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Failed my first test
Since my husband’s diagnosis about a month ago, I have been super focused on not over reacting, arguing, correcting him if he’s wrong, etc. and have been doing really well. Yesterday out of the clear blue he told me he had made a decision. I asked what decision he had made. He told me that he decided he was going to go to…
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Struggling to regain control of my life
I've always been a strong positive woman with an internal locus of control...until blindsided by DH's dementia. These days my life runs me, time is not my own. I stay on top of all that needs to get done, take care of my husband but find there's no time or energy left for myself. We put everything in to caregiving and…
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Social worker coming .
Any comments on palliative care ?
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Does anyone forget how far there LO is
Sometimes I forget what stage he is in. I think I do alot of scaffolding without realizing it. Today I went back and looked at his test results. Not good. He has both VD and Ad. It was just a reality check.
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Lessons learned
Sometimes we act emotionally instead of rationally. My DH with VD and I both miss the RV trips we used to take so I decided we should continue to make a few more memories while we can. This trip was more for me to have some recent memories when he's gone than for him. Not my wisest idea. We stayed close to home and only…
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Medication Thoughts: Quetiapine, Risperidone, Lorazapam, ABH Gel
My wife is in Stage 7 Alzheimers per the FAST Scale and has changed her behavior in the past weeks including being more Anxious, Confused and Combative. This week she had what I would describe as a hallucination episode and was very anxious, upset and uncontrollable for about 30 minutes. She has severely restricted her…
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What was I THINKING 🤔
yesterday we / I decided to join our daughter at the Casino in Laughlin for dinner and play a few slots. Dinner was great then we all headed for the slots😆we all thought my LO( loved one) was with the other ? After about a half hour we realized we lost him 🤦♀️after searching we found him sitting alone at a machine with no…
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Just need to talk to my friends (203)
It has been a beautiful day, sunny and 75. Meant to check on the daffodils but forgot. The ones I can see from the kitchen window look okay! QVC has started their gardening shows so Spring is near. They had the perennial Gerbera daisies again today. So pretty. I bought them two years ago and had one bloom and they didn't…
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Advice
My husband was diagnosed with early stage Alzheimer’s three weeks ago. His doctor has recommended the leqembi treatment. I’ve read all of the risks and comments on this site. My problem is, do I tell my husband the risks and scare him even more or do I make the decision for him, knowing that he would want to try even with…
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Loneliness, Fear & Sadness
New to this forum. My husband has ALZ and is no longer the kind, considerate, thoughtful, brilliant man he was. I'm feeling overwhelmed with grief, loneliness and functional depression. Although I get through each day and night, I do it without grace. I struggle each day to find my old personality — I was kind, and patient…
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It's not 'agitation' - It is RAGE AND AGRESSION
and it gets worse. I have watched my husband who was officially diagnosed with Alzheimer's near 3 years ago simply marinate in his misery. Nothing I have tried has served to help him. There were unresolved issues that were percolating before the more serious onset of the disease (forced retirement with no interests,…
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Revenge
I didn’t know that a person with dementia could be so revengeful. My husband is a hoarder and he has been collecting things from all over the house. It could be trash it could be trinkets or food etc. He puts them in the corner of the room where he sits. I have to clean up or it will get unreal. I sometimes throw things in…
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The hurt from letting go
My DW is in the middle stage of memory loss. When she was lucid, she said she felt I didn’t love her anymore. I have to admit that my feelings are changing. Her behavior can exhaust me, and I realize that I communicate less simply in order to reduce my stress. It is a lousy spot to be in for both of us, but I don’t see any…
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A Wife and A Partner
Not sure why I'm posting this……I'm not looking for validation and certainly don't need judgment. I guess just sharing my experience. My wife was diagnosed with early on-set Alzheimer's over 7 years ago. She is currently non-verbal, fully incontinent, and unable to do anything for herself. I am blessed that she is still…
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How do you know when it's time for hospice?
