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LO just diagnosed with VD
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Husband recently diagnosed
Hello everyone. My husband was diagnosed mid February with early onset Alzheimer’s. he is 55 years old and I am 50. Our whole future has changed and it’s been a roller coaster ride of emotions for me since. I live in fear and with anxiety most days. Then I’ll have good days where I feel like I’ve come to terms some. I can…
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DH has 1st Geriatric appointment
The Memory Care called about appointment. I asked what takes place at 1st appointment. She said review history, testing…clock, word, memory…less than an hour. My DH asked what was that all about. I told him to meet with geriatric doctor that would help me in future if I need help with his medications. The neurologist is no…
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Care giving kickback in stage 8
Hello, It's been a long time since i've posted, although i still check in periodically to see how you all are doing. I thought it might be helpful to share some information about stage 8. It has been a little over 8 months since my husband died, a home, with hospice care. My initial reaction, as sole care giver with little…
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Anyone else’s LO seem to get worse after starting seroquel?
DH got his first dose of seroquel Monday night. The geripsych originally prescribed 25 mg twice a day, to be increased to 50 mg twice a day on day 5. He fell asleep immediately after I gave him the first dose at 8 pm, along with his donepezil. Gave second does Tuesday at 6 am and took him to day care, where they said he…
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Anther story about PWD working and risking being fired
Today I was cleaning out some paperwork that DH had left scattered around the basement and I found a disciplinary warning letter from his boss dated from 2018. He never told me about the letter while he was employed so finding it was a shock. He retired in 2021 after I got some info that he was in trouble at work for…
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MC move
My wife moved to MC a week ago. She seems to be adapting well; engaging with other residents, assisting the staff, being her cheerful self. I visited yesterday for the first time, and it was fun and fine, until I was leaving. She wanted to come with me. Staff tried to distract her with activity, but she was still resentful…
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Looking for my Care-Giver Peers with Spouses with Early-Onset ALZ Denver Area
I am a 60 year old man living in the Denver area. My wife was diagnosed with early onset at age 53 in 2020. I have attended our local monthly group but it gets so crowded and rarely is there enough time for serious discussion. It is emotionally draining and hard to find coverage so I can attend the meetings at the time…
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Dr. Natalie video about four things we can do when our loved one is upset
I found this video helpful.
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Namenda Seroquel Newbee
neurologist started LO on Namenda 5 MG twice a day. She will take morning dose with other meds. Other dose has to be mixed with Jelly in PB&J at lunch or if no lunch with applesauce at dinner. Also started LO on Seroquel25 MG once a day. Instructed to crush with second dose of Namenda and add to PB&J or applesauce. I have…
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New To Group and Need Help
Hi all, I am new to this group because I don't know where else to turn. My wife has had Dementia for a few years now. She is steadily getting worse. She can still care for herself but has had increasing bouts of anger and depression. She is diabetic and takes insulin shots and on 3 occasions now has used her low sugar to…
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Dementia and explosive fireworks
I don't know how it is in your area but in my area, my neighorhood end entire city, people are lighting off fireworks that sound like canons. This will be the first firework holiday where I won't be able to comfort my DW during those times. I'm concerned, because she'll be in her room all alone, she'll freak out becoming…
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Seizures
DW with late stage early on-set had a seizure at home last Friday. Called 911 and EMTs transported her to local hospital, where she had another seizure in the ER. She was admitted and stayed in the hospital for 5 days. The first two days she did not wake up. They did a number of diagnostic tests but didn't determine a…
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55-year-old Early Onset: advice about WHEN he should leave work??
Hello, We are wading through so many stressful planning sessions these days. Currently our BIGGEST confusion is when/under what circumstances should my husband leave his job? He's only 55 and in the early stages of the disease. We have three kids living at home (21, 18, and 11) He's a candidate for Leqembi, which—if our…
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An update
I've been off this site for a while due to Covid and a computer crash. But….things are much better. As many of you know, my husband went into memory care recently and I have had a very hard time accepting the situation. I finally decided that if I can't accept it, I have to figure out how to realistically bring him back…
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Fits of crying
My beautiful queen of 61 years has been in a memory care facility suffering from dementia for one year now. I'm having great difficulty coping with her not being under this roof. Practically every day I have these fits of crying. I often feel that I am going to die of a broken heart 💔
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Obsessed with his facial hair
Several months ago, my DH began obsessing about his facial hair. He was asking me to either help or find someone to help to get the hair off his face. Every day, sometimes multiple times a day, he rubs his face and says "I've been asking for help but nobody, including you, helps me." He can still shave himself, although I…
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I haven't seen you in days/weeks/months...
