation and chemotherapy 4 years ago for tonsil cancer. I’ve been reading that the radiation could have something to do with his Alzheimer’s….anyone else know about this?
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Spending regularly
Hello all, My husband was diagnosed two years ago with cognitive impairment, most likely Alzheimers. We have had some rough periods of time involving obsessions which have passed mostly. We moved to a very small house to help us afford to live as we don't have much at all financially. I have made budgets for us but DH…
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When is it time…
How do you decide when to seriously consider MC? My DH is okay as long as you don’t say no. Trying to distract or re-direct works sometimes, if not he gets mad…not physically aggressive, but looks angry and says things like ‘you always think your right, this is my house I can do what I want, I’m leaving tomorrow”. I think…
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Confabulation of cheating
My boyfriend has confabulated a story that is getting more elaborate every time he brings it up. He truly believes that I cheated on him with one of my roommates, while he was living in the same house. He now brought up that I said his name in my sleep the other night. I am at a loss as he hasn't been diagnosed with…
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New Year
For those of us who placed our loved ones in MC in 2024, the New Year represents the first year we are no longer providing care 24/7. Nonetheless, we experience sadness, worry, and exhaustion as we struggle to reinvent our lives. We cared for our loved ones for so long until we truly couldn't anymore. We don't miss their…
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Stages of Alzheimer's
I'm new here and new to caring for someone (my 82 year old husband) who just got diagnised with Alzheimer's. Early stages so I know we have a long road ahead of us. As I read some of the message boards here, I see everyone talking about the stages of the disease and mention stage 8. When I Google the stages, I only find…
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Options
What are my options for care for my husband if I make too much money for Medicaid and not enough money for long term memory care? My husband is in mid stage Alzheimer’s and very difficult.
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Casava Trial
Beset by fraud allegations and government probes, Cassava pulls plug on all ongoing studies of simufilam. My DH and I went through a horrible experience with this trial. They waited until the day he was supposed to transition into the open label live drug and then told us they would not continue. 18 months of hope and…
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Struggles with hygiene - how hard to push
I know this is such a common problem with PWD. My DH will not shower so after trying all the normal suggestions about warming the water first, warming the towels, etc, I started using rinse free soap on a soft washcloth. Tried to do a few body parts every day or so or hand him the cloth. But lately he even refuses that -…
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Ouch
The holidays sure have a way. I know I’m lucky to still have my DW, but … She asked me to take her to go Christmas shopping the last month, so I did. She got presents for everyone in her family…except for me. Put that there in the things that hurt category.