Several people here have shared their experiences with hospice. I'm not familiar with it at all, so any advice/explanation would help. My DH is showing more physical signs of decline: losing weight even though he still eats well (160 lbs from 196), is starting to stumble, and becoming incontinent. I know some of that is…
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UTI, Pneumonia, Sepsis and Hospital = Sharp Mental Decline
I have read here many times about how UTI's and hospital admittance escalates dementia and now I am experiencing it. My DH is in stage 5 of Vascular dementia. He was admitted in hospital Sunday evening with UTI, pneumonia and sepsis. He is 83 years old. Fortunately, we came home yesterday afternoon as he responded very…
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The Constant Digs
just a vent. I could really use a day where I don’t get to hear from my DW how I just don’t quite treat her right and I don’t do enough for her. I am gentle, supportive and kind to her and I get back complaints about how something’s just not right with me. Oh honey…it’s not me. Grrrrr
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Need some input
I have a situation that I need input on. I’m in the hospital recovering from cancer surgery on my liver and my wife’s daughter came to take my role until I can get home. I’ve been struggling with the decision to get out of here as soon as possible or wait until I’m fully recovered. All the advice I’ve got says stay here as…
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personal strength trainer?
Hello. I'm new to this group. My wife is 66 and is still in the early stages of her Alzheimer's. Does anyone know of a personal strength trainer or a gym that specializes in weight training for Alzheimer's patients? We live in Lowell, MA. Thanks.
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Strange eating habits
My husband has got to where if he starts snacking on something he will eat until it is all gone. For instance, I bought about 2 lbs of grapes this morning. Husband ate all of them within 2 hours. And I noticed other day, we had a 3 lb bag tangerines. He ate half of them in one day. I finally hid them from him. Is this just…
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Wants to "go home"
This is my first post. Husband was diagnosed with Alz/dementia a year ago, but in retrospect I know it began several years ago. Every day he says he wants to go home, even though he is home. When I tell him we are home, he gets upset and says "it's not my home." I don't know what to say or do. Any ideas would be…
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Problem when we walk or bike
I feel like I’m being really whiny lately (and maybe “wine-y also 😉) but I have another question to pose to this group of creative thinkers. This has happened a few times now and I am not handling it correctly. We’ll be walking or biking and he wants to go a certain way. Ok, we go that way. But as we get farther away from…
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Waiting
Hi friends. My bf (45yo eoa) had his neurologist video visit this last week. I also had the conversation of MC admittance via hospice to a facility with his pcp. Pcp said he put the referral in and should have heard by end of last week beginning of this week. His neurologist said he is in stage 7b. My heart aches. I know…
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funny
DH has started Kisunla. I told him we were going to leave soon for his infusion. He asked why we were going as he had enough confusion and didn’t need more.
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For profit memory care
Virtually all the MC facilities in Tucson are run by big nationwide (for the most part) companies. All of them no doubt are responsible for generating income for their investors, who expect returns of 8-10%, All of them have issues related to the need to cut costs so investors may profit. Today I heard of a local entity…
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CBD and Irregular Sleep Patterns
Good Morning from sunny SoCal. Over the last couple of months my husbands has been getting up two or three times a night to "go to work" - which is actually sitting at the kitchen table with his newspapers and other misc stuff. I've tried melatonin and really didn't get any good results. Has anyone tried using CBD or THC…
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recognizing and treating UTIs
My DW is late stage 5, early stage 6. She is still able to toilet by herself, but her hygiene is deteriorating. I am doing my best to help her stay clean and dry, but success is limited due to lack of cooperation. From what I have read, I should expect UTIs to become increasingly common. How will I recognize when she has…
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My wife of 50 years diagnosed with dementia
Hello , my name is Neal and I'm reaching out because I'm so emotionally upset and tired . My wife was diagnosed last nov. In the first few months she was doing everything to be pro active .. Mostly what the neurologist suggested. As of now she has a lot of anxiety and is not eating and drinking right. I do have support…
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Seizure
My DW (EOAD) had a seizure this morning while we were having breakfast. I had never witnessed a seizure before and it was very scary. Luckily I was with my MIL and she was able to call 911. She had a large contusion and we had a CT which found no bleeding in the brain. She is home now. My question is does having a seizure…
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no meds
My DW was diagnosed with dementia of the altzheimer type frontal lobe complicated by depression. The main concern that I have is I do not know how to help her take her meds. When I offer she either becomrs very agitated with the final statement that she is stupid or says she will. She was given 24 amocycilin by a dentist a…