My DW is now delusional: she thinks I'm never here. She will say "I haven't seen you in weeks. Where do you live? Where have you been? Who were you with?" Hearing this has been deeply frustrating and distressing, and I don't know how to respond. Needless to say, I am here all the time. Approaching this rationally, I've…
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Neurologist
My DH was diagnosed with Alz in early 2022. We have since moved to NC to be closer to family. Currently we are using the VA for medical doctors. I now feel we need a private practice neurologist. How do I find one that is good? My DH sleeps most of the day in his recliner, but then tells me he's not sleeping… He is 78. I'm…
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Frustration and denial
Hi, I’m new to this group and I was wondering how do other people cope with the frustration and denial that arises from oneself by living with a spouse with mild cognitive impairment. Communication has progressively declined. It’s like we speak 2 different languages and this sparks confrontations. He is in denial of his…
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Father fears running out of money, how to redirect?
My dad is 86 years old with mild diagnosed dementia (he can remember things from 50 years ago but forgets that he ate 15 minutes ago or the conversation that he just had). There has been a slow cognitive decline over the last few years. He becomes fixated on one thing or another, whether it's the tv in his room (he never…
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Can I do this…?
It’s late here, and I’m tired. I’m currently the major support person for my two older siblings along with my DH with Alzheimer’s. Today has been an all dayer, split between brother and husband. As I’m reading the forum each night after the lights are turned off, I see all you faithful warriors out there, giving it your…
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Contented Dementia Book
My husband was just diagnosed and I am reading about SPECAL care. This has helped tremendously. The book uses the metaphor of “old photographs”….. things in long term memory. When considering this, why would my spouse do odd things like put the tuna can in the freezer? Wouldn’t that be in your long term memory? Please…
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My DH called me a name today...
This morning my DH called me a b**ch. I'm so angry & sad. Not at him but at the disease and disappointed in myself that I lost my temper with him. He was diagnosed 2 years ago with frontal memory loss unknown type. They can't do an MRI because he has leads in his heart from triple heart bypass in 2015. The VA won't do a…
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Different day different symptom
ok every time I think I have a handle on dealing with this awful illness something happens to upset the apple cart once again! The “ have patience, he can’t help it, it’s out of your control, it’s the dementia thing has helped but then you get a series of Oh my God moments!! Apparently DH’s memory is fading as he can’t…
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The never ending Geri psych saga
My DH will hopefully get out of his Geri psych unit next Monday. The APRN switched him to Risperidone, which seems to be working well, with no side effects yet. I had found a new geriatric psychiatrist that was supposed to do a telehealth visit in a week so my DH could continue on his new medication. Today I found out that…
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Advice on staying away after moving spouse to AL?
I moved my ES DH into assisted living 2 months ago and it was the right thing to do. We were in crisis and I couldn't keep him or me safe or take care of him. But he is struggling with the move and is getting more anxious, fearful, and dependent on me being there. I have been going every day and leaving at the same time…
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putting keyed locks on closets and spare bedroom doors
OK, I completely lost it today, and the worst part of it is.... I have no remorse. The free style urinating by DH is out of control. I've put barriers up in front of doors to bedrooms, and that worked for awhile, but today, he removed a hamper and a baby gate and was about to pee(again) on the brand new bedding . I had…
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New name, old member
I've been around a while. Formerly known as dutiful deb, I spent a decade caring for my mom. I felt that with the new change of caregiving roles, it was fitting to alter my screen name. I also value my privacy and wanted to remove any identifying marks. It's been a long time since I posted here. My mother passed away 6…
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New member
Hi I have a partner with undiagnosed dementia. Trying to get him diagnosed has been an uphill battle. He doesn’t think there is anything wrong with him so is very resistant to attending appointments, etc. Am now at the stage where he has had a ‘challenging‘ appointment with the Dementia and Frailty team and yesterday